News Round Up: All About Veterans

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CSPAN announcing HR 2577 passed.

This week’s News Round Up is all about veterans because a historic vote just took place and passed! The Mil-Con Bill, now named HR 2577, passed yesterday in the full United States Senate by a vote of 89 to 8, with Senators Corker, Crapo, Flake, Lankford, Lee, Paul, Risch, and Sessions voting against it and Senators Boxer, Cruz, and Sanders not voting. Confirmed: it *included* the Amendment providing funding for IVF for Veterans. It will now move forward to a conference committee to reconcile the bill and then go back to both the House and Senate for a vote.

Kuddos to all of you who called Congress this past week encouraging your local Senators to support this bill. Citizen advocacy does work!

Today, we localize the importance of this bill by sharing a recent news story of Michelle Wager, a MI veteran who has been facing her own infertility journey.

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Michelle Wager, a MI veteran facing infertility.

“A roadside bomb blew off one of Wager’s legs, badly damaged the other and broke her back. Doctors say she coded three times. Her recovery was long and painful. Military health benefits covered the cost to get Wager back on her feet, but there was another problem. Her menstrual cycles had completely stopped, doctors say her injuries threw her body into early menopause. She was just 31 years old and her chances of having a child were slim to none.”

You can read more of Michelle’s story here.

We invite you to learn more about the challenge veterans face when pursuing family-building options and to contact your federal representatives asking them to co-sponsor S 469, the Women Veterans and Family Health Services Act. Find your representatives here.

 

Getting Swept Up in the Fertility Tornado

Today’s artwork is from Kristin Phasavath. We originally met Kristin at RESOLVE, the National Infertility Association’s, Southern California Walk of Hope in Long Beach in September of 2014 where we set up an appointment for her to be interviewed and photographed for the project. Kristin has a unique perspective because she was first a nurse at a fertility clinic and then, while working there, experienced secondary infertility and was a patient herself. Here, she shares her experience creating the oil painting, “Fertility Tornado”, which debuted at our pop-up exhibit in Calabasas during National Infertility Awareness Week in 2015 and has been traveling with us since. We’re preparing to send the painting back to Kristin and are grateful we’ve had so much time with it to share it with others. Below is a guest post that Kristin wrote for us and we originally shared in May of last year. Thanks for sharing your story with us, Kristin!

Elizabeth

Fertility Tornado

My inspiration for the fertility tornado came from my time as a fertility nurse and a fertility patient. When you are in the throws of anything fertility it feels like you are in a tornado, whether you are a patient or a nurse. As a fertility nurse there is so much to organize for each patient all day everyday. Appointments, procedures, schedules, medications, labs, forms, insurance, etc, etc, etc…the list goes on and on and on. As a patient you deal with a very similar list that encompasses every breath you take. It effects your health, marriage, intimacy, mental status, finances, schedule, family life, and this list goes on and on. There is not one corner of your life this fertility thing does not infiltrate. Keeping everything straight as a nurse or a patient is like a tornado.
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Fertility Tornado by Kristin Phasavath. Oil on canvas.

I wanted to create a visual concept of what this fertility tornado looked like to me. Once I sat down to paint, it really just painted itself. I think that I had lived with this statement and vision for so long it just poured out in an instant once I put brush to canvas. The process was amazingly fast. I think that the initial painting took less than an hour. It had wanted to come out for so long. It was very cathartic to me and I felt lighter when I was done. Like I had ironically enough given birth. Once I made up my mind to actually start the painting it flowed very easily, like it was what I was meant to do. No challenges in my way. It just felt good to finally let all my feelings out. There was a moment that I did get a little choked up because it felt a little like the end of an era. A little finality involved.

Kristin with her oil painting, “Fertility Tornado,” and her project portrait at the ART of Infertility pop-up exhibit in Calabasas, CA on April 25, 2015.

I was so proud to be able to share my painting at The ART of IF exhibit. I’m certain that I am not alone in feeling the way I do about this world of fertility. I hope to connect with many of my fellow fertility comrades thru this work of art. I thank Elizabeth for giving me an opportunity to be interviewed & photographed. She really inspired me to share my story and create this painting. The work she is doing is very important and I hope it has a long life. I’m not sure if I will create any more paintings but you never know. There is so much inspiration in connecting with others that share a similar story that it might spark my creative fertility juice again.
~Kristin Phasavath
*Fertility Nurse
*Fertility Patient
*Fertility Artist

Water, the President, and Infertility

You’ve probably heard of the water crisis in Flint, MI. In case you haven’t, here’s the gist of it. While the city of Flint was under emergency management by order of Governor Rick Snyder in 2014, a decision was made to discontinue sourcing the city’s water from the city of Detroit.

As a cost saving measure, Flint’s water supply would instead come from the Flint River. The river water was so corrosive that it broke down the city’s lead pipes, leaching toxic levels into the Flint residents’ water. Lead poisoning in children can cause developmental delays, vomiting, hearing loss, and more. In adults, it can cause memory loss, high blood pressure, reduced sperm count, miscarriage, the list goes on. In addition to lead poisoning, an outbreak of Legionnaire’s Disease, which is possibly the result of the contaminated water supply, has killed 10 people. This is all completely horrific.

In October, Flint’s water supply was switched back and is once again sourced from Detroit. However, the damage to the pipes has been done and the water is still unsafe. It wasn’t until January 5th though, that Governor Snyder declared a State of Emergency and on January 16th, President Obama declared the situation in Flint a federal state of emergency. Obama was visiting Detroit yesterday and spoke about this disaster.

flint water crisis

Nearly seven years into my experience with infertility, it’s rare that I have those moments that anyone with an infertility diagnosis knows well. They come out of nowhere. The hit by a truck, breath knocked out of you, heart breaking into a hundred pieces moments when someone asks you if you have children, you see a young child reach for his father’s hand, or a pregnant woman lovingly rubs her belly. I’ve come a long way in dealing with the emotions that come along with this disease. However, listening to coverage of President Obama’s speech on my local NPR station, Michigan Radio, while sitting in traffic during my commute last night, I nearly burst into tears. The reporter quoted the president and then followed up with audio from his speech, reflecting on the crisis in Flint.

“I’m very proud of what I’ve done as president, but the only job that’s more important to me is the job of father. And, I know that if I was a parent up there, I would be beside myself that my kids’ health could be at risk. That’s why over the weekend, I declared a federal emergency in Flint to send more resources on top of the assistance that we’ve already put on the ground.”

Obama went on to say that he’s designated a federal coordinator to make sure the people in Flint get what they need from their country, that he’s met with Flint’s Mayor, Karen Weaver, and told her that he’s going to have her back, and all of the people of Flint’s back, as they work their way through this terrible tragedy.

My heart broke when I heard those words. My heart is racing now, after listening to Obama’s speech again to transcribe his sentiments. The President says he’s proudest of his role as a parent, a role that millions of Americans long for, yet are unable to achieve, because they have the disease of infertility.  The federal government has the city of Flint’s back, as it absolutely should, yet there is no federal mandate for health coverage for the diagnosis or treatment of infertility.

Most Americans don’t have infertility coverage and many have to pay completely out of pocket for their health expenses due to this disease, a disease that is recognized by the Centers for Disease Control and Prevention (CDC) as a public health concern. The federal government doesn’t even have the backs of veterans who are infertile as a direct result of injuries sustained in the line of duty. There is currently a Veterans Administration ban on coverage for in vitro fertilization, a procedure that could bring the dream of parenthood to thousands of veterans of war who can’t become mothers and fathers without it. Parenthood. The role which their commander in chief values above all.

The people of Flint are worried about their health, scared of what their futures might hold, or might not hold, as a result of the public health crisis of contaminated drinking water. People are outraged so they’re raising their voices and they’re being heard.

This is why I raise awareness through infertility art exhibits, art and writing workshops, and conference presentations with ART of Infertility. This is why I lobby on Capitol Hill each year on Advocacy Day for legislation that, if put into effect, will help those with the disease of infertility build their families through treatment or adoption.

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Maria and me on Advocacy Day 2015.

My infertility diagnosis affects my health and well being and alters the possibilities for my future. It makes me outraged that my loved ones and I don’t have access to the care we need to treat our disease. So, I write my members of congress, meet with them on Capitol Hill, align myself with members of the infertility community so we can support each other. I shed light on the trials of infertility through portraits and interviews of those dealing with the disease and curate exhibits of artwork created by them so the public, our insurers, and legislators can better understand why it’s important that we gain the health coverage we need.

Like the president, I’m proud of the work I have done. However, my job won’t be finished until every person who wants to be a mother, or wants to be a father, has access to the resources they need to achieve their dream.

-Elizabeth

Advocacy Day is on May 11 this year. Please join me in Washington, D.C! Click here for more info.

Infertility is…

While we were in Washington, D.C. for RESOLVE: The National Infertility Association’s Advocacy Day and for our pop-up gallery and workshops at Busboys and Poets a couple of weeks ago, we asked those in attendance to fill out cards describing what “infertility is” to them. You’ll see some of them throughout this post, from Elizabeth. You can see more by viewing a slideshow at this link

infertility is a journey

When I think of infertility, I think of many things. How I view infertility and what it means to me has changed as I’ve traveled through my journey.

Infertility is… devastating.

Infertility is…feeling left behind.

Infertility is…an identity crisis.

 

I was pregnant once, as a result of a frozen embryo transfer, and only knew I was pregnant for a few days before learning that the pregnancy was ending in an early miscarriage. During those few days, I was excited, hopeful and cautiously optimistic, that after four years of timed intercourse, hormone injections, and 7 a.m. ultrasound appointments, I might finally become a parent. However, I was also experiencing some serious anxiety and a complete identity crisis.

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The early years of infertility were extremely difficult. However, once I was used to the fact that I had an infertility diagnosis (for the most part anyway), I settled in to my place as an infertile woman and RESOLVE: The National Infertility Association peer-led support group host. I read books on infertility, I knew which foods to eat to boost my egg quality (and incorporated excessive quantities of them into my diet), I had infertile friends, and was beginning to perfect my answers to the question, “Do you have kids?”, recite them with conviction, and be ready for any follow up questions that came my way.

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When I found out I was pregnant, though obviously happy, I was also confused about where I would fit in. What would happen to my relationships with my infertile friends who I would leave behind? What would my role within RESOLVE become? The first ART of Infertility exhibit was on the schedule at the Ella Sharp Museum in Jackson and I remember being a bit upset that I had to stay in the world of infertility to work on it, instead of being able to enjoy my pregnancy.  I was terrified of moving into the world of someone who was pregnant after infertility. I was even feeling exhausted about the fact that, after watching my diet for years to GET pregnant, I’d need to watch my diet for another 9 months in order to make sure my baby was getting the nutrition it would need. It was a mix of thoughts and emotions. A complete identity crisis, over the course of less than 72 hours.

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I wish I would have gotten the chance to figure out how I would incorporate all of the thoughts and fears above into my new identity as a woman who was parenting after infertility. I haven’t gotten there yet and might even eventually choose to live child free. I’m still trying to navigate figuring out my identity a bit. However, through working on the ART of Infertility, I feel like I am really finding my footing. Because of this project, my view is now that

Infertility is…meeting amazing people, around the country and around the world, who understand how the disease impacts my life, because they’re living it too.

Infertility is…educating health care professionals about how they can better serve their patients.

Infertility is…hosting art and writing workshops to give others the creative outlet that I have found so helpful along the way.

Infertility is…visiting amazing cities and sharing the infertility stories of those who live there.

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Please share with us what “Infertility is” to you.

-Elizabeth

 

Fertility Tornado

Today’s guest post is from Kristin Phasavath. I met Kristin at RESOLVE, the National Infertility Association’s, Southern California Walk of Hope in Long Beach last September where we set up an appointment for her to be interviewed and photographed for the project. Kristin has a unique perspective because she was first a nurse at a fertility clinic and then, while working there, experienced secondary infertility and was a patient herself. Here, she shares her experience creating the oil painting, “Fertility Tornado”, which debuted at our pop-up exhibit in Calabasas and will be exhibited in Washington, D.C. next week. Thanks for sharing your story with us, Kristin!

Elizabeth

Fertility Tornado

My inspiration for the fertility tornado came from my time as a fertility nurse and a fertility patient. When you are in the throws of anything fertility it feels like you are in a tornado, whether you are a patient or a nurse. As a fertility nurse there is so much to organize for each patient all day everyday. Appointments, procedures, schedules, medications, labs, forms, insurance, etc, etc, etc…the list goes on and on and on. As a patient you deal with a very similar list that encompasses every breath you take. It effects your health, marriage, intimacy, mental status, finances, schedule, family life, and this list goes on and on. There is not one corner of your life this fertility thing does not infiltrate. Keeping everything straight as a nurse or a patient is like a tornado.
I wanted to create a visual concept of what this fertility tornado looked like to me. Once I sat down to paint, it really just painted itself. I think that I had lived with this statement and vision for so long it just poured out in an instant once I put brush to canvas. The process was amazingly fast. I think that the initial painting took less than an hour. It had wanted to come out for so long. It was very cathartic to me and I felt lighter when I was done. Like I had ironically enough given birth. Once I made up my mind to actually start the painting it flowed very easily, like it was what I was meant to do. No challenges in my way. It just felt good to finally let all my feelings out. There was a moment that I did get a little choked up because it felt a little like the end of an era. A little finality involved.

Kristin with her oil painting, “Fertility Tornado,” and her project portrait at the ART of Infertility pop-up exhibit in Calabasas, CA on April 25, 2015.

I was so proud to be able to share my painting at The ART of IF exhibit. I’m certain that I am not alone in feeling the way I do about this world of fertility. I hope to connect with many of my fellow fertility comrades thru this work of art. I thank Elizabeth for giving me an opportunity to be interviewed & photographed. She really inspired me to share my story and create this painting. The work she is doing is very important and I hope it has a long life. I’m not sure if I will create any more paintings but you never know. There is so much inspiration in connecting with others that share a similar story that it might spark my creative fertility juice again.
~Kristin Phasavath
*Fertility Nurse
*Fertility Patient
*Fertility Artist

Kickstarter – Help us take the ART of IF to Washington, D.C.

As I began writing this, Maria was somewhere up in the sky or enjoying her layover in Minneapolis and I was about to board my flight to LAX. The past month has been a whirlwind prepping for our exhibit in Iowa City last weekend and Los Angeles County, this Saturday. I can only imagine that the next few weeks will fly by as well!

RESOLVE’s Advocacy Day is May 14th and Maria and I, along with Maria’s husband, Kevin, and my mother, Judy, will be on Capitol Hill in Washington, lobbying for legislation to help those with infertility build their families.

The ART of Infertility is heading to Washington, D.C. with a pop-up exhibit and workshops on May 15.

The ART of Infertility is heading to Washington, D.C. with a pop-up exhibit and workshops on May 15.

On Friday May 15th, we’re holding a pop-up art exhibit and writing and art workshops at Busboys and Poets at 5th and K in Washington, D.C. from 3 – 7 pm. The event is free and open to the public. We have artwork coming in from around the country (we’re still accepting art entries if you’d like yours included, click here.) and will be displaying local artwork, as well as a selection of the portraits and stories we’ve collected over the past year. Marissa McClure Sweeny will be teaching an art workshop and Jenny Rough, who you heard from on our blog yesterday, will lead a writing workshop. Registration is required for the workshops so please contact us if you’d like to attend. These community art events are powerful tools for raising awareness about infertility and building a network of support for those living with the disease.

The event in DC will be our 13th in a little over a year. (Is that possible? I had to check it 4 times to believe it was right!) We’ve been almost completely self-funded until very recently and, if the project is going to be sustainable and allow us to provide a creative outlet to more people in more cities, we know we can’t continue that trend. It’s been suggested by those who like what we are doing that we launch a Kickstarter campaign to allow people to easily contribute to the cause.

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A screen shot of the Kickstarter campaign we hope will help take the exhibit to Washington, D.C.

If you’re not familiar with Kickstarter, here’s how it works. You have an opportunity to contribute to a project, in this case, our pop-up exhibit and workshops in D.C. and get a little something from the project in return.  We have some cool ART of IF swag featuring art from the project as rewards for contributing (ART of IF T-shirt, journal, or messenger bag, anyone?), as well as opportunities to get framed artwork from the show and a digital version of the exhibit we put together for D.C. We set a goal of $3500 and only receive money if our funding goal is reached. We don’t make it to $3500, we don’t get a thing. We only have 20 days to reach our goal! So, we’re asking for your help in funding this show in our nation’s capitol. Will you please join us in supporting the men and women with infertility in the DC area and those traveling in from around the country for Advocacy Day by contributing to our campaign? Here’s the link! ART of IF in DC Kickstarter Campaign.

Thank you!

Elizabeth

 

What is Your First Fertile Memory?

Today’s guest blogger is Jenny Rough. We’ve gotten to know Jenny a bit while working on our upcoming workshops and pop-up exhibit in Washington, D.C. and are looking forward to meeting her there next month!

Elizabeth

What is your first fertile memory?

A friend of mine asked me that question, and I spent a few moments in silence. I thought back as far as I could.

Sunflowers.

Sunflowers

The day I stood among the sunflowers in a garden by the side of our house. The sunflowers had grown even taller than me, just as my mom had said they would when we planted the tiny seeds. I was four years old.

It’s fascinating to me to hear how others answer that same question. Last month, I asked the women in the Living Childfree support group I host through RESOLVE. One woman recalled a summer night and a backyard full of fireflies. Another woman remembered a hike through a rainforest. Her family was an “indoor” family, so every twist and turn on the adventure brought a new surprise and engaged her senses.

On May 15, when the ART of IF’s pop-up exhibit is in Washington, D.C., I’ll be holding a workshop on journaling your fertility journey. One of the writing exercises will be to spend five minutes writing about fertile memories.

How about you? What is your first fertile memory? Please email me at jenny.rough [at] jennyrough.com, or post a comment here and share. I’d love to hear about it!

Jenny Rough is a writer who lives in Alexandria, Virginia. Every summer, she hikes out the sunflower fields near her home. Visit her on the web at jennyrough.com.

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