Getting Swept Up in the Fertility Tornado

Today’s artwork is from Kristin Phasavath. We originally met Kristin at RESOLVE, the National Infertility Association’s, Southern California Walk of Hope in Long Beach in September of 2014 where we set up an appointment for her to be interviewed and photographed for the project. Kristin has a unique perspective because she was first a nurse at a fertility clinic and then, while working there, experienced secondary infertility and was a patient herself. Here, she shares her experience creating the oil painting, “Fertility Tornado”, which debuted at our pop-up exhibit in Calabasas during National Infertility Awareness Week in 2015 and has been traveling with us since. We’re preparing to send the painting back to Kristin and are grateful we’ve had so much time with it to share it with others. Below is a guest post that Kristin wrote for us and we originally shared in May of last year. Thanks for sharing your story with us, Kristin!

Elizabeth

Fertility Tornado

My inspiration for the fertility tornado came from my time as a fertility nurse and a fertility patient. When you are in the throws of anything fertility it feels like you are in a tornado, whether you are a patient or a nurse. As a fertility nurse there is so much to organize for each patient all day everyday. Appointments, procedures, schedules, medications, labs, forms, insurance, etc, etc, etc…the list goes on and on and on. As a patient you deal with a very similar list that encompasses every breath you take. It effects your health, marriage, intimacy, mental status, finances, schedule, family life, and this list goes on and on. There is not one corner of your life this fertility thing does not infiltrate. Keeping everything straight as a nurse or a patient is like a tornado.
fertility-tornado_web

Fertility Tornado by Kristin Phasavath. Oil on canvas.

I wanted to create a visual concept of what this fertility tornado looked like to me. Once I sat down to paint, it really just painted itself. I think that I had lived with this statement and vision for so long it just poured out in an instant once I put brush to canvas. The process was amazingly fast. I think that the initial painting took less than an hour. It had wanted to come out for so long. It was very cathartic to me and I felt lighter when I was done. Like I had ironically enough given birth. Once I made up my mind to actually start the painting it flowed very easily, like it was what I was meant to do. No challenges in my way. It just felt good to finally let all my feelings out. There was a moment that I did get a little choked up because it felt a little like the end of an era. A little finality involved.

Kristin with her oil painting, “Fertility Tornado,” and her project portrait at the ART of Infertility pop-up exhibit in Calabasas, CA on April 25, 2015.

I was so proud to be able to share my painting at The ART of IF exhibit. I’m certain that I am not alone in feeling the way I do about this world of fertility. I hope to connect with many of my fellow fertility comrades thru this work of art. I thank Elizabeth for giving me an opportunity to be interviewed & photographed. She really inspired me to share my story and create this painting. The work she is doing is very important and I hope it has a long life. I’m not sure if I will create any more paintings but you never know. There is so much inspiration in connecting with others that share a similar story that it might spark my creative fertility juice again.
~Kristin Phasavath
*Fertility Nurse
*Fertility Patient
*Fertility Artist

Infertility is…How I’ve Met Some of My Favorite People.

At the RESOLVE: The National Infertility Association Tri-State Walk of Hope last weekend in New Jersey, we brought out our “Infertility is…” cards again and asked those in attendance to share their thoughts. When I was looking through them this week, the first thing that popped into my head about my own experience with Infertility is how it’s brought so many amazing people into my life. We had a chance, after corresponding via phone and email with them over the past year or so, to finally meet some of those amazing people in person at the Walk.

infertility is robin and rosa

There are too many to count, and I don’t get to keep in touch with most as often as I would like. However, each of the people I have met along this journey mean so much to me. There are those who share their stories with the project, reminding me that I’m not alone in my journey.  There are late night exchanges of advice with support group friends via Facebook messenger and emails from people around the world sharing art they have created during their infertility journeys. There are the doctors and other infertility professionals who have opened their doors to us to learn more about the project and those sharing their time and talents with the ART of Infertility community by presenting art and writing workshops. I’ve found an amazing network of incredible people, passionate about their desires to build their families, and passionate about helping others do the same.

infertility is an inaccurate label for the journey

So, this week, I’m sharing some of the new cards from the walk with you and asking you, my infertility friends, to share with us what “Infertility is” to you. What makes the experience so hard? What are the silver linings? Is there anything surprising that has come out of your experience? One of my favorite, surprising, outcomes of the ART of Infertility project is having the opportunity to connect the friends I meet along the way to each other so they can build a bigger network of support.

infertility is exhausting

Is there anything else you feel you need extra help with or support for that we could help you with? Are there things you would like to see ART of Infertility offer that we don’t currently? We’d love to hear from you, our friends in infertility and art!

infertility is humling

Elizabeth

s/m/othering

We’re featuring artwork from the project’s permanent collection in this week’s blog post.  Marissa McClure has created this piece, s/m/othering, in which she has removed the babies, children, and reproductive organs from well known pieces of art. She then invites others to choose an image that speaks to them and share their reaction to the image by pasting it, along with their narrative, in a book.

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File Aug 18, 4 23 30 PM

We’ve been traveling with the book and it’s been in Iowa City, Los Angeles, Washington, D.C., and Northern California with us so far. We’re sharing some images and stories from the piece this post and you can look for us, and the book, at our upcoming events in New JerseyMichigan, California, Illinois, and Arizona where we’ll invite you to share your own story through Marissa’s piece, mini interviews and photo sessions, and some other fun interactive projects we have planned.

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File Aug 18, 4 27 23 PM

You can read Marissa’s complete paper on s/m/othering at this link. Thank you, Marissa, for sharing your art with us!

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Thoughts on Male Factor Infertility from Chas

Today’s blog post is from Chas. I had the opportunity to interview Chas and his wife, Audrey, for the project back in December. If you’ve seen our exhibit in person, you may be familiar with his reaction to being diagnosed with Male Factor Infertility. Thanks, Chas, for sharing your story with us!                                                                                          Elizabeth

 “We would have cute kids!”

That was the line I said to my wife while we were in college. Forward? Sure. Did I mean it? Yes. Did I know it would take 3 years and 7 IUI’s to finally have a child? Definitely not.

My wife and I wanted to do the things that we felt we had to do before we had kids. You know: get married, careers, buy a house, travel, etc. It wasn’t until my college roommates had their first child in May of 2012 that we sat down and said, “We want a child. We want to experience that kind of love.”

Flash forward 3-4 months of trying, we both felt something was wrong but due to our medical coverage we had to wait a full calendar year of trying to conceive before diagnostic tests could be run. In June of 2013 we were finally referred to our reproductive endocrinologist and the tests began. All of my wife’s tests came back with nothing wrong with her, but I was a different story.

DSC_5682s

Low motility and low sperm count. That is what my semen analysis (SA) read. I was angry. How could this happen? I have never done illegal drugs, I can count on one hand the times I had smoked a cigar, I workout, eat well, take care of my body, What the hell? Did I do my fair share of the college bar scene? Sure, but it’s not like I drank a fifth of Jack Daniels a night. This had to be wrong. Then the next SA three weeks later had the same results. I couldn’t wrap my head around it. Why me?

DSC_5470s

I was diagnosed with unexplained male factor infertility.  When I was diagnosed with male factor infertility I truly did go though the 5 stages of grief. At first I wanted more SA’s because I was a red-blooded American male and nothing could be wrong with me. Denial. Then when all 5 those SA’s came back the same I was angry at myself, and my body for failing me, with my anger directed towards anyone who crossed my path. I would snap at the littlest things and pick fights just to fight. The anger really stayed for a long time. After that came the bargaining: if I take these infertility vitamins and change my diet that should do the trick. It worked for other people it had to work for me. When the vitamins and diet change didn’t work the depression set in. This is when things got pretty bad. I was truly numb to the world. I disconnected from my wife. She would ask me a question about my day and I would give one-word answers. I couldn’t find the joy in the things I use to love doing. I didn’t want to be around anyone, I just wanted to stay home in the dark. After our 6thIUI failed during National Infertility Awareness Week 2014the acceptance finally started. My wife had posted something on a social media site that she didn’t know other people could see, outed if you will, our struggle to have a child to our friends and family. The cat was out of the bag so to speak.  After that only love and support followed from our friends and family. With that love and support we did a picture for NIAW and we also made a team for the Northern California Walk of Hope.

Chas_NIAW Having to watch my wife take pills and get injections probably was one of the worst parts of the whole IUI process.  The pills gave her hot flashes and I handled that pretty well I think. I always had something to cool her down. The injections were hard to watch. I know IVF injections are more extensive but watching her give herself Menopur injections sucked. Watching her do the pain dance, as we called it, always got to me, but the bruises afterwards would bring tears to my eyes. I had to helplessly stand by and watch as my wife had to go through this for something my body was failing to do.

The infertility community as a whole has been so amazing. My wife and I have met so many amazing people going through the challenges of infertility. I don’t think I have ever met that many people that truly pull for you to succeed in that capacity. There is such a kinship in the community that you really do have to experience it and cannot be qualified into words.

If putting my story out there can change one man’s mind for the better about Male Factor Infertility I would feel I accomplished my goal for this blog. Unfortunately, there really isn’t research and support out there for MFI. Why is it on rise? Chemical age? Maybe, but there is no concrete proof. This is especially true for unexplained MFI. There is no need to feel ashamed and disconnected from your partner no matter the diagnosis you are in this together.

Chas_Preg

Fertility Tornado

Today’s guest post is from Kristin Phasavath. I met Kristin at RESOLVE, the National Infertility Association’s, Southern California Walk of Hope in Long Beach last September where we set up an appointment for her to be interviewed and photographed for the project. Kristin has a unique perspective because she was first a nurse at a fertility clinic and then, while working there, experienced secondary infertility and was a patient herself. Here, she shares her experience creating the oil painting, “Fertility Tornado”, which debuted at our pop-up exhibit in Calabasas and will be exhibited in Washington, D.C. next week. Thanks for sharing your story with us, Kristin!

Elizabeth

Fertility Tornado

My inspiration for the fertility tornado came from my time as a fertility nurse and a fertility patient. When you are in the throws of anything fertility it feels like you are in a tornado, whether you are a patient or a nurse. As a fertility nurse there is so much to organize for each patient all day everyday. Appointments, procedures, schedules, medications, labs, forms, insurance, etc, etc, etc…the list goes on and on and on. As a patient you deal with a very similar list that encompasses every breath you take. It effects your health, marriage, intimacy, mental status, finances, schedule, family life, and this list goes on and on. There is not one corner of your life this fertility thing does not infiltrate. Keeping everything straight as a nurse or a patient is like a tornado.
I wanted to create a visual concept of what this fertility tornado looked like to me. Once I sat down to paint, it really just painted itself. I think that I had lived with this statement and vision for so long it just poured out in an instant once I put brush to canvas. The process was amazingly fast. I think that the initial painting took less than an hour. It had wanted to come out for so long. It was very cathartic to me and I felt lighter when I was done. Like I had ironically enough given birth. Once I made up my mind to actually start the painting it flowed very easily, like it was what I was meant to do. No challenges in my way. It just felt good to finally let all my feelings out. There was a moment that I did get a little choked up because it felt a little like the end of an era. A little finality involved.

Kristin with her oil painting, “Fertility Tornado,” and her project portrait at the ART of Infertility pop-up exhibit in Calabasas, CA on April 25, 2015.

I was so proud to be able to share my painting at The ART of IF exhibit. I’m certain that I am not alone in feeling the way I do about this world of fertility. I hope to connect with many of my fellow fertility comrades thru this work of art. I thank Elizabeth for giving me an opportunity to be interviewed & photographed. She really inspired me to share my story and create this painting. The work she is doing is very important and I hope it has a long life. I’m not sure if I will create any more paintings but you never know. There is so much inspiration in connecting with others that share a similar story that it might spark my creative fertility juice again.
~Kristin Phasavath
*Fertility Nurse
*Fertility Patient
*Fertility Artist

Introducing the ART of IF Blog

One year ago, I was just two months out from learning my final embryo transfer was unsuccessful. The reality of that hadn’t yet sunk in. My husband, Scott, and I had been trying to conceive for five years and had endured five rounds of Clomid with timed intercourse, 4 inter-uterine inseminations with hybrid cycles of both pills and injectable medications, and one IVF cycle that resulted in internal bleeding, ovarian torsion and emergency surgery in the middle of the night. There were other surgeries along the way too. Surgery to look for Endometriosis, surgery to remove polyps, and one to remove the remnants of my only pregnancy; the twins I miscarried after our first embryo transfer. Our treatment journey was over. I was both relieved and panicked.

The first pieces of art work I made in response to my infertility, created while recovering from surgery #1.

The first pieces of art work I made in response to my infertility, while recovering from surgery #1.

At that same time, the ART of Infertility’s first exhibit was just a few weeks in to its run at the Ella Sharp Museum in Jackson, MI. I didn’t set out to do more than one exhibit. I wanted a way to raise awareness in my community and figured that sharing the artwork I’d been creating as a way to cope with my infertility diagnosis, along with the artwork and stories of others, would be a way to do so. Working on that show was therapeutic for me and it was amazing to see how participating in the show was so helpful for others as well. It gave us a voice, helped our friends and family understand our disease, and expanded our community. I decided I couldn’t just stop at my hometown and took the show on the road.

The opening reception for our first exhibit, The ART of IF: Navigating the Journey of Infertility at the Ella Sharp Museum in Jackson, MI,

The opening reception for our first exhibit, The ART of IF: Navigating the Journey of Infertility at the Ella Sharp Museum in Jackson, MI. Photo by Sarah Gough

In May, I traveled to RESOLVE’s Advocacy Day to lobby on Capitol Hill for legislation to help improve the lives of those with infertility. While I was there, I met Maria Novotny, who is a fellow RESOLVE Peer-led Support Group host on the west side of the state in Grand Rapids. Maria was interested in the project and it wasn’t long before she was a part of the team. With Maria’s help and tremendous help from my parents, my husband, my acupuncturist extraordinaire, Krissy Clark Rock, and other amazing volunteers and supporters, I’ve collected over 50 interviews over the past year and had exhibits on display in three states. We’ve held art, writing and informational workshops and assisted people in building their families by connecting them to people and resources who can help them. We’ve also built an amazing network by putting men and women in touch with others with similar diagnoses and in similar situations so they don’t feel so alone in their journeys.

ad day

Kevin Jordan, Maria Novotny, Sarah Powell, and me at RESOLVE’s Advocacy Day, May 2014.

As much as we’ve been able to do in the past year, there’s so much more to be done. There are so many people who want to share their stories and, in an effort to help give a platform to those we can’t meet in person quite yet, we’re starting this blog. We’ll be sharing stories and artwork from the project and invite guest bloggers to share their own perspectives. As always, we invite you to share your stories through your artwork and writing, your interviews, and now, our blog.

Sorting exhibit labels in our Sacramento hotel room before the Northern California Walk of Hope.

Sorting exhibit labels in our Sacramento hotel room before the Northern California Walk of Hope.

Working on this project has been incredible. Hearing the stories of others and sharing mine has helped me process the grief of my infertility. I’ve met amazing individuals and families along the way and am constantly amazed and honored by the ways are willing to share their lives with me, and in turn with you. This journey is just beginning. I’m so very excited to see what the future holds.

On a hike with project participant, Bee, in San Rafael, CA.

On a hike with project participant, Bee, in San Rafael, CA.

Elizabeth