Group works to educate its community and raise funds for infertility treatment.

Posted on July 19, 2016 by admin

We’ve been pretty quiet on social media since returning from San Francisco because we’ve been busy working behind the scenes. Maria has been hard at work on her dissertation and I’ve been working with a student to reorganize and inventory all of our supplies and artwork. We’ve both been working on our 501(c)(3) paperwork and working with hosts in cities around the country to plan upcoming exhibits and workshops. Those that are confirmed are on our schedule. We hope you’ll join us!

In today’s guest blog post, we’re bringing you the story of a group of infertility friends in Indiana who has put together an infertility outreach and fundraiser event in their community. They plan to provide infertility education, fun activities for kids and adults, and to raise money to help those in their group pay for treatment. Thank you Brandy and Kelly Jania, Jennifer and DJ Cavenaugh, Jessica and Steve Ziller, and Amanda and Sherman Wallace, for educating your community and sharing your stories!

-Elizabeth

Group works to educate its community and raise funds for infertility treatment.

On Saturday June 21, 2014 the RESOLVE Peer-led Infertility Support Group first met at an eclectic coffee shop in Crown Point, Indiana. It began with the intention of preventing women and couples from feeling the isolation that infertility can cause. Brandy, the group founder exclaims, “I have to be honest. I started the group for kind of selfish reasons because I needed support! I never expected to gain true friendships with some of the strongest women I have ever met!”

The group began with three women and as of June 2016 the group has seen 35 women participate at various levels. As the group passed our two-year anniversary we took a moment to celebrate four miracles and the highly anticipated arrival of one rainbow baby expected in August!

These women not only offer physical support by meeting on a monthly basis but offer emotional support and encouragement, laughter, infertility education, personal experiences and let’s not forget the “can you believe what I was told?!” support. Jennifer says “The group makes me feel normal. I don’t feel like an outcast even though we all have different journeys. With it I don’t feel alone.” Amanda shared “The group gives me hope that I can make a family and makes me feel like I am not alone.” Our support group meets on the third Saturday of every month at 10 am at Sip and is looking to offer support to any woman who may feel alone.

The flier for the Fighting for Our Families Infertility Education and Fundraiser Event

In the state of Indiana, IVF can range in cost from $10,000 – $20,000. Medication costs can add another $3,000 – $6,000. Indiana is not required to provide infertility insurance coverage, as it is considered “elective”. Therefore, most looking to pursue infertility treatments are forced to pay out of pocket for treatments rendered. Some members from the group decided to plan the outreach/fundraiser event, Fighting for Our Families. It is scheduled for Saturday July 30^th from 10 am to 2 pm at Fire Station 2, 7905 Taft St. Merrillville, IN and will have various speakers and educators as it relates to the infertility journey. There will also be vendors selling merchandise, a silent auction, activities for children, a DJ, bean bag tournament, 50/50 raffle, t-shirt sales, a bake sale, and lots of food! Jessica shares her feelings about the event saying “I am most excited about getting information out to the public. Facts. Where to find help and where to find support. I feel the State of Indiana really lacks the resources and information to help people through the rollercoaster that is the infertility process.”

When asked about the event, Brandy states “I am most excited about seeing the community as a whole come together. I mean, how incredible to see people coming together to offer support and learn information on a topic that seems so taboo.”

This year’s event will offer all funds received to be given to four couples: Brandy and Kelly Jania; Jennifer and DJ Cavenaugh; Jessica and Steve Ziller, and Amanda and Sherman Wallace. Read their personal stories below and please consider attending the event.

The Janias – We were married September 19, 2008 and in November 2010 we agreed we were ready to start a family. Our 5 ½ year journey has taken us to 2 OBGYN’s, 3 fertility specialists, HSG test, 9 clomid cycles, 2 unsuccessful IUI’s, Laparoscopy, 1 cyst measuring 10 inches with 2 ounces of fluid drained, 2 successful IVF’s that resulted in miscarriages, and endless blood work. Upwards of $30,000 later, we come before you with heavy hearts and empty arms but deeply hopeful for the long awaited positive pregnancy test and then a healthy and beautiful delivery of a baby of our own. We have been together for 13 years and have both devoted our professional lives to helping people; Brandy working in Social Services and Kelly working in the EMS field. We are by no means financially well off; however, the public service jobs are not fields to enter in hopes of becoming rich. After our most recent loss on March 17, 2016 we began seeing a Recurrent Miscarriage Specialist to determine next steps which appear to be a 3rd round of IVF.

The Cavenaughs – DJ and I decided to start trying for a family in 2009. We never expected to go through all that we have and continue to do. After trying for a year we tried Clomid and got pregnant. Unfortunately, we miscarried a week later. Through an infertility specialist we went through 3 unsuccessful rounds of IUI with injectable medications. We got pregnant again naturally; this time miscarried a few days later. We have gone through 4 IVF retrievals since then with 10 embryo transfers. 2 Frozen Embryo Transfer cycles we were lucky enough to get pregnant with twins each time, sadly both of those pregnancies ended shortly after. Our last pregnancy we conceived naturally. This was the best looking one yet! Levels rose wonderfully and we were filled with so much hope. When I went for my 1^st ultrasound the nurse said after a few minutes of looking, I’m sorry, there’s nothing here. I didn’t understand how that was possible. After waiting as long as we could it was determined to be ectopic, or a pregnancy of unknown location and I was given shots to end it. All this heart break but we are still Fighting for our Family!

The Zillers– We have been on this journey for 5 years now, which has consisted of extensive testing, surgeries and procedures including blood work, hysterosalpingogram, two D & Cs, hysteroscopy, laparoscopy and sperm count tests. In November of 2015 through the recommendation of our fertility physician we attempted an unsuccessful IUI. During the testing for the IUI we learned that Jessica has a low AMH level. A Low AMH level could mean our time is running out as her egg quantity may be very low. The current recommendation by our physician is to attempt IVF. IVF is very expensive and without fertility coverage the last 5 years have drained us. It’s hard to sit idly by knowing that every month that passes while we save for IVF, could be bring us closer to a sad end of our journey.

The Wallaces – We have been trying to conceive for 5 years. In our years of trying to conceive we have seen 4 fertility specialists and undergone numerous tests. Every Doctor gives us different diagnoses which can be frustrating when trying to identify a plan. Through the various doctors it was determined that Amanda does not ovulate regularly, at one point had a blocked fallopian tube and other recently diagnosed medical conditions that make it difficult to conceive. After testing, Amanda was placed on Metformin and did rounds of Letrozole, which did assist with ovulation but left us with negative pregnancy tests. One doctor recommended IUI treatment. With all the medications, lab and procedure cost it was just not a financial option at the time. We’re hoping that with savings and some help from fundraising that we will be able to proceed with the treatment and achieve our dream of having our own little miracle.

Infertility and Him: Staying Mobile

Posted on June 14, 2016 by admin

June 13 – June 19 is Men’s Health Week. As a week that highlights the importance of men taking care of their health, we are focusing on male perspectives and infertility. Today, we share some of Kevin’s perspectives. Last week, Kevin shared this short piece with RESOLVE: The National Infertility Association. In this post, he talks a bit about how he has turned to running with his dog, Mason, as a routine that has not only helped him deal with infertility but has helped him take healthier steps towards his future. We invite you to read Kevin’s short story and remind you that if you will be in the San Francisco area this week, to join us, on Thursday June 16 from 7-9:00pm at The Turek Clinic for our capstone Men’s Health event. The event is free and you can register here: http://bit.ly/MHMRegArtSF

Kevin, with his wife, Maria, and their two dogs: Gia (spaniel) and Mason (black lab). Stella (their first puppy) is not pictured as she passed away in January 2016.

As my wife and I delved into the IF journey about 5 years ago, one element that came to the forefront, and still remains, is health. Suddenly, we were critical of so many of our lifestyle choices: what we ate, how often we exercised…were we not respecting our bodies?

Understandably, I think it is easy to get obsessive when it comes to IF, but that is not the solution either. A healthy balance is what is needed. One avenue I explored, and still require in my routine, is running. I run off of my stress. When we first encountered IF, I just started running. I ran two half marathons and a full marathon in one year’s time…it might have been obsessive.

But it worked. I still use it for my mental & physical strength, and for other topics too: when we put our first canine, Stella, down. She was very symbolic of what our first child meant to me and I know very few will ever understand that truth. But I ran that off too, cherishing her memory in the miles I run, with her close friend and my canine boy, Mason.

Running has evolved to other hobbies, including woodworking and renovating a garage to living space since September 2015, when we purchased land to serve as a legacy. And I am in the process of finalizing the design of an art piece for The Art of IF.

When we began our support group search, in a conservative city for that matter, we found the existing groups to be more exclusive, and sometimes not even including men! We knew a group that included all IF backgrounds would be a necessity beyond our needs, but also benefit others struggling to find support. This is how we realized we had to start our own RESOLVE support group in Michigan, and we met good friends that we are still close with today, even outside the group.

The takeaway: I have always found it crucial to stay mobile in life; it will carry you through life’s hardest times and make you invaluable to those in need around you.

Kevin’s Recommended Links:

June is Men’s Health Month: Fertility is Not Just a Woman’s Issue

Posted on June 1, 2016 by admin

Today we join Men’s Health Network and kick off Men’s Health Month. The goal of this health advocacy campaign is to educate the public about the many preventable health problems that affect men and boys, and empower them and their loved ones to move towards a healthier, happier life.

The ART of Infertility views this campaign as a reminder that behind every baby is a male. Men’s health is a family issue. It affects wives, mothers, daughters, and sisters. Thinking about #MensHealth and encouraging our male partners to see a fertility specialist can often be a step towards building one’s family.

Knowing this, today feature a guest blog post from Sean at Men’s Health Network who talks about the importance of having healthy dads. And remember to join us June 16 from 7:00-9:00 for an interactive art exhibit featuring stories and art about Men’s Health and their fertility at The Turek Clinic.

Building healthy men means more healthy families

By Sean McCalley, Men’s Health Network

1994 was a rough year.

John Candy passed away. Someone attacked Nancy Kerrigan at the Olympics. Major League Baseball went on strike. The album of the year was the soundtrack to The Bodyguard.

It wasn’t all bad, though. The show Friends and the band Weezer debuted. So did the movie Forrest Gump. Jack Nicholson even used a golf club to show a car who’s boss.

More importantly, Congress also passed a bill declaring “National Men’s Health Week” to coincide with Father’s Day and raise awareness for a global crisis. President Bill Clinton signed it into law; now, it’s an annual call to action for people around the world as part of Men’s Health Month.

Men die five years younger than women, on average. They also die at higher rates for nine of the top ten causes of death in the United States. That includes heart disease, cancer, suicide, accidents, etc. Men simply have a harder time staying healthy.

Part of the problem is cultural. We men are fighters who laugh in the face of danger. It’s partly genetic, as some racial demographics have a higher risk for certain diseases. Sometimes, it’s personal; like getting so mad you do something you might regret later.

Whatever the reason, men need all the help we can get to have long, healthy lives – even if we don’t want to admit it. That’s why Men’s Health Month is so important, and why it’s still going strong after 22 years. The campaign is centered on education and outreach than spans from the community level to Congress.

Governors and mayors issue proclamations for Men’s Health Week in their jurisdictions to promote and highlight Fathers Day. Private businesses host health screenings, as do government agencies, churches, fraternities, and many other organizations. People share their personal stories on social media.

The hope is to persuade us stubborn men to take at least one second (but preferably a month) to look at our health situation, make inventory, and figure out how to make it better. Sometimes men just decide to make a family member happy and finally see a doctor for that mole; for others, it’s a question of maturity or finding financial flexibility.

Whatever the reason, the goal is to make us better men. Luckily, it’s worth the effort.

Here are some tips on how we can make this Men’s Health Month the best one yet:

Fathers can set an example for their kids by making an appointment for a checkup. Healthy men make healthy families.
Let someone know that asking for help is a sign of strength, not weakness or lack of ability. Men are just as likely as women to suffer from a mental health issue; however, they’re less likely to be diagnosed, and four times more likely to commit suicide.
In the public health realm, make sure the connection is clear between a man’s health and the health of his family and community. Most people intuitively understand the role mothers play in supporting their children’s health. Too few however, understand that having a healthy father is just as important.
Participate in the Men’s Health Month #ShowUsYourBlue day on Friday, June 17. Send in pictures of you and your friends wearing blue and post them on social media using #ShowUsYourBlue.

Oh the Places We Go (Like Houston, TX): Reflections on the Relatability of Art, Poetry & Medicine

Posted on April 13, 2016 by admin

Lots of our followers and contributors to this project have a personal connection to the ART of IF. Many of you have either faced your own infertility journey, suffered from infant loss and/or even perhaps miscarriage. We love sharing pieces of art with the vibrant infertility community that exists in the world. Yet, our mission at ART of Infertility is also very much about expanding audiences – beyond the infertility community – to raise awareness and understanding about infertility, infant loss and miscarriage to a more general public.

Art workshops, we find, are an accessible, low-stakes activity that can help facilitate conversations about these topics of loss with others who may have little or no experience with the topic. Our event in Houston, TX last week is one such example of how we use the project to raise general awareness about the reflective power of making art with medical objects.

We made connections between art, poetry and medicine more apparent by participating in a Feminist Action Hour hosted at the annual College Composition & Communication Conference. This conference attracts a wide array of professors and graduate students teaching and researching writing at the collegiate level. For many of these attendees, their research and teaching interests pertain to social justice and interdisciplinary issues – such as communication practices between physicians and patients, gendered communicative experiences of medicine, and even tensions of being a mother/father while working in the academy.

Participants and materials at the Feminist Action Hour workshop in Houston, TX.

Given these diverse interests, the Feminist Action Hour hosts pedagogical workshops to create space for engaging and teaching about these important topics with our students and our colleagues. Examples from last year can be found here: http://cwshrc.org/newwork2015/

As a Writing and Rhetoric graduate student, Maria Novotny’s (project partner with the ART of Infertility) research examines the ways in which infertile men and women make meaning and share this meaning making through art and writing. Given this, Maria invited the ART of Infertility to participate in the workshop by making pieces of blackout poetry with medical consent forms.

Maria instructing participants and answering questions at the blackout poetry workshop in Houston, TX.

Why medical consent forms and why blackout poetry?

This workshop was inspired by the artwork of Jo C., one of our ART of Infertility participants. Jo created this beautiful piece of black out poetry, titled My Consent which she gave to us to share through our permanent collection. To learn more about the piece, you can read about it on Jo’s blog.

My Consent by Jo C.

Medical consent forms and treatment procedures serve as central technical documents, frequently studied as genres in professional and technical writing. Rhetorically these forms reinforce depersonalized medical practices and the greater public’s perceived objectivism of medicine/science.

Medical and feminist rhetoricians have increasingly called for shifting the object of study – beyond “how health and medical texts get produced” to inquiries examining “what embodied users bring to these encounters” as health artifacts (Scott, 2014; Bellwoar, 2012). This workshop serves as pedagogical moment attending to the embodied interactions between medical documents and the user/consumer of these documents.

What happened?

During the workshop participants were invited to select a consent form and a stencil. Consent form options included: a sperm donation form, a fertility treatment form, and a mental health form. Stencils included: a penis, a uterus, and a brain.

The ART of Infertility’s objective was to present the “trifecta” of infertility: mental health, men’s health and female health.

We then spent 15 minutes with groups making pieces of poetry. Many who participated described the activity as “meditative.” Some wanted to play with the idea of one consent form for one stencil – so they incorporated both a penis and uterus within a mental health consent form.

“signs, process, normal, mass. abnormal, expected, normal, normal, normal, not perfect, normal, abnormal, selection, best, abnormally, accident, prevent”

“attempt, understand, risk, arise, could be born, might also produce, agree, support, maintain, understand, Birth”

Special protections, conversation, medical record. Diagnosis, prognosis, release, release. Disclosure, all information. Health Care.

art-of-infertility-black-out-poetry-penis

“special protections, documenting or analyzing, start, the, subject, allows, the patient, disclosure, invalidate, authorization, Address”

The workshop was well-received and allowed the ART of Infertility to talk about issues of infertility and loss to those who may not necessarily recognize the physical and mental weight such a diagnosis has on the body.

If you would like the ART of Infertility to host a blackout poetry workshop (or another art/writing workshop), you can contact us at: info@artofinfertility.org

2015 Year in Review

Posted on January 26, 2016 by admin

In January of 2014, I was gearing up for my final frozen embryo transfer and curating ART of Infertility’s first exhibit at Ella Sharp Museum in my hometown of Jackson, MI. A month later, my reproductive endocrinologist transferred a gorgeous, grade 5AA blastocyst into my uterus. Unfortunately, it didn’t implant and our final attempt at a pregnancy, at least one using our own biology, was unsuccessful.

At a time when I wanted to curl up on my couch and ignore the world outside my front door, I was forced to finish interviews, write exhibit labels, and coordinate artists dropping off artwork. I was both resentful and relieved to have something to do and had no idea then that it was just the start of a project that would bring so many amazing people into my life and save me time and again.

2015 was an amazing year for ART of Infertility. We wrapped up a large scale exhibit in Michigan in January and did 8 pop-up art exhibits across the country. We held 7 art and 3 writing workshops and presented at 3 national academic conferences. Events were held in Michigan, Iowa, New Jersey, California, Arizona, Illinois, and the District of Columbia.

Creating art at our event at Busboys and Poets in Washington, D.C. in May.

The ART of Infertility blog was launched during National Infertility Awareness Week and Maria and I have used it to share our own reflections on infertility along with stories and artwork from the project. We also welcomed 16 guest bloggers.

We conducted 39 interviews of 45 people, lobbied for infertility legislation during Advocacy Day on Capitol Hill, collaborated with Professional Writing students at Michigan State University, and hired our first intern!

Our team of Michigan delegates at Advocacy Day 2015. Left to right, Elizabeth’s mother, Judy, Elizabeth, Maria, and Maria’s husband, Kevin.

35 new artists participated in the project, contributing 94 pieces of artwork, and we now have 122 pieces of art in our permanent collection.

The Smallest Things by Leanne Schuetz. First displayed at our pop-up in Arizona, this piece is now part of our permanent collection.

We are incredibly grateful for those of you who have shared your stories through interviews and artwork and to our many volunteers and sponsors. The project would be impossible without you.

Infertility Objects by Lauree Schloss.

This year is already shaping up to be every bit as fulfilling and exciting. We have many possible projects and collaborations in the works but here are some of the items that are definitely on our calendar for 2016.

We’re working this month to digitize the art in our collection, making it more accessible to the public. We’re also getting our paperwork around and officially filing for our 501©(3) non-profit status. Next month, we’re teaming up with the University of Michigan Center for Reproductive Medicine, Author Robin Silbergleid, and the Ann Arbor District Library by holding a book reading and art and writing workshop.

We’ll be in Houston in early April to present an art workshop at an academic conference and collecting oral histories for the project while there. Of course, we will have something special planned for National Infertility Awareness Week. We are working on our schedule and hope to have an exciting line-up to share soon.

Our event in Calabasas, CA during National Infertility Awareness Week 2015. Photo by Chrystal Starr Photography.

On May 11, we’ll once again be on Capitol Hill for Advocacy Day with RESOLVE: The National Infertility Association and, in October, we’ll travel to Salt Lake City for the American Society for Reproductive Medicine’s Annual Conference and events with the Utah Infertility Resource Center.

Maria and I are excited to see what the third full year of the project brings and hope you’ll join us for the journey. We’d love to share your story through the project via your artwork or an interview. If you are interested in sharing your story, or in hosting an ART of IF exhibit or workshop in your community, please contact us. We’d love to work with you!

-Elizabeth

ART of IF

The official blog of the traveling art exhibit and oral history project, ART of Infertility.

Category Archives: infertility events

Group works to educate its community and raise funds for infertility treatment.

Infertility and Him: Staying Mobile

June is Men’s Health Month: Fertility is Not Just a Woman’s Issue

Oh the Places We Go (Like Houston, TX): Reflections on the Relatability of Art, Poetry & Medicine

2015 Year in Review