Going the Distance for Infertility Coverage – Reflections on Advocacy Day from Brooke

Today, Brooke Kingston shares why she travels 2000 miles from home to Washington, D.C. for Advocacy Day each year. Thanks, Brooke, for sharing your story!

Elizabeth

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Brooke after sharing a portion of her story with ART of Infertility during our mini interview sessions before Advocacy Day, 2015.

Two years ago this May, I boarded a plane in Phoenix, Arizona destined for Dulles International Airport in Virginia, a place I’d never been. I picked up my rental car and drove to a home in Sterling, where I would be staying for the next week. I was about to meet someone I’d been online friends with for 3 years, but had never met face to face. Our plans were to get pedicures, eat good food, and spend a day in Washington, D.C. talking to members of Congress.

You’re thinking I’m crazy, right? Maybe a little.

When I think back to the leap of faith I took flying across the country, meeting (and planning to stay with) someone I’d never met and committing to walk the halls of the Capitol, I’m still a bit surprised with myself. I’m a homebody. I hate public speaking. Why would I do something like this? To explain that, I need to back up a little more.

Five years ago this summer, my husband and I were diagnosed with joint fertility issues. We were given a 2% chance of ever conceiving on our own. Having agreed ahead of time that we wouldn’t do IVF, we spent the next year coming to the decision that we would choose a childfree lifestyle as our resolution to infertility. It was the hardest choice we’ll ever make as a married couple, but we made it together and committed ourselves to each other and began to heal.

Part of my healing process is creating. I took up new crafts and converted what would have been the nursery into an office and craft room. I learned to knit and returned to painting, something I’d enjoyed in high school. I baked and decorated cookies and cakes. I dabbled in photography and sewing. My Pinterest boards grew exponentially. When our first nephew was born in the summer of 2014, I learned to quilt and made 7 quilts in as many months, gifting them with love to friends and family. I poured myself in creating to fill the void.

The fifth quilt Brooke created.

The fifth quilt Brooke created.

The other part of my healing process is taking action. Infertility left me feeling helpless, and then angry at that feeling of powerlessness. To face that anger, as well as to find community and support, I became involved with RESOLVE: The National Infertility Association. I started as a support group attendee shortly after our diagnosis and eventually became a group leader. I became involved in fundraising through the Arizona Walk of Hope, and eventually became the chair of the event. Later, I would become an Ambassador and assume the responsibility of being a positive face of RESOLVE in the community.

Brooke with fellow Advocacy Day attendees at the welcome reception in 2015.

Brooke with fellow Advocacy Day attendees at the welcome reception in 2015.

In the midst of this volunteer work, I heard about Advocacy Day. In 2013, I remember posting on Facebook that I would be there in 2014. I didn’t know what all was involved, but that was my goal, and I would not fail. Those were my words: “I will not fail.” I spent the next year saving for airfare. A friend who I’d met through infertility message boards and become close with – thanks to our spectacularly matched wit and diagnoses – offered her home as my place to stay and agreed to join me at the Capitol. I was beyond excited and nervous, but on May 7th, 2014, the day of my first Advocacy Day, I achieved the goal I’d made over a year earlier.

Brooke at Senator McCain's office during Advocacy Day 2014.

Brooke at Senator McCain’s office during Advocacy Day 2014.

It’s hard to describe the exact feeling of being at Advocacy Day. It’s awe-inspiring: from meeting the staff of RESOLVE, to hearing the empowering speeches of the event chairs at the morning training, to being in the Capitol building amidst the hustle and bustle of staffers and trams and security points. It’s intimidating sitting in front of a congressional staffer (most of whom were younger than me – you kind of want to ask if their parents know where they are), telling them you’re there because you’re infertile and you want their boss to support legislation that will make life better for people like you. It can be difficult to remember all the statements you carefully rehearsed and the facts about the bills you memorized when you’re nervous and your mouth feels dry and your palms are sweaty. Their political philosophy may be wildly different and you may feel like you’re talking to a wall.

But your voice is HEARD.

Whether my congressperson agrees with me or not, my voice was heard, and it was heard on behalf of 7.3 million Americans who weren’t there in that room that day. That’s an incredible sense of accomplishment. Even if they don’t agree to co-sponsor a bill, when we tell them that we’re there with a group of over 150 people from all over the country, that makes an impact. That tells them that we are a force, and that we matter. That’s the incredible feeling that drives me to attend Advocacy Day, to set aside my fear of public speaking for the greater good of my community. This May will be my third consecutive year attending, and I have no plans to quit.

Brooke and her online turned in-real-life friend, getting pedicures before Advocacy Day 2015.

Brooke and her online turned in-real-life friend getting pedicures before Advocacy Day 2015.

As for the friend I stayed with that first year, I’m doing that again, too. We’ve become the best of friends, and this is something we’re committed to doing together, along with the growing number of advocates we meet each year. Advocacy isn’t only about the message we deliver directly to congress. It’s about our community and how we foster it and make the environment better for those who can’t speak out. It’s about being with other people who understand the emotional complexity of the disease and using those emotions to drive action.

It’s about taking a leap of faith and believing that you can create a difference, start a conversation, and make things better for others.

Please consider joining Brooke at Advocacy Day in Washington, D.C. on May 11 this year. You can learn about how to get involved at resolve.org.

 

 

Myth – One round of IVF is all it takes to “beat” infertility. 

I was very reluctant to try IVF. Three and a half years into trying to conceive I had endured 5 rounds of Clomid and timed intercourse, 4 IUI hybrid cycles, a diagnostic laparoscopy, and six months of weekly therapy appointments to sort out how I felt about the prospect of using IVF to try to build my family. I had spent months doing research about the procedure, along with even more extensive research about adoption. After much consideration, my husband and I figured that IVF would be the cheapest, fastest, easiest path to parenthood, even though it isn’t any of those things. Assuming it worked.

One in eight couples in America have received a diagnosis of the disease of infertility. Like most Americans needing IVF, our health insurance wouldn’t cover the treatment. We’d have to pay out of pocket. Not only that, the emotional investment can be extremely expensive. We decided that, for us, the best plan would be to try one round of IVF, transfer any resulting embryos, and move on to other options.

I remember when I told my mother-in-law we had decided to give it a try. I was in the dollar aisle of a grocery store talking to her on my cell phone. “That’s good,” she replied. “We know IVF works.” However, while I appreciated her confidence and hoped that it WOULD work for us, I’d done the research and had insight that she didn’t have. Although IVF would give us the best odds we’d ever had of achieving a pregnancy, they were still against us. IVF working was definitely not a sure thing.

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Crib with Medication Boxes by Elizabeth Walker. Mixed media with custom crib by Morgan Shores Woodworking.

As described in this December article from The New York Times, a study out of the University of Bristol and the University of Glasgow in the United Kingdom found that “nearly two-thirds of women undergoing I.V.F. will have a child by the sixth attempt, suggesting that persistence can pay off.”  The out of pocket costs for those cycles? As explained in this article about the same study, published by the Los Angeles Times, “a rough calculation (assuming two attempts at embryo transfer per cycle) would cost up to $132,000”.

These are the remnants of approximately $10,000 worth of medications, needles and syringes I used while undergoing one IVF and two subsequent Frozen Embryo Transfers. What could have resulted in my child, or children, instead resulted in a pile of boxes, bottles and sharps containers that I find hard to discard because they help represent my treatment journey.

These are the remnants of approximately $10,000 worth of medications, needles and syringes I used while undergoing one IVF and two subsequent Frozen Embryo Transfers. What could have resulted in my child, or children, instead resulted in a pile of boxes, bottles and sharps containers that I find hard to discard because they help represent my treatment journey.

THIS is why it’s so important that we advocate for legislation that will help those with infertility build their families. Maria and I will be at Advocacy Day in Washington, D.C. on May 11th, fighting for this cause and we invite you to join us! It’s an amazing, empowering experience, and a place where incredible friendships are made. In fact, Maria and I met at Advocacy Day in 2014.

If you want to learn more, check out this link from RESOLVE: The National Infertility Association. Or feel free to contact us to chat about it at info@artofinfertility.org. If you can’t make the trip, check out this link to learn more about the federal legislation and for easy ways to contact your Senators and Members of Congress to show your support. Another easy way to make a difference is sharing messages about Advocacy Day on social media. You could share this video, for example. Together, we can raise awareness, busting the myth that one IVF treatment is all it takes, and working to improve the treatment coverage that will help those with infertility build their families.

Elizabeth

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Risa Levine – An Advocacy Success Story

This week, we’re sharing the story of infertility advocate, Risa Levine. Risa’s story is a great example of the work that can be done and the progress that can be made, when you’re willing to stand up and fight for a cause. We hope that it will inspire you, as it has us, and that you might decide to join us at Advocacy Day on May 11th in Washington, D.C.

Elizabeth

Risa’s Levine’s husband proposed to her with the words, “I want you as my wife, I want you as the mother of my children.” They married shortly after and, with Risa living in New York City and her husband in Washington, D.C., they had a commuter marriage for the first year. They both wanted children but Risa stayed on the pill, knowing that trying to conceive wouldn’t bode well for what was already a challenging relationship.

Eventually, Risa’s husband joined her in New York City and a few months into trying to conceive, she made an appointment with a reproductive endocrinologist. Her doctor was confident that a few IUIs was all she would need. Unfortunately, that wasn’t the case. IVF cycle after IVF cycle ensued. “I did my injections at the U.S. Open in the bathroom, I did them in the middle of a Springsteen concert concert, I did my trigger shot with a client in the car. I just pulled down my pants and just popped it in my butt. You name it, I did it everywhere,” Risa recalls.

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On the first morning of the 2004 Democratic National Convention, Risa, who was involved in John Kerry’s campaign for presidency, had her blood drawn for the beta results of her first IUI before driving to Boston for the convention. “I got the phone call just as I crossed the Massachusetts border. I heard the magic words, ‘Congratulations, you’re pregnant!’”

Elated, Risa threw back the top of her convertible and blasted Bruce Springsteen for the rest of the trip. Sadly, her repeat beta two days later revealed her numbers were going down instead of up. She was losing the pregnancy. Just wanting to be at home, she left the convention before Kerry and Edwards gave their speeches.

Early on in treatment, Risa started advocating for infertility rights on her own. “I had a lifetime max on my insurance of $10,000. I can’t speak for the rest of the country, but in New York that lasted about 15 minutes. I mean, a hysterosalpingogram and then three consults and you’re dead,” she explains.

Risa went to Washington, D.C. prepared with homemade folders and information packets on infertility. She’d set up a meeting with Anthony Weiner, who had previously introduced the Family Building Act, legislation to mandate infertility coverage on a federal basis. It hadn’t gotten very far and Weiner wasn’t planning on introducing it again. “I said you’ve got to introduce it again. I was aggressive and pretty vocal,” Risa recalls. With her urging, Weiner reintroduced the legislation six months later. “As far as I’m concerned, Risa states, “Anthony Weiner is an infertility hero and I will maintain that to this day.”

Weiner’s office alerted RESOLVE: The National Infertility Association, that Risa was on Capitol Hill lobbying for their issues. RESOLVE’s president, Barb Collura, called Risa and asked her to join their advocacy efforts. So, Risa chaired her first Advocacy Day and continued working with RESOLVE while doing everything in her power to try to get pregnant. She tried acupuncture, Mayan abdominal massages, went to a physical therapist to manipulate her uterus. She traveled to Israel with her family and visited every rabbinic tomb in northern Israel, traveling by armored bus to Bethlehem and, wearing a red bracelet, prayed at the tomb of Rachel, who had also suffered from infertility. She even drank crushed red rubies because there’s a connection between rubies and fertility in the Talmud. She had more pregnancies but none of them lasted. It was a difficult time, made even more challenging with Risa’s husband struggling with depression and alcoholism. “My husband continued with the alcohol binges in and out of my cycles so I was either dealing with him in the hospital or me losing a pregnancy or both. It was just an up and down nightmare of both happening at the same time.”

Back in the U.S., Risa worked with then Senator Hillary Clinton’s office on infertility. “We went through every issue and they were extremely patient, very inquisitive, and they wanted to understand absolutely everything,” she recalls. While Clinton’s office didn’t think it was the right time to introduce the Family Building Act in the Senate, they promised to help. “I didn’t know what form that was going to take but I also know how Clinton operated and her methodology is that if she couldn’t do it legislatively, she always found another way.”

A few months later, RESOLVE received a phone call from the Centers for Disease Control (CDC) after Clinton had called them asking what they were doing about infertility. As a result, the CDC drafted a white paper, establishing a need to study infertility. That paper became the National Public Health Action Plan for the Detection, Prevention, and Management of Infertility. “When the CDC declares something a disease that requires study, it becomes a public health issue and that’s an enormous platform for our advocacy,” explains Risa.

In November of 2007, Risa was mid way through what would turn out to be her last frozen embryo cycle when her husband came home saying he thought there was going to be trouble at work and that she had to either cancel the cycle or he was divorcing her. “It was out of the blue and that was really super traumatic,” she recalls. “He canceled the cycle, then left shortly thereafter for in-patient rehab. I had a friend’s wedding and I couldn’t face it and I went to Iowa instead for Hillary because that’s what I do. That’s how I deal with things. I campaigned. It became about getting Hillary elected” Risa says, fighting back tears.

A couple of weeks passed and things at home seemed like they would be okay until her husband told her he had rented an apartment and would be moving out the following week. Risa expected that their divorce would be amicable but that wasn’t the case. Instead, it took the next two years. The main thing they fought about was the four embryos they still had in storage at Cornell. “My then father in law was adamant that I was not going to have those and he told his lawyer, who told my lawyer, that there was no amount of money that he wasn’t willing to spend to make sure that I didn’t have them.”

Knowing that she couldn’t afford to fight her father in law, Risa made the decision to donate the embryos to Cornell for research, believing that was the only way to make sense of losing them.  She hoped that Cornell would be able to use the embryos for something meaningful, whether it was stem cell research, infertility research, or whatever else they chose to use them for. Risa recalls that she had to force herself to sign the consent to dispose of the embryos and that that’s when she broke down. “I’ll never see my children. I lost my kids. The hopes and dreams I had; celebrating their bar mitzvahs and college graduations and first days of school and all of that. There is no getting over that. There’s living with it but there’s no getting over it.”

Risa spent her life’s savings and then some on her treatment, “I don’t have a baby and I’m divorced. So, outcome wise. It’s not an effective use of funds, time, body, money, life in any way. By the time my divorce was final in 2010 I was 48 years old and I was broke and broken.”

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Risa continues as an infertility advocate because she hopes that she can make sense of what happened to her by helping other people. She’s frustrated when she sees those in the infertility community build their families and then not turn around and try to help those who are still fighting to build theirs by writing a $10 check to RESOLVE once a year, writing a letter to their legislators, or showing up on Capitol Hill during Advocacy Day.

Risa hopes that through her advocacy work, eventually, nobody will have to go through what she went through. Her next fight will be at the first New York Advocacy Day, Tuesday April 12th in Albany for coverage of IVF and legalized compensated surrogacy and she will be in D.C. again on May 11th, lobbying for family building legislation. “I fight so that people can have success,” she says. “I want them to have success.”

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Water, the President, and Infertility

You’ve probably heard of the water crisis in Flint, MI. In case you haven’t, here’s the gist of it. While the city of Flint was under emergency management by order of Governor Rick Snyder in 2014, a decision was made to discontinue sourcing the city’s water from the city of Detroit.

As a cost saving measure, Flint’s water supply would instead come from the Flint River. The river water was so corrosive that it broke down the city’s lead pipes, leaching toxic levels into the Flint residents’ water. Lead poisoning in children can cause developmental delays, vomiting, hearing loss, and more. In adults, it can cause memory loss, high blood pressure, reduced sperm count, miscarriage, the list goes on. In addition to lead poisoning, an outbreak of Legionnaire’s Disease, which is possibly the result of the contaminated water supply, has killed 10 people. This is all completely horrific.

In October, Flint’s water supply was switched back and is once again sourced from Detroit. However, the damage to the pipes has been done and the water is still unsafe. It wasn’t until January 5th though, that Governor Snyder declared a State of Emergency and on January 16th, President Obama declared the situation in Flint a federal state of emergency. Obama was visiting Detroit yesterday and spoke about this disaster.

flint water crisis

Nearly seven years into my experience with infertility, it’s rare that I have those moments that anyone with an infertility diagnosis knows well. They come out of nowhere. The hit by a truck, breath knocked out of you, heart breaking into a hundred pieces moments when someone asks you if you have children, you see a young child reach for his father’s hand, or a pregnant woman lovingly rubs her belly. I’ve come a long way in dealing with the emotions that come along with this disease. However, listening to coverage of President Obama’s speech on my local NPR station, Michigan Radio, while sitting in traffic during my commute last night, I nearly burst into tears. The reporter quoted the president and then followed up with audio from his speech, reflecting on the crisis in Flint.

“I’m very proud of what I’ve done as president, but the only job that’s more important to me is the job of father. And, I know that if I was a parent up there, I would be beside myself that my kids’ health could be at risk. That’s why over the weekend, I declared a federal emergency in Flint to send more resources on top of the assistance that we’ve already put on the ground.”

Obama went on to say that he’s designated a federal coordinator to make sure the people in Flint get what they need from their country, that he’s met with Flint’s Mayor, Karen Weaver, and told her that he’s going to have her back, and all of the people of Flint’s back, as they work their way through this terrible tragedy.

My heart broke when I heard those words. My heart is racing now, after listening to Obama’s speech again to transcribe his sentiments. The President says he’s proudest of his role as a parent, a role that millions of Americans long for, yet are unable to achieve, because they have the disease of infertility.  The federal government has the city of Flint’s back, as it absolutely should, yet there is no federal mandate for health coverage for the diagnosis or treatment of infertility.

Most Americans don’t have infertility coverage and many have to pay completely out of pocket for their health expenses due to this disease, a disease that is recognized by the Centers for Disease Control and Prevention (CDC) as a public health concern. The federal government doesn’t even have the backs of veterans who are infertile as a direct result of injuries sustained in the line of duty. There is currently a Veterans Administration ban on coverage for in vitro fertilization, a procedure that could bring the dream of parenthood to thousands of veterans of war who can’t become mothers and fathers without it. Parenthood. The role which their commander in chief values above all.

The people of Flint are worried about their health, scared of what their futures might hold, or might not hold, as a result of the public health crisis of contaminated drinking water. People are outraged so they’re raising their voices and they’re being heard.

This is why I raise awareness through infertility art exhibits, art and writing workshops, and conference presentations with ART of Infertility. This is why I lobby on Capitol Hill each year on Advocacy Day for legislation that, if put into effect, will help those with the disease of infertility build their families through treatment or adoption.

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Maria and me on Advocacy Day 2015.

My infertility diagnosis affects my health and well being and alters the possibilities for my future. It makes me outraged that my loved ones and I don’t have access to the care we need to treat our disease. So, I write my members of congress, meet with them on Capitol Hill, align myself with members of the infertility community so we can support each other. I shed light on the trials of infertility through portraits and interviews of those dealing with the disease and curate exhibits of artwork created by them so the public, our insurers, and legislators can better understand why it’s important that we gain the health coverage we need.

Like the president, I’m proud of the work I have done. However, my job won’t be finished until every person who wants to be a mother, or wants to be a father, has access to the resources they need to achieve their dream.

-Elizabeth

Advocacy Day is on May 11 this year. Please join me in Washington, D.C! Click here for more info.

Angela’s Advocacy Day Interview

Maria and I had the pleasure of documenting a bit of Angela’s story when we were in Washington, D.C. last month. Angela did multiple rounds of IVF with both her own eggs and donor eggs before adopting her son domestically. Thanks, Angela, for sharing your story with us so others will know they are not alone!

Elizabeth

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Angela talks about her experience with open adoption and the frequency with which she has contact with her son’s birth mother.

For more information on adoption, the Creating a Family website is a great resource. They even have a radio show that can how information on the different types of adoption and how to decide which one is right for you and this quick comparison chart on the different types of adoption.

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Angela is a RESOLVE: The National Infertility Association Ambassador and a peer-led support group host. You can play the audio clip to hear about how Angela got involved with the organization. (She references Redbook’s Truth About Trying campaign in this clip. You can check out some of the videos from the campaign at this link but will have to scroll to the bottom to find them.)

Click on this link to find a RESOLVE support group near you. If there isn’t one in your area, you can email info@resolve.org to talk to someone about starting one. There’s no substitute for in person, “real life” groups and the support they provide. It was through a RESOLVE support group that I became comfortable with my diagnosis, sharing my story, and ultimately wanting to do infertility advocacy, resulting in ART of Infertility!

Advocacy Day Interviews

Maria:

These past two weeks been a whirlwind! New exhibit and workshop dates are currently being planned for the project, we hosted our workshop and exhibit at Busboys & Poets in DC, we met with our MI legislators to discuss infertility legislation, we gathered new infertility stories for the project, plus we successfully met our Kickstarter goal! Thank you for all who supported us, both financially and those who continue to publicly support and share information about the project. Liz and I continue to pinch ourselves in amazement about how the project has evolved over this past year.

Many of you may not know that Liz and I first met during this time last year at RESOLVE: The National Infertility Association’s Advocacy Day. We bonded over our infertility stories, experiences leading RESOLVE peer-led support groups, and our passion and interest in the arts as a heuristic for infertility healing. Our friendship has blossomed over the past year, incorporating many of these shared interests and our professional backgrounds into the project.

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Liz and me in front of the Capitol during Advocacy Day last week.

 

So while I reflect on our time spent in DC last week, I think about how Advocacy Day brought the two of us together and really helped to shape the project into a national infertility oral history and art exhibit. This year, Advocacy Day continues to serve as a fruitful day connecting hundreds of infertile women and men. Liz and I were lucky enough to spend time with a few of these individuals by inviting a few women to participate in a “mini” interview session for the project.

Here we met Jo and Brooke. Two empowering, positive, strong, and courageous women. Talking with them and learning about their artifacts (Jo, a tatoo; Brooke, a quilt) that they choose to share with the project, I was struck in the moment of interviewing each of them that this is why I come to Advocacy Day. This is why I tell my story to Congress. This is why I believe that infertility should become recognized as a national public health issue. These women. Sitting before me. Telling me their stories. They inspire me and remind me that I’m not alone. That our infertility stories matter. That together as an infertile community, we are strong, we are powerful, we can change the cultural stigmas that are attached to infertility. I want to thank Jo and Brooke for agreeing to share their stories (shown below). I hope that others will find them equally inspiring and empowering.

 

Elizabeth: 

I’m in awe every time I sit down to interview an individual or family about their experience with infertility. Since starting the project, I’ve completed around 70 interviews and they never fail to remind me of the passion and desire that those with infertility have for building their (our) families and what they are willing to do to make that happen, whether they end up parenting, or choosing to be a family of two and live child free.

Sadly, because of the lack of the acknowledgment of infertility as a public health concern (even though it is recognized as such by the Centers for Disease Control and Prevention), and insurance coverage for this disease; many endure years of treatment, and pay for most, if not all of it, out of pocket. That’s why I choose to advocate for legislation that will help those with infertility build their families.

An important part of that is sharing my story, and, through the ART of IF, I’ve had the honor and privilege of documenting and sharing the stories of others as well. It’s been an important part of being able to process my feelings about my disease and I find it amazing that I’m able to help others do that too. During our time in D.C., Maria and I were able to sit down with seven amazing women, Tomiko, Brooke, Angela, Katie, Jo, Annie, and Renee, and hear a bit of their stories. Thank you all for letting us in to your lives and journeys!

Renee, Annie, Elizabeth, Maria, and Jo at the wrap up reception during Advocacy Day.

Renee, Annie, Elizabeth, Maria, and Jo at the wrap up reception during Advocacy Day.

Meeting with my state and local representatives at Advocacy Day made me realize what an incredible tool the project could be for sharing the importance of the issues we were presenting (you can find a list of those issues and bills at RESOLVE: The National Infertility Association’s website by clicking here) and I’m excited about ways we can do outreach through the project to help make a difference on both a state and federal level.

Brooke:

Infertility Advocate, Brooke Kingston, in Washington, D.C. for RESOLVE:The National Infertility Association's Advocacy Day.

Infertility Advocate, Brooke Kingston, in Washington, D.C. for RESOLVE:The National Infertility Association’s Advocacy Day.

 Brooke tells us why she wanted to participate in the ART of Infertility project.

Brooke shares reflections on her infertility diagnosis and decision to live child free.

Brooke finds a creative outlet for her infertility through a variety of hobbies. Here, she holds a quilt she created.

Brooke finds a creative outlet for her infertility through a variety of hobbies. Here, she holds a quilt she created.

“My husband and I are five years into our experience with infertility, and chose a childfree lifestyle as our resolution. I’ve always been crafty and took solace in creative hobbies. When my sister announced her pregnancy in November 2013, I struggled a lot emotionally. The second I laid eyes on my nephew, I fell in love with him and wanted to give him the world. I had a strong urge to carry on my late grandmother’s tradition of gifting new babies with her handmade quilts. My nephew received my first quilt, and I’ve finished 6 others since September 2014. This quilt is the fifth I started, and was used as a prop in the photo session my husband and I did to celebrate of fifth wedding anniversary.”

-Brooke

Brooke’s advice for others who have been diagnosed with infertility. 

 

Jo:

Jo advocates at both the state and federal levels for changes that would improve the lives of those with infertility.

Jo shares with us why she wanted to participate in the ART of Infertility project.

 

Jo’s diagnosis includes diminished ovarian reserve and cysts, while her husband has male factor infertility due to a previous vasectomy. Here, she explains more.

 

After many cycles of both IUI and IVF, Jo has never been pregnant. Listen to the two clips below to hear about her treatment and how she has had to pay for them out-of-pocket since she has run out of insurance coverage.

Jo's tattoo of an eight cell embryo was created by artist, Jude LeTronik.

Jo’s tattoo of an eight cell embryo was created by artist, Jude LeTronik.

Recently, Jo got a tattoo to honor her journey and has a sort of prayer, or spell, for her next upcoming IVF to work. Listen to her talk more about the reasons why she chose this image. If you’d like to learn more about the tattoo artist, you can check out her website. http://www.judeletronik.com