20 Days After Miscarriage

Today’s guest blog is from Lindsay Mader. In it, she gives us a glimpse at each of the 20 days after she learned she was miscarrying. I love this post because it’s a great reminder to us that everyone handles grief in different ways, that grief isn’t linear, and that there is no time line for grief. Thank you, Lindsay, for sharing your post with us. We wish you peace and healing as you navigate your infertility journey.
– Elizabeth

20 Days After Miscarriage

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We got the news on Friday, October 28th. That Friday is Day 1.

Day 1 – We got the bad news. We had tickets to a show we’d been looking forward to for months. We got dinner before. The hostess said “Just two?” Yup. There’s only two of us now. I cried twice while at the show. Once into Joe’s chest and once in a bathroom stall. I wanted to die.

Day 2 – I didn’t brush my hair or my teeth. I did put on pants and went outside. I cried, a lot. I ate a lot and drank lots of wine.

Day 3 – I did some cleaning. Had to get groceries in public. Made it all day, no tears.

Day 4 – Back to work. I’m glad I had the weekend to process. Cried on my way to work. Today should have been our first ultrasound. Cried three times at work. Joe makes me laugh on the darkest days.

Day 5 – I feel like I’m in a fog of sadness. This is my favorite time of year and I worry that it’s ruined.

Day 6 – I’m making a lot of terrible jokes. Guess I’m coping. Tonight, I fall asleep with tear filled eyes. So many opportunities are lost.

Day 7 – Started my morning off crying sobbing at my desk. I’m angry and I don’t know where the anger needs to go. I’m sad. Tears flow freely. My friend rolled over and hugged me. An act of kindness goes a long way. Someone knocked over my “hope” sign. That’s reflects my life pretty well today.

Day 8 – Blood draw. HCG was 12.4. I’m less pregnant each day? I guess. We did receive an Edible Arrangement from family. That was so thoughtful and made us feel so loved.

Day 9 – Fun day with Amanda! At lunch, directly next to us were two couples celebrating a pregnancy. They opened gifts at the table. Guys, I think I’m being followed by pregnant people.

Day 10 – I’m sleeping enough but I feel exhausted all the time. Doing everyday things is hard. Met with Nicole for some BFF time. I’m grateful for people who invest in me even though I’m not always the best company.

Day 11 – We met with the doctor today and determined next steps. More meds this time around but we are optimistic. Support group met today. They give me life❤

Day 12 – Election Day. I had a pretty good day.

Day 13 – My anxiety has heightened for several reasons but I’m doing better than I thought I would at this point.

Day 14 – Another good day. Spent some time with a friend who encouraged me.

Day 15 – I received surgery and transfer dates today. Also, the cost. About $6,000. The guilt I feel is heavy. I also got the news that I’m officially no longer pregnant. I got to see my Mom today! I broke down when I saw her. Overwhelmed by the cost of IVF again and that fact that I thought I’d be pregnant when I saw her next and I’m not.

Day 16 & 17 – I had a wonderful time with my Mom. It was just what I needed.

Day 18 – It’s always hard to get going after a fun weekend.

Day 19 – While struggling with my own stuff, it was brought to my attention that my infertility makes some uncomfortable. That hurts.

Day 20 – I’m hopeful. I’m excited for Christmas. Our transfer is right around the corner. Today, the clouds have lifted.

A Man’s IF Holiday Perspective: It’s All Relative

Kevin shares his thoughts on dealing with infertility and the holidays. As a guy, he finds solace in dealing with infertility through his work – whether that is intellectual or hands-on. Read more about the inspiration Kevin took from deer hunting this past year.

This November, I went deer hunting for the first time. While sitting in the woods, patiently waiting for a deer to walk past my blind, I began to read Einstein’s biography.  The book discusses in detail Einstein’s two theories of relativity – general and special. His special theory of relativity is what challenged Newton’s long held traditional concept of absolute space and time. Through a series of mathematical equations and experiments, Einstein disproved Newton and instead demonstrated that space and time were relative to the observer – not an absolute concept. For example, someone moving inside of a train will have a different experience than someone standing on the side of the road watching the train go by.

Kevin, sitting in his blind, deer hunting.

Kevin, sitting in his blind, deer hunting.

Reading this in the woods, I couldn’t help but see how much of this theory also relates the experience of infertility.  My wife and I have were diagnosed with infertility 5 years ago. That moment was life altering and brought upon itself a host of questions we never imagined we would have to think about. Today, we often have to remind ourselves that there is no absolute right interpretation or method of dealing with infertility. Just like Einstein’s theory: infertility is relative to the observer. Every year around the holidays, this topic comes up for us as a couple. Often we may be experiencing things differently, and we may have different ways or methods to make the holidays work in our minds. Let’s face it, this holiday is all about the birth of a child and it’s a tough one for the infertility community.

For me, and I would imagine many other men out there, talking explicitly about infertility is not really our way of coping and channeling our energy into something positive. Personally, over this year I have focused a lot on work and have been afforded some unique experiences to travel and live my passion of being a medical physicist. I have also poured myself into renovating our house that we bought as a symbol of our love and what we share together, even if we never have children of our own. This is extremely important to me.

A garage entrance that Kevin remodeled into a living room.

A garage entrance that Kevin remodeled into a living room.

I do not think we should despair over having different ways to make these holidays doable, but we should rejoice in that we share in this experience together. There is somewhat of a beauty in thinking about Einstein’s theory and that there is no absolute correct way to interpret and cope with infertility. However, it is comforting to know that a common thread is that the infertility community all shares this experience together. I hope everyone else out there can use this as a bit of consolation and uplift as we head move into a new year.

“A Map to Us” – Stephanie McGregor

Today’s guest blog post is from Stephanie McGregor, a Canadian teacher and artist. Read her story and how she is using her art to help her deal with infertility.

blogpost6 My name is Stephanie McGregor. I’m an artist/teacher and have been struggling with infertility for two and a half years now. Until several months ago, my husband I kept quiet with our struggles, until I did a blog post called “The Monkey in the Room”. You can follow this link if you’d like to read it:

http://www.stephaniemcgregor.ca/blog-montauk/2016/1/3/the-year-of-2016

I knew that I wanted to start a project that I could turn to whenever I feel sad about not yet having a baby.

I bought a very large, blank canvas and hung it up in the room that I hope will one day be a nursery. It sat, white and untouched for a while, until an intriguing thought began to unfold.

I could make a map!

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A piece of Stephanie’s art work.

As  I started sketching out places that are important to me, a little story started forming and it speaks of all the places that our “lost” child can find us.

At first I began painting our little cedar bungalow and my childhood home (which is actually next door!) I added depth with colour of the trees and wildlife wandering across the canvas. Then, the memories started to come trickling in. Like the way my three sisters and I would run after my dad as he mowed the lawn and the pool parties we once had. My childhood dog still scouts around, a protective light glowing.  Our lost pink paddle boat chugs down the river, leading to the cottage where we spent every summer. The more I continue to work on this painting, the more saturated with memories my “map” will become.

As I’m painting, I also think of my mom and dad’s struggles. They tried for seven years to have children. Eventually, they had in vitro fertilization, which was successful and they had three five pound baby girls (including me). My younger sister came 15 months later, an unexpected, wonderful surprise!

A McGregor family portrait

A McGregor family portrait

 

 

 

 

 

 

 

 

I cannot express how wonderful my childhood was and this is what I focus on as I’m painting. All I want is the chance to have a family of my own to create new memories with. I plead with my future child, saying that here there are:

Adventures unnamed

Creatures to befriend

Discoveries undiscovered

And possibilities to pretend….

 If only he/she could find us!

Some days I am feeling so overwhelmed with emotion that I aimlessly wander over the canvas, dabbing paint with no direction. What am I doing this for?

I’m sure anyone going through infertility can relate to some of these feelings.

Other days I feel hot anger and will brush an orange red sunset across the canvas. What is wrong with me?

 A lot of times, as if in meditation, I spread translucent layers of blue to form soft waves. I can accept this path I’m on. Then again, once in a blue moon, I feel hideous green envy. Why her and not me? I allow myself to paint without worry of ruining this piece.

Other times, I focus my attention to one small part of the map and then revel in the feeling of creating something beautiful. This feeling anchors me.

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Other days, I simply sink to floor, my worries weighing heavy and crowding my mind. It sometimes strikes me that this room is supposed to be a nursery, but it is filled with only paintings. I am hit again by fact that besides a paintbrush, my arms are empty.  The fact that I so badly want to make new memories with a family of my own and I don’t know when that will happen.  It’s been two and half years and how much longer do I have to go? Why does it feel so lonely? Does anyone really understand how I feel?

I am also struck by how this journey has changed me. I find that I’ve put myself at a distance from friends and family. I’m afraid to dream too big or wish too much.  Instead of bounding carefree down the road, I step cautiously, looking out for rain. I wonder where this road is going.

But then I glance up and I see what I am in the process of creating. This map is part of my story, one that I can share with my future child.  It really is beautiful. At the end of my story, I wrote to my little lost one:

I can’t map out a life for you that:

Leads you always the scenic route

Away from sadness and pain

I can’t promise you won’t have to walk

Through the dark forest even for a little while

 The very least I can do

Is make this Map to Us

And hope, wait, and dream

That it finds its way to you.

 So I stand up and keep on painting my map. I don’t know exactly where my road to becoming a mom is going yet, but I still have a lot of hope.

I have a few suggestions for anyone who is looking for a project to work on. Why not think of something big that will take a while for you to work on? You can plan out your idea and then whenever you feel like you just need to take your mind off of what you are going through, you can do a small part and not have to think about it very much.

I wish you well on your journey!

To read more about Stephanie’s story and to see more of her artwork, visit her website at; www.stephaniemcgregor.ca

 

 

IVF and A New Beginning

Today’s guest post is from Paula Campos who we met at #asrm2016 in Utah last week. Paula’s own infertility journey led to creating the app, Naula. Thank you, Paula for sharing your story! 

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Paula Campos

When I was a kid I was certain that I was going to be a doctor. My Dad always told us
he wanted to go to medical school and he was always very meticulous. He cleaned our knee scabs, cuts and everything else that required a wound dressing change with perfection. His frustration became a momentary dream for me. When asked what I wanted to be when I grew up, I was quick to say that I wanted to be a doctor.

Last week I almost felt like one when I attended the American Society for Reproductive Medicine (ASRM) Scientific Congress & Expo in Salt Lake City, I spent three fantastic days learning about infertility, checking the latest and greatest technology on embryo transfers and attended some insightful panels on infertility advocacy and legislation changes, research and the emotional rollercoaster that patients experience while going through fertility treatments such as In Vitro Fertilization (IVF). I am not pursuing a new career in medicine, I was there because infertility is part of my story.

I am married to the man that I met when I was 10 years old. We were best friends before becoming life partners. We always talked about having kids, two maybe three! So we started working on that a few years after getting married. A year passed, then another year, then another year. I was having trouble figuring out when I was ovulating so I went to see my physician, she told me it was a good idea to check in with an specialist so that is what I did.

I went to a couple of different Reproductive Endocrinologists for a consultation and they all told me the same thing, I had low ovarian reserves. Their recommendation was to start IVF immediately. I was in denial for a while but time (and eggs) was running out. Picking a doctor was no easy task. I ultimately went with the one that gave me hope and comfort: Dr. Vicken Sahakian. On my second consultation I left the clinic with a print out calendar with my protocol, a lot of paperwork with instructions, and tons of questions in my head.

I went online and looked for videos to watch, specifically how-to videos and egg retrieval procedures. How to inject Follistim, Lupron, Menopur, Gonal-f! What is the egg retrieval like? How long does it take? I was stressed, overwhelmed and on a mission to find a mobile app to help me track all of my medication and appointments on a timely manner. To my surprise, I couldn’t find anything that was close to what I needed so that’s when the idea of creating something came to mind.

I could use my expertise and creativity to give women a useful tool and help make their journey less stressful. Experiencing the struggles first hand was the inspiration to create Naula. While going through the treatments I also cofounded The Glue, a full-service marketing agency specializing in creating meaningful and beautiful experiences. With Neille’s (my business partner’s) full support, encouragement, wisdom and endless patience, we designed, developed and launched Naula, the best fertility treatment mobile app in the market.

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Campos created Naula, an app for managing fertility treatment cycles.

Naula was created to help women just like me, going through Assisted Reproductive
Technology (ART) treatments, manage medications and appointments. Keeping
everything in one place was key. It includes the most common treatments IVF, IUI, Egg Freezing, Egg Donation and Surrogacy. We compiled the best instructional videos and added step-by-step instructions with custom illustrations one tap away from your fingerprints. Users get reminders and alerts on their phone no matter where they are.

The ability to instantly add medications and appointments to an easy to use calendar, provide a bird’s eye view of the entire protocol and privately share with loved ones was very important.

fertility-treatment-appHaving gone through IVF three times, we added a feature that allows users to duplicate a treatment which saves a lot of time. Most importantly, security and privacy was top priority, all of the data transfer and personal information is encrypted and protected.

Infertility is a heavy topic. Emotional support and empathy is not as available as anyone might expect. And, I think for most women and men not being in control is what makes this so hard. It took me about three years to be able to openly speak and write about this. I never imagined that I would be going to a reproductive conference, let alone make a product like Naula. It gave me a new perspective about getting pregnant,making a baby, having a family, adopting and also none of the above. My IVF treatments ended but my journey is not over yet. Creating Naula gave me a new beginning and I will get another chance to write how my story ends.

The Transforming Power of Visual Art

We’re kicking off fall with a guest post from The Mindful Fertility Project’s Buffy Trupp, MA, LMFT, RCC. In this post, Buffy not only speaks to the transforming power of visual art, but invites you to participate in a virtual exhibit we are hosting this fall, using images from her new fertility coloring book, Coloring Conception: Stress Reduction for Fertility Success. Read on to learn more.

The Transforming Power of Visual Art
Buffy Trupp

Infertility certainly presents like macabre art:  a genetic, physiological, hormonal condition that instantly obliterates our participation in the nature of things, the stream of time.

The attitudes and choices in how we each deal with infertility vary enormously, depending on age, gender, severity of diagnosis and many other personal factors.  But regardless of the medical treatments we decide on, we also choose to adopt a story of infertility: how we got it, how we live with it or through it, and what it means to us in the greater context of our lives.

Stories are essential for human beings.  The human psyche is hard-wired to make meaning.   Unbeknownst to us, and throughout our lives, the psyche connects the seemingly random events that mark and shape our reality and weaves them into a series of images or stories.

These images have great power.   They can make us or break us.  They can make the difference between intolerable suffering or amazing grace.  They can be medicine or poison.

We are born into some images, absorb them as children and live them out without ever knowing it.  They live deep within our cells, in our ovaries, our uterus, in our heart and inform our every move.  These stories can indeed be the most insidious.

But there are also healing images, healing stories; images that inspire and transform us, empower and renew us, restore and liberate us.

Apart from stirring our deepest, darkest fears of obliteration, is it possible that infertility also offers us a healing story?  A story that frees us to heal our lives and shed old, unhealthy beliefs?

Many infertile women believe the death of the embryo, sperm, egg or new born child indicates they are unhealthy.

Did you know it is the ability to surrender, to yield, and the willingness to die for the

greater good that differentiates a healthy cell from an unhealthy cell?

When we allow something to die within us, the formations of our old life, fierce guardians of habit and pattern, fall away, giving birth to a new way of inhabiting our body and mind and we heal.

Death is essential to life.

When did we forget this?

When loss is understood as an essential aspect of health,  women struggling to have children begin a healing story.

Healing stories transform even the most difficult of realities into affirmations of life.

Visual art captures this transformation.

The Mindful Fertility Project and The ART of Infertility believe that the art we create and the stories we tell while trying to conceive are central to our well-being.

We acknowledge both the necessity and benefit of art within the reproductive health field.

We are a move toward acknowledging creativity itself as healing.

And the result, while perhaps not quantifiable, can be measured by the quality of life and transformation experienced by all those who participate.

The images below are from a new fertility coloring book, Coloring Conception: Stress Reduction for Fertility Success.

The colored images and the brief narratives that accompany them are inspirational, evoking both a sense of beauty and an immersion in the most elemental aspects of nature.  The words and visual images reveal that life can imitate art; that we can become the things that we see and imagine; that creation is established through our ongoing relationship with our body, with ourself.

“When I color, my body feels alive.”

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“When I color, my body feels beautiful.”

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“When I color, my body transforms.”

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Be the artist of a new narrative – a new series of images.  Let your canvas be the entirety of your embodied vulnerability, the tenderness of your heart, and the brilliance of your creativity. You can re-write your story, re-color your image, re-wire your nervous system, and find new meaning. No, this is not easy, and will take everything you have… and more.

But new life is already inside you.

While it may seem hopeless at times, you have capacities that you did not have as a child when the original stories, the original images were passed onto you: images of what it means to be a woman, how to metabolize unmet longing, what loss symbolizes, images of your place in the world.

Immerse yourself now in creativity. Choose a color and begin a new image, a new story. Feel a new pathway emerging. And allow it to come into consciousness  – through your art, lighting up your body, your nervous system, and fertilizing your heart with love.

You have not lost your chance.

THIS IS A CALL FOR SUBMISSIONS!

The Mindful Fertility Project & The ART of Infertility are publishing a virtual exhibit this fall.

Go to www.mindfulfertilityproject.com/art and immediately download 4 FREE images from our new adult coloring book, Coloring Conception: Stress Reduction for Fertility Success.

Submit 1 colored image on or before December 15th to be featured in our virtual art exhibit AND for a chance to win 1 of 3 Mindful Fertility Journals valued at ($397) each.

The Mindful Fertility Journal is a virtual, mind-body fertility program that teaches you exactly how to optimize your fertile health naturally. It includes 28 unique mindfulness meditations, 14 easy-to-use self-acupressure videos, 12 easy-to-use yoga videos along with nutritional guidelines and meal plans. PLUS 6 incredible bonuses.

We will publish the virtual exhibit at the beginning of 2017; a compilation of all the colored images submitted.

Once the exhibit is published, we announce the winners of our Mindful Fertility Journal GIVEAWAY.

AGAIN, go to www.mindfulfertilityproject.com/art to immediately download 4 FREE images from Coloring Conception: Stress Reduction for Fertility Success, to learn more about our virtual art exhibit AND to be eligible to win 1 of 3 FREE virtual mind-body programs to optimize your fertile health naturally.

I hope you’ll join us.

All my very best, always,

Buffy Trupp

Medical Tourism – IVF Abroad

Darla, traveled to the Czech Republic for donor egg IVF and is today’s guest blogger. This post does contain an image of a pregnancy announcement as well as talks about loss. Thanks, Darla, for sharing your story!

An Unexpected Journey

“Journey” has always been the word I’ve used to describe our battle with infertility. (I’m also very deliberate in the use of the term “our battle” because, while it’s most likely that my eggs were the culprit, I can never forget that my husband was by my side through it all, and he is just as battle-worn as I am.)

Our journey to growing our family was an emotional one that tried to takes its toll on our relationship; a physical one that definitely took a toll on my body; a spiritual one that found me begging on my knees for a reason that a loving God would put us through this.

And for us, it was a literal journey. Practically to the other side of the world. But more on that shortly.

When we were told our best chance for success was using donor eggs, we considered it for a brief moment, but realized to do that here at our home clinic would require years of saving, and of waiting. We thought about living childless, but my heart could only take that for about, oh, a day. We looked into embryo adoption, and even had a wonderful and selfless woman reach out to us and offer us her embryos, but it quickly became apparent that it was very important for my husband to feel connected to our children in some way.

Our research into donor egg IVF led us to something we first brushed off as crazy: traveling abroad for an IVF cycle. The number one place to go for donor egg IVF cycles abroad is the Czech Republic. So we laughed and said, “Thanks but no thanks” to that idea, and kept researching. And our research kept bringing us back to a trip to the Czech Republic.

A dear friend of mine, who I met through an online infertility community, was dealing with a similar situation to ours at the time. She texted me one day and asked if I’d heard about this Czech Republic thing. I said I had, but before I could say we just weren’t on board, she said, “I think we’re gonna do that!” Her excitement about it was infectious, so I asked her to share her research.

Before I knew it, I was emailing clinics in Prague and other Czech cities to ask for more information about their program. My husband was intrigued, too, and he started making spreadsheets to compare stats. And one night, I sat in a bubble bath and he sat on the floor next to me. We ranked all the stats of the clinics abroad, and our own clinic in Texas. We averaged the rankings. And we found our clinic. I’m pretty sure I cried the next day as I emailed the coordinator at Zlin IVF and asked for an available transfer date in February. I KNOW I cried when she responded with the date that our babies would be put into my womb: February 9, 2016.

The time leading up to the trip was a crazy mess of coordinating with clinics here for meds and monitoring, planning a two-and-a-half-week jaunt through Europe, and talking friends and family down as they mildly freaked out about what we were doing.

Czech-trip

The trip itself was a whirlwind. We went to places we’d only ever dreamed of going: Florence, Vienna, Prague. We were standing outside one of the most famous classical music venues in Europe, the Musikverein in Vienna, when we got the call that our donor had 12 mature eggs retrieved and 9 had fertilized. I’ll never forget standing in the rain with my husband outside this gorgeous building and crying over these embryos. We’d never gotten this far before. And though that number was down to only two by the day of transfer, we were so grateful for this chance, and we had faith in our two “little embryos that could.”

Family-photoTwo days after returning from the trip of a lifetime, I told my husband over dinner at one of our favorite restaurants that I’d caved, had tested, and he was going to be a daddy. A week and a half later, we found out that both our little ones had decided to snuggle in!

And now, we take each day as it comes and remind ourselves that we’re farther each day than we’ve been before. Being pregnant after an infertility battle is a battle in and of itself, but like I tell myself daily, “Today I am pregnant, and I love my babies.”

Update:

I wrote this blog originally back at the end of March when I was 10 weeks pregnant. We found out not long after I wrote this that we were expecting two little girls who we named Olivia Adele (baby A) and Catherine Sophia (baby B). We spent 14 glorious weeks as the parents of twins, 11 weeks as the parents of our twin girls. We had dreams for them, we had a picture of our life as a family of four.Announcement

And then, sadly, the unthinkable happened. At our 20-week scan, we found out our precious Catie-bug was very, very sick. She hadn’t developed normally – she had an encephalocele on the back of her skull (which turned out to be an open neural tube defect), a very large cleft lip/palate, small brain structures, and one doctor classified her head size as being in line with microcephaly. We were devastated to say goodbye to little Cate on June 22, 2016, a day shy of 22 weeks’ gestation. I am now carrying my sweet little angel and our survivor, Liv, and hoping and praying we make it to October with no further issues. While our hearts are broken for our loss, the excitement we felt at finally finding a way to become parents and our joy in our daughters is not dampened. This is all just a part of our very unexpected journey.

Nature, Nurture and storytelling through the art of Jen Burdess

Awhile back, Maria and I came across a news story about an infertility art exhibit, One in Eight, that ran at the Ice Cube Gallery in Denver during National Infertility Awareness Week this year. So, naturally we had to reach out to the artists, Jen Burdess and Anne Hallam. We’re happy that Jen is our guest blogger today! Below, she shares how and why she created her artwork and what the experience of sharing it with others has been like for her. Thank you, Jen, for sharing your story!
-Elizabeth

A detail image of Nature, Nurture, by Jen Burdess. The piece was on display in the exhibit, One in Eight, in Denver in April and May, 2016.

A detail image of Nature, Nurture, by Jen Burdess. The piece was on display in the exhibit, One in Eight, in Denver in April and May, 2016.

The inspiration for Nature, Nurture came from the implications of the medical diagnosis of infertility I received three years ago. The diagnosis attacked my identity as a woman. In an effort to reconcile those feelings of loss, Nature, Nurture was created. Though my diagnosis will never change, this work has given me some sort of closure to a period in my life of uncertainty and anxiety. Nature, Nurture consists of three linoleum cuts that were inspired by the anatomy of the breast. They were then hand printed. Each lino cut was printed 136 times. This number corresponds to the rate of infertility in America. One in eight couples will suffer from infertility. 17 out the 136 prints is colored red to represent those with infertility. The lino cuts are printed on used breast pads. The breast pads were chosen as a representation of how far I have come. Without ART (assisted reproductive technology), I would not have had my beautiful son. It only seems right then to use art to record my journey.

The breast pads stretched over 30 feet of wall and was 12 feet high in some places. It was important to me that work was large. I wanted it feel large and imposing, something that could not be ignored. I chose to carve three different designs and printed each in their own color to represent that there isn’t just one cause of infertility or one type of person that it affects. There are many different reasons. Some women never find out the cause. I was diagnosed with stage IV endometriosis. Stage IV indicates that the endometriosis has affected your ovaries and has caused cysts on them. It had also ruined my Fallopian tubes and had caused adhesions and scarring throughout my pelvic cavity. While it was devastating to know the extent of the damage, it also gave me some closure. I had a very clear cut diagnosis. It was very cathartic to devote the time and patience it took to print over 400 breast pads. It was a meditative process and helped me to process the emotions that come along with the diagnosis of infertility.

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Nature, Nurture by Jen Burdess.

The response I received from the show was overwhelming. I wasn’t sure how everything was going to pan out. I knew I wanted to open up about my experience did not know what that really meant. How would I feel about talking with strangers about this? Could I handle criticism for my choices? I just wasn’t sure. We had a few events planned during the show. One was being part of a gallery tour. We had four groups of people cycle through the gallery. The gallery was split in two. My work on one side and some formalist artists on the other side. Their work was all about design and color. The contents couldn’t have been any more different. The tour groups went from chatty and happy to somber and silent as I started to tell my story. People thanked me for sharing something so personal and many women shared their stories with me. Simply by speaking up, perfect strangers told me their very personal stories of heartache and the many different ways they had built their families.

one in eight show

Sharing my story was difficult to do but every time I told it, it became a little easier. Infertility is a lonely place. It is very isolating. It calls into question your identity as a woman. From a young age girls play at being mothers. Society expects women to take up this role. Those who choose not to have children can be judged very harshly. Women becoming mothers is an ingrained expectation. That expectation, coupled with a desire to become a mother, is a heavy burden for those struggling with infertility.

 

The Compulsion to Create

Today we share a guest blog post from Susan Fuller. Susan has been a longtime surrogate and you can learn more about her journey on her website, Twitter or reading her book Successful Surrogacy: An Intended Parents’ Guide to a Rewarding Relationship With Their Surrogate Mother. Thanks for sharing your story Susan!

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I’ve always wondered if there’s something significant about my compulsion to send handmade gifts to the families I’ve carried babies for. And not just any handmade gifts, they have to be gifts that I’ve made myself. Like maybe there’s some kind of subconscious message I’m trying to convey –

“Hey – I created everything that is most precious to you – your child – and although that project has long since passed, look! I will still keep creating for you!”

The earliest memory I have of making something surrogacy-related is a handmade card for my first intended mother. I was mostly into paper arts at the time – card making and scrapbooking – because my kids were still very young and it was easy to manage in tiny stops and starts.

I accompanied my intended mother to her egg retrieval and wanted to give her a little something to mark the fact that our surrogacy experience was finally underway after a few months of stops and starts. I rubber stamped a card with a long row of flowers on tall stems, and added the phrase “lift your face to the sun” to it, hoping that she felt the same way I did about what we were about to undertake together – a joy so deep and penetrating that it felt like flowers in bloom under the blazing mid-August sky.

I made several other thing for her during my pregnancy with her twins, cards mostly, hoping that by acknowledging the significance of the events we shared together it would help her come around to they way I viewed the surrogacy – as something I wanted to share with her rather than do for her.

It never did work out that way.

And so after a sad and unfulfilling conclusion to that pregnancy and delivery, I set about trying to process my raw emotions in the only way I knew how – once again, by making things by hand. This time it was a scrapbook I poured myself into for months, showing the progression of the babies, inside and out, through monthly photos of my growing belly and detailed ultrasound shots. The challenge, of course, was to illustrate my difficult experience with authenticity while also not taking anything away from the birth of two innocent, beautiful baby girls.

Cover of the scrapbook.

Cover of the scrapbook.

I don’t think I ever achieved that balance. I know this because once I finished the scrapbook and I showed it to friends, the most common question I got was “Are you going to give this to the babies’ family?” which always felt like a punch to the gut. It was an unintended punch of course, but still, the question stung every time I got it. This big, beautiful, bursting-at-the binding scrapbook was all I had left to show for the surrogacy, and I was not about to give it away. Someone even had the nerve to suggest I make a duplicate book for the babies’ family.

Saying goodbye to the babies was tearful, not because I felt like I was losing them, but because of what I’d already lost with their parents. The babies I never wanted to keep. I did, however, want to keep them in my life through updates and periodic contact and visits, which I knew was never an option as I kissed them goodbye for the last time.

An image of the embryo transfer that Susan displayed in the scrapbook.

An image of the embryo transfer that Susan displayed in the scrapbook.

When I undertook my next surrogacy journey – the one I call my love story – I knew I’d met my match.

My intended mother Robyn was anything but crafty herself, but what she lacked in handmade skill she more than made up for in appreciation.

She marveled at each card I sent and gushed over the artistry – even the simplest of designs. For her, the thought and sentiment behind anything I made was deeply meaningful, and of course I found her appreciation to be addictive. The more I made for her, the more she gushed, and so the more I made.

Once I’d confirmed that I was in fact pregnant with her baby (we didn’t yet know that I was carrying twins), I asked the nurse to keep the results a secret for an extra day. That night I set about making a special gift for her that would announce to her that she was about to become a mother. Still into paper arts at the time, I used decorative paper, rubber stamps, clear plastic disks, and a metal jewelry form to fashion a bracelet for her that had our due date on it. I was proud of my work, of course, and she immediately dissolved into happy tears when I gave it to her. Mission accomplished.

What I didn’t bargain for, however, was a nine-month-long recurring repair job.

To say that she loved the bracelet is an understatement. She loved it so much in fact that she rarely took it off – only to shower, she said. She tried to move it out of the way every time she washed her hands, but more than once it ended up getting soaked, which weakened it. While my craftsmanship was fine enough for a souvenir gift, the bracelet was never meant for day-in, day-out wear. It was more of a decorative memento rather than a sturdy accessory meant to withstand daily use.

I told her this, but she would not be deterred. Despite me giving her my heartfelt permission to take it off from time to time, she refused. It was thoughtful and sweet, and most certainly gratifying to know how much the bracelet meant to her, and only slightly infuriating as well.

I made frequent repair jobs on her treasured bracelet – she’d tell me ahead of time what was wrong this time and I’d bring all the right supplies along with me to our doctor’s appointments or ultrasounds and fix it while we waited for our exam to start.

She wore the bracelet through the delivery of her twin boys and it was shortly after, probably in the recovery room at the hospital, that I implored her to please, please, for the love of all that is holy because I can’t fix this for you anymore, please take off the bracelet, and she finally did. Her babies now safely filled her arms and she no longer needed the bracelet wrapped around her wrist to feel close to them.

I had every intention of putting together a scrapbook about this surrogacy, just as I had done in my previous one. I had stacks of photos organized and ready – pictures of me showing off my belly every few weeks, carefully marked on the back with how far into the pregnancy I was. I had photos of Robyn and Chris, photos of our get togethers with my kids, photos with their family, and stacks of photos from the birth.

I had piles of pregnancy souvenirs as well – cards from flowers I’d received, napkins and decorations from Robyn’s baby showers that I’d attended, and more ultrasound pictures than I knew what to do with. I’d been collecting baby boy-themed scrapbooking supplies for months, stashing them away for after the delivery, when I could piece everything back together into an album that attempted to capture the love that we’d grown along with the babies.

But curiously, the album never happened.

Was it lack of time that prevented me from tackling it? Possibly, as I recall I was finishing my own kids’ first-year photo albums around that same time and maybe I was feeling a little burned out. But I don’t think that was really it.

The truth is that I really had no reason to make an elaborate memory album for myself because I knew that our first year together – the time we spent as a team, bringing the twin boys into the world – was not a finite journey as it had been in my first surrogacy. Instead, it was just the beginning of a shared lifetime together.

And I had no frayed nerves, no latent anger, no unresolved feelings of confusion and isolation once I’d delivered Robyn and Chris’s babies – in fact it was the contrary. They were constantly in touch with me, at first calling me every few days, then gradually tapering off, yet we still saw each other at least once a month for nearly a year. I would make the 2-hour drive to their house and spend the day with Robyn and the boys, holding them, feeding them, rocking them, until Chris would come home from work with dinner and we’d all eat together just like we did during the pregnancy.

This, the periodic and entirely natural inclusion in the everyday events of their lives, catching up month-to-month, watching the boys grow before my very eyes, was the true resolution to the pregnancy. The capstone was our lives moving forward and unfolding together, instead of the fixed memorial by way of scrapbooking the time our paths crossed. For in fact our paths did not cross, rather, they converged.

The Truth Behind Combat Related Infertility

As we celebrate #MensHealthMonth, we share a story from Crystal who describes the day her family’s life changed forever. Her fiance, Tyler, was injured while serving with the US Army’s 173rd Airborne Brigade. She shares their inspiring story on how they have fought not just for better Veteran’s care but have fought for their own family.

We salute Tyler and Crystal who remind us that infertility does not discriminate. It can impact anyone – men, women, veteran or civilian.  

***

Tyler at National Mall

Tyler, pictured outside of the National Mall in Washington, D.C.

May 3, 2005 was a day that changed our lives forever. Tyler was serving with the US Army’s 173rd Airborne Brigade when his Company was called into the Arghandab River Valley to rescue their Battalion Scouts. After arriving in the valley, the Company’s Weapons Squad, where Tyler was serving as an Assistant Gunner, headed to a high point to provide support by fire. While on the hillside Tyler’s squad came under fire and within minutes Tyler was shot four times. The first bullet lodged in his spinal canal, which left him instantly paralyzed from the waist down and unable to move out of the line of fire. Tyler’s Squad Leader, SSG Matt Blaskowski and SPC Clover recognized the danger Tyler was in and despite continuous fire ran to Tyler’s aid to pull him to safety. Tyler was already paralyzed, but the second bullet was what threatened his life as it ripped through his left lung and lodged in his liver. Tyler was left fighting for his life, and without the intervention of others and a will to live he would not have survived.

Little did either of us know May 3, 2005 would set our paths to cross and ultimately lead to another big fight. Tyler and I met in 2013 when he decided it was time to move past his paralysis and return to the things he loved, sports and outdoor recreation. This is where I came in; I worked in adaptive sports for Veterans and together Tyler and I were able to rekindle his love for all that Colorado has to offer and ultimately fall in love with each other!

Shortly after Tyler and I started dating we began discussing a family and how that would be possible with his injury. This is where the biggest fight we have ever faced together began. Due to Tyler’s paralysis we quickly discovered that IVF was our only option to have a biological child of our own. Soon after, we discovered that due to a 1992 “ban” Congress put on the VA there was no coverage for this medical procedure. We were heart broken, devastated, disappointed, the list goes on, after discovering that Tyler’s wounds received in combat would present a $40,000 barrier to us fulfilling our dream of having a baby of our own and Tyler’s last step to fully reintegrating into civilian society.

Neither Tyler nor I were ready or willing to give up on this dream. He fought with everything he was to survive after May 3rd, despite all odds we found each other, were building a life together, and as a stronger team we would fight for this together. There have been so many “bad” days where anger and disappointment feel as they are taking us over in the journey to have a family, and at times complete disgust that our country, a country that you can’t walk down the street without seeing a yellow ribbon, “God Bless our Troops” sticker, or hearing “thank you for your service,” could let this man down so completely. To cope with the spinal cord injury is difficult enough, to fight for your life is enough to ask of Tyler and every other Service Member in his situation, to ask them to give up on the opportunity to pursue a family simply because politics gets in the way is absolutely unacceptable.

I have seen this man struggle through enough already; to get through life as a paraplegic is not an easy task, but he has NEVER ONCE complained about anything or regretted his service to our country until this. To ask him to give up on something he has wanted his whole life, to be called “Dad” simply because he answered the call to Duty, served honorably, and happened to be wounded in a way that prevents him from being able to pursue this dream without medical intervention is this country, this Congress, truly turning their backs on those men and women who have given so much of themselves already.

These reasons are why Tyler and I have chosen to not only find any way possible to pursue this medical treatment on our own, but to also stand against this gap in coverage and fight to both bring awareness to the issue and change policy to ensure this never happens again. The bad days are no longer consumed with anger and no where to place it, disgust and no way to overcome it, but instead we have taken this opportunity to advocate on behalf of Tyler and every other Veteran in his seat, to stand in front of Congress and give them a face to remember when they vote on the proposed legislation that would reverse this “ban.” It has become our mission to ensure Congress no longer vote on statistics related to this issue, but instead vote on faces, on families, on those men and women who they sent to war with a promise to provide health care to those who came back wounded, ill, or injured.

Tyler and Crystal training for the Ride the Rockies tour.

Tyler and Crystal training for the Ride the Rockies tour.

Tyler has done an amazing job at living life from a wheelchair, we have built an amazing life together full of support and a promising future, but this wheelchair, this bullet in his back, that should not be an excuse for Congress to deny him or anyone else in his position what Congress cherishes most themselves. When we were in DC at Advocacy Day 2016, there was a majority of Congressmen and Congresswomen that had family pictures strewn throughout their offices. This became our platform and will continue to be our motivation for change. We have a wall full of medals Tyler earned in combat, we have a wall full of pictures with us and our dogs, but what we are missing is what Congress already has, what war did not take away from them, we are missing Baby Wilson’s birthday.

If you would like to follow-along with our journey to Baby Wilson, IVF Advocacy for Veterans, please see our blog at http://www.pushmeeveryday.com

June is Men’s Health Month: Fertility is Not Just a Woman’s Issue

Today we join Men’s Health Network and kick off Men’s Health Month. The goal of this health advocacy campaign is to educate the public about the many preventable health problems that affect men and boys, and empower them and their loved ones to move towards a healthier, happier life.

The ART of Infertility views this campaign as a reminder that behind every baby is a male. Men’s health is a family issue. It affects wives, mothers, daughters, and sisters. Thinking about #MensHealth and encouraging our male partners to see a fertility specialist can often be a step towards building one’s family. 

Knowing this, today feature a guest blog post from Sean at Men’s Health Network who talks about the importance of having healthy dads. And remember to join us June 16 from 7:00-9:00 for an interactive art exhibit featuring stories and art about Men’s Health and their fertility at The Turek Clinic

Building healthy men means more healthy families

By Sean McCalley, Men’s Health Network

1994 was a rough year.

John Candy passed away. Someone attacked Nancy Kerrigan at the Olympics. Major League Baseball went on strike. The album of the year was the soundtrack to The Bodyguard.

It wasn’t all bad, though. The show Friends and the band Weezer debuted. So did the movie Forrest Gump. Jack Nicholson even used a golf club to show a car who’s boss.

More importantly, Congress also passed a bill declaring “National Men’s Health Week” to Men's Health Month Bannercoincide with Father’s Day and raise awareness for a global crisis. President Bill Clinton signed it into law; now, it’s an annual call to action for people around the world as part of Men’s Health Month.

Men die five years younger than women, on average. They also die at higher rates for nine of the top ten causes of death in the United States. That includes heart disease, cancer, suicide, accidents, etc. Men simply have a harder time staying healthy.

Part of the problem is cultural. We men are fighters who laugh in the face of danger. It’s partly genetic, as some racial demographics have a higher risk for certain diseases. Sometimes, it’s personal; like getting so mad you do something you might regret later.

Whatever the reason, men need all the help we can get to have long, healthy lives – even if we don’t want to admit it. That’s why Men’s Health Month is so important, and why it’s still going strong after 22 years. The campaign is centered on education and outreach than spans from the community level to Congress.

Governors and mayors issue proclamations for Men’s Health Week in their jurisdictions to promote and highlight Fathers Day. Private businesses host health screenings, as do government agencies, churches, fraternities, and many other organizations. People share their personal stories on social media.

The hope is to persuade us stubborn men to take at least one second (but preferably a MHM-no-date-dark-red-0415month) to look at our health situation, make inventory, and figure out how to make it better. Sometimes men just decide to make a family member happy and finally see a doctor for that mole; for others, it’s a question of maturity or finding financial flexibility.

Whatever the reason, the goal is to make us better men. Luckily, it’s worth the effort.

Here are some tips on how we can make this Men’s Health Month the best one yet:

  1. Fathers can set an example for their kids by making an appointment for a checkup. Healthy men make healthy families.
  2. Let someone know that asking for help is a sign of strength, not weakness or lack of ability. Men are just as likely as women to suffer from a mental health issue; however, they’re less likely to be diagnosed, and four times more likely to commit suicide.
  3. In the public health realm, make sure the connection is clear between a man’s health and the health of his family and community. Most people intuitively understand the role mothers play in supporting their children’s health. Too few however, understand that having a healthy father is just as important.
  4. Participate in the Men’s Health Month #ShowUsYourBlue day on Friday, June 17. Send in pictures of you and your friends wearing blue and post them on social media using #ShowUsYourBlue.