The ART of Infertility – 2016 Year in Review

Men's Health Month Pop-Up Exhibit at The Turek Clinic, San Francisco

Men’s Health Month Pop-Up Exhibit at The Turek Clinic, San Francisco

A Holiday Thank You

Throughout this year, you supported The ART of Infertility. Perhaps you sponsored an art workshop, invited us to speak at an event, or attended an art exhibition. Whatever the form of your support, we thank you.

We have come a long way since the project began in 2014. Without your collaboration, The ART of Infertility would not be the success that it is today. We are honored to count you as s supporter of the project. As we move into 2017, please know that your desire to raise infertility awareness inspires our work.

Becoming a 501(c)(3) Non-Profit

To support the project’s growth, we are becoming a non-profit organization. We filed our articles of incorporation in June and are working with our attorney to wrap up the rest of our paperwork before the year’s end. We are excited about our soon-to-be non-profit status and invite you to consider The ART of Infertility in your end-of-year donations. 

Your financial support directly impacts the project. It helps us cover storage fees for the collected artwork, transcription of oral histories, and also supplements art workshop supplies. We welcome donations of in-kind services as well. You can make a donation to the ART of IF via our secure Square checkout.

New Artwork

A panel from Infertility is the Worst by Zechmeister-Smith

A panel from Infertility is the Worst by Zechmeister-Smith

We added 17 new pieces of artwork from 4 artists to our permanent collection in 2016. Have artwork you’d like exhibited? Learn how here! Included among these works is the series Infertility is the Worst by Kelly Zechmeister-Smith. Kelly created this piece using micron pen and watercolor paint and says, “This work began with an inexplicable creative urgency to represent my layered feelings surrounding my own unexplained infertility (UI)–a maddening diagnosis.  Creating small, cartoonish self portraits highlighting my daily experiences as a childless artist and teacher quickly became a therapeutic outlet for me.  My hope is that the viewer finds these pieces a playful yet raw glimpse into the life of someone struggling with UI.”

2016 Highlights

Joining Forces for Men’s Health

In June, Men’s Health Month (MHM), we teamed up with The Turek Clinic’s San Francisco office and Men’s Health Network to raise awareness about the unique challenges men face when dealing with infertility, as well as other barriers to men’s health care. We displayed artwork and stories from the project’s collection and attendees were invited to visit make and take art stations. Plans are underway for a MHM event in Los Angeles for 2017. Contact us if you’re interested in collaborating!  View event photos here.

Presenting at ASRM

In October, we visited Utah (one of two new states this year, the other Texas) to present the talk ART of Infertility: Curating Patient Centered Perspectives Via an Artifact Oral History Methodology at the American Society for Reproductive Medicine’sAnnual Scientific Congress. We were excited to be both first time attendees and first time presenters.  It was fantastic to see members of our infertility family from around the nation and make new connections as we attended sessions and visited the expo hall.

ART of IF goes International

In November, the The ART of Infertility went international when we received an invitation to do a pop-up art exhibit for a staff education day for Merck KGaA Darmstadt, Germany (known as EMD Serono in the states). The event, held in Coinsins, Switzerland, also included a presentation during which we shared our own stories and stories from the oral history archive. We also participated in a Q&A for the medical deliverables team, which later continued with lively discussion around the water cooler.

Visit our website to learn about the other places we visited, exhibited, held workshops, and collected stories in 2016.

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Presentations, Publications, and Podcasts

Cultural Rhetorics Conference, Michigan State University

Cultural Rhetorics Conference, Michigan State University

– 7  Presentations

– 3 Forthcoming Publications

– 2 Podcasts
      Beat Infertility, January
     Imagine Otherwise, August

Looking Ahead to 2017 and Beyond

– We will continue raising infertility awareness and education with several events across the country that are in the planning stages. Details will soon be announced on our website. 

– We will continue our mission to collect and distribute diverse stories of infertility and the stories of those who use assisted reproductive technology to build their families.

– Due to the popularity of the ART of IF, we are also working on plans for 2018! However, there are still plenty of opportunities to bring the ART of IF to your city for an exhibit, workshop, presentation, or to collect oral histories in both 2017 and 2018. Please reach out to us if you’d like more information.

We look forward to your continued support of the project and encourage you to follow our work on our blog and The ART of Infertility’s social media pages. Wishing you much success in 2017 as we all work to advocate on the behalf of millions impacted by infertility. 

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With gratitude, 
 
Maria and Elizabeth
 

Interested in sharing your story through The ART of Infertility? Check our website to learn how to participate! 

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A Man’s IF Holiday Perspective: It’s All Relative

Kevin shares his thoughts on dealing with infertility and the holidays. As a guy, he finds solace in dealing with infertility through his work – whether that is intellectual or hands-on. Read more about the inspiration Kevin took from deer hunting this past year.

This November, I went deer hunting for the first time. While sitting in the woods, patiently waiting for a deer to walk past my blind, I began to read Einstein’s biography.  The book discusses in detail Einstein’s two theories of relativity – general and special. His special theory of relativity is what challenged Newton’s long held traditional concept of absolute space and time. Through a series of mathematical equations and experiments, Einstein disproved Newton and instead demonstrated that space and time were relative to the observer – not an absolute concept. For example, someone moving inside of a train will have a different experience than someone standing on the side of the road watching the train go by.

Kevin, sitting in his blind, deer hunting.

Kevin, sitting in his blind, deer hunting.

Reading this in the woods, I couldn’t help but see how much of this theory also relates the experience of infertility.  My wife and I have were diagnosed with infertility 5 years ago. That moment was life altering and brought upon itself a host of questions we never imagined we would have to think about. Today, we often have to remind ourselves that there is no absolute right interpretation or method of dealing with infertility. Just like Einstein’s theory: infertility is relative to the observer. Every year around the holidays, this topic comes up for us as a couple. Often we may be experiencing things differently, and we may have different ways or methods to make the holidays work in our minds. Let’s face it, this holiday is all about the birth of a child and it’s a tough one for the infertility community.

For me, and I would imagine many other men out there, talking explicitly about infertility is not really our way of coping and channeling our energy into something positive. Personally, over this year I have focused a lot on work and have been afforded some unique experiences to travel and live my passion of being a medical physicist. I have also poured myself into renovating our house that we bought as a symbol of our love and what we share together, even if we never have children of our own. This is extremely important to me.

A garage entrance that Kevin remodeled into a living room.

A garage entrance that Kevin remodeled into a living room.

I do not think we should despair over having different ways to make these holidays doable, but we should rejoice in that we share in this experience together. There is somewhat of a beauty in thinking about Einstein’s theory and that there is no absolute correct way to interpret and cope with infertility. However, it is comforting to know that a common thread is that the infertility community all shares this experience together. I hope everyone else out there can use this as a bit of consolation and uplift as we head move into a new year.

Five Tips for Holiday Self Care

Embarking on the next couple of weeks of holiday celebrations, we offer you five tips that we find ourselves practicing as a method of surviving the celebration of a miraculous conception while dealing with infertility.

#5 Send a holiday card. Really! Tired of getting pictures of new babies and growing families in the mail? Send your own card! Remind others that you are a family! Maria does this frequently sending cards featuring herself, husband, and two puppies. For her, this is a form of infertility advocacy.christmasphoto_2016

#4 Treat Yo Self! Take time out and pamper yourself. Get a massage. Get your nails done. Make yourself feel good!

#3 Talk with your partner and ask, “What are we going to do to make the holiday special for us?” Maria recommends this especially as much of the holidays revolve around the excitement of nieces and nephews waiting for Santa to come. Maria tries to go out for a Christmas Eve brunch with her husband to block out a set time for just the two of them.

#2 Remember it’s okay to just say “no”. Not everything is going to be something that you are going to want to attend. Just like baby a baby shower, remember you don’t need to attend every holiday party or every family event. Sometimes you just need to say no. And that’s okay! Elizabeth said no to her extended family Christmas party this year and spent time with child free friends instead.

The lone decoration at Elizabeth’s house, which wasn’t put out until 3 days before Christmas.

#1 Try to step back and enjoy the simple things. To say infertility is complicated is an understatement. Balancing infertility with the holidays can sometimes increase anxieties. We suggest taking a night and escaping. Make a fire, turn on some holiday tree lights (or don’t if you’re on a decorating strike like Elizabeth), cozy-up with a cup of tea, blanket, and a good book to escape. Sometimes taking a moment to remove yourself from it all allows you to better process and handle the ups and downs that will no doubt come with your infertility diagnosis.

We hope some of the suggestions we have implemented over the years will help you navigate the holidays and new year. Most of all, we want you to know that you are not alone.

Wishing you peace this holiday season,

Elizabeth and Maria

The Holiday Blues

 

This short reflection is a few years old. I wrote it after being recently diagnosed. The holiday season was fast approaching at this time, creating a lot of anxiety.  Re-reading this reflection, I am quickly transported to a place of deep pain. The reflection seems like a distant memory, yet, also hauntingly familiar. Many of the feelings and thoughts are still there. The only difference is that they appear less frequently and not in the same velocity as they did when I first wrote this reflection. Today, I wonder, when did I stop fighting my infertility and begin to embrace it? And why did I choose surviving infertility over fighting for a family? – Maria

The Holiday Blues

The holidays have always been special to my husband and I. This is when we first met. When we first started dating. When we got engaged. When we told our families we were getting married. When we bought our first house. When we got our first puppy.

An image of our first puppy, Stella. We picked her up from the shelter the on New Year's Eve. She was symbolic of a new year, new life.

An image of our first puppy, Stella. We picked her up from the shelter on New Year’s Eve in 2010. She was symbolic of a new year, new life.

Lately though, we’ve been needing to rely on those memories in order to escape feeling the holiday blues. Now, as we find ourselves in this new place, this new understanding of what it means to be a married childless couple, we have needed to question what this means.

This year we decided to volunteer for Thanksgiving. To visit with the elderly. We thought this to be a great idea as it avoids feeling the constant reminder of this childless lack. And by volunteering we felt a great bond with Bob, Mary, and Ethel. All three did not have a family to visit them. They were very much on their own. Feeling many of the same emotions we felt. Not sadness, not loneliness. Just acceptance of this is how life was to be. Finding meaning and special joy in little things. Little things like having the café at the nursing home open and simply visiting with those who silently felt the same acceptance towards life.

But Christmas and Thanksgiving are two very different holidays. Thanksgiving is reflective and about the food and blessings that you have. Christmas is projective. It is very much about “another year.” And more often than not it is about children. Baby Jesus and manger scenes. Promoting a redemptive and celebratory message about the power of the baby.

It is also about kids and the “magical joy” of Christmas. Kids waking up Christmas morning and running to the tree. Screaming at the excitement at finding an Xbox or Easy Bake Oven – but more often simply screaming because Santa arrived and provided.

This has become clear to us over the years that we’ve been married. Each year, it seems harder for us to embrace the spirit of the holidays. We know this and often comment on it. “What are we going to do to make the holiday’s special for us?” we ask each other.

We come up with different ideas to make it special. Often times it is simply going for a drive to see the lights and reliving the memories of us doing this when we were younger, before we were married – when we looked to the future of family with hope and excitement.

Now though, it is more common than not to experience the holiday blues.

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While we still find it difficult to celebrate the holidays, we make sure to send out a holiday card each year. This card is from this year. We make a point to stress that while we may not have children, we are a family.

In fact, the puppy that we got around the holidays is no longer with us. Five years have past since I last wrote this reflection. Her passing reminds us of how we could have our own 5-year-old at this point in our life. Our own child eagerly waiting to find presents under the tree. Instead though we are still trying to make sense of it all. Still trying to find joy in the little, non-traditional family we made.

When I hear “Blue Christmas” by Elvis on the radio, I am transported to the moment I wrote this reflection. Sometimes it is nice to be reminded that while the holidays can be a time of joy, they can also heighten personal pains.

“A Map to Us” – Stephanie McGregor

Today’s guest blog post is from Stephanie McGregor, a Canadian teacher and artist. Read her story and how she is using her art to help her deal with infertility.

blogpost6 My name is Stephanie McGregor. I’m an artist/teacher and have been struggling with infertility for two and a half years now. Until several months ago, my husband I kept quiet with our struggles, until I did a blog post called “The Monkey in the Room”. You can follow this link if you’d like to read it:

http://www.stephaniemcgregor.ca/blog-montauk/2016/1/3/the-year-of-2016

I knew that I wanted to start a project that I could turn to whenever I feel sad about not yet having a baby.

I bought a very large, blank canvas and hung it up in the room that I hope will one day be a nursery. It sat, white and untouched for a while, until an intriguing thought began to unfold.

I could make a map!

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A piece of Stephanie’s art work.

As  I started sketching out places that are important to me, a little story started forming and it speaks of all the places that our “lost” child can find us.

At first I began painting our little cedar bungalow and my childhood home (which is actually next door!) I added depth with colour of the trees and wildlife wandering across the canvas. Then, the memories started to come trickling in. Like the way my three sisters and I would run after my dad as he mowed the lawn and the pool parties we once had. My childhood dog still scouts around, a protective light glowing.  Our lost pink paddle boat chugs down the river, leading to the cottage where we spent every summer. The more I continue to work on this painting, the more saturated with memories my “map” will become.

As I’m painting, I also think of my mom and dad’s struggles. They tried for seven years to have children. Eventually, they had in vitro fertilization, which was successful and they had three five pound baby girls (including me). My younger sister came 15 months later, an unexpected, wonderful surprise!

A McGregor family portrait

A McGregor family portrait

 

 

 

 

 

 

 

 

I cannot express how wonderful my childhood was and this is what I focus on as I’m painting. All I want is the chance to have a family of my own to create new memories with. I plead with my future child, saying that here there are:

Adventures unnamed

Creatures to befriend

Discoveries undiscovered

And possibilities to pretend….

 If only he/she could find us!

Some days I am feeling so overwhelmed with emotion that I aimlessly wander over the canvas, dabbing paint with no direction. What am I doing this for?

I’m sure anyone going through infertility can relate to some of these feelings.

Other days I feel hot anger and will brush an orange red sunset across the canvas. What is wrong with me?

 A lot of times, as if in meditation, I spread translucent layers of blue to form soft waves. I can accept this path I’m on. Then again, once in a blue moon, I feel hideous green envy. Why her and not me? I allow myself to paint without worry of ruining this piece.

Other times, I focus my attention to one small part of the map and then revel in the feeling of creating something beautiful. This feeling anchors me.

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Other days, I simply sink to floor, my worries weighing heavy and crowding my mind. It sometimes strikes me that this room is supposed to be a nursery, but it is filled with only paintings. I am hit again by fact that besides a paintbrush, my arms are empty.  The fact that I so badly want to make new memories with a family of my own and I don’t know when that will happen.  It’s been two and half years and how much longer do I have to go? Why does it feel so lonely? Does anyone really understand how I feel?

I am also struck by how this journey has changed me. I find that I’ve put myself at a distance from friends and family. I’m afraid to dream too big or wish too much.  Instead of bounding carefree down the road, I step cautiously, looking out for rain. I wonder where this road is going.

But then I glance up and I see what I am in the process of creating. This map is part of my story, one that I can share with my future child.  It really is beautiful. At the end of my story, I wrote to my little lost one:

I can’t map out a life for you that:

Leads you always the scenic route

Away from sadness and pain

I can’t promise you won’t have to walk

Through the dark forest even for a little while

 The very least I can do

Is make this Map to Us

And hope, wait, and dream

That it finds its way to you.

 So I stand up and keep on painting my map. I don’t know exactly where my road to becoming a mom is going yet, but I still have a lot of hope.

I have a few suggestions for anyone who is looking for a project to work on. Why not think of something big that will take a while for you to work on? You can plan out your idea and then whenever you feel like you just need to take your mind off of what you are going through, you can do a small part and not have to think about it very much.

I wish you well on your journey!

To read more about Stephanie’s story and to see more of her artwork, visit her website at; www.stephaniemcgregor.ca