Our Misconception: Chris and Candace Wohl

Our Misconception: The Story of Candace and Chris Wohl
by Jalen Smith

Earlier this year we had the pleasure to sit down with The Wohl Family as they shared their story and long journey to parenthood through gestational surrogacy.

Candace and Chris are a married couple living in Virginia that has struggled to conceive. Candace underwent 5 IVF cycles between a 2 year period, after 6 failed IUIs.

“Each bead represents a shot,” Candace told ART of Infertility’s Maria Novotny, when showcasing a piece of her artwork. The process of having a baby has been a process hard physically, emotionally and financially for the family.

Chris and Candace chose to string a bead for each shot Candace endured.

Chris and Candace chose to string a bead for each shot Candace endured.

“We were judged and told by family and friends to not fundraise, that this issue should have been kept private, we were even told to just adopt.” said Chris. The couple’s story is a popular one within the infertility community and was featured on an episode of MTV’s “True Life” in 2013.  “It was such a seesaw of emotions, from hope to despair from hope to despair,” said Candace. “There was point where we wouldn’t let ourselves get our hopes up just to be let down again.” MTV did a good job of capturing and telling the emotional heartache involved with infertility. “It was hard for us to watch as we had to relive our last failed IVF.”

The Wohl family eventually found hope in surrogacy. In March 2013 the couple began to start the process to pursue other means of child birth. After finding a surrogate in June 2013 the couple then began the contract signing process and had to wait an additional six months for pregnancy insurance clearance. “The waiting was hard for us, the not knowing if it would work out this time.” In October 2013, they transferred their two remaining embryos to their surrogate.  The following month, the couple received the news that they were pregnant, the beta was positive.

Candace wanted to tell her husband the good news that they were pregnant in the best way possible. She shared with us the story of the dusty onesie. “After my first IUI, I was confident and I went out to buy this onesie and card to share with my husband that we were pregnant.” Similar, to those other vulnerable yet monumental moments in life like marriage, she wanted this moment to be special. She wanted it to last. After 6 failed IUIs, Chris had still not seen the onesie, not until that celebratory day in November 2013. “It was one of those things that I held onto, I couldn’t let it go, I’m glad I didn’t because I was fortunately still able to share it with him.”

“It brought it all home to me that she really has endured so much” said Chris after hearing and seeing the dusty onesie story for the first time. The fact that she had kept it for so many years and had taken so many “beads” was a telling story of their struggle for him.

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Chris and Candace with the dusty onesie.

“What people don’t understand is we were trying to adopt, there were a lot of people that didn’t agree with surrogacy when it first came out,” said Candace. “We realized early that we had to get tough skin.” To share their story of surrogacy was at first difficult, while the Wohl family can be considered well known members of the community now, the option to choose this route to start their family was troublesome for them.

“If you would have asked me 7 years ago that we would be doing this, I would have not believed you,” said Candace. At the time the couple was in full belief that they would be able to carry a baby to term but years of surgery and failed treatments denied these hopeful parents time and time again.

When the parents to be accepted surrogacy it did come with lots of doubts and concerns for the future. For Candace is was like watching a quarterback play football and she was watching from the sideline. “You hope they can break the tackles, you hope nothing gets in their way on the game winning drive but all you can do is cheer them along.” Candace said. It was a very vulnerable place for her to be, in one in which all she could do is watch and place her hopes for motherhood in the hands of someone else. Chris and Candace were in the room with the surrogate while she was giving birth. Candace held her leg while she pushed and Chris cut the umbilical cord. While their daughter’s birth certificate did not initially feature either of their names, they immediately bonded with her.

Many forget to mention the struggles infertility have on men or many feel the struggles of infertility are not a man’s right to feel bad. The couple briefly talked about this in their sit down with us. After all, it was his wife’s body. But Chris during his sit down with us shared his thoughts on the process. “I was the parent too” Chris said. “My gender is a strong yet vulnerable one, I could never know her full pain but I was there for her the entire ride.” Chris felt that taking a back seat was not an option for him.

Ultimately the couple’s fears of lack of emotional connectivity, lack of compassion from doctors and guilt were lost once their daughter was born in 2014. “All of the worries I had were lost once she was here, I never felt closer to anyone,” Candace stated.

The Wohl family fought a lot on their journey to parenthood, it was never easy, but what they want to do now is educate others. Educate hospitals, doctors and lawyers so that the next couple does not have the complications they did. “It all starts with education,” Candace closed.

To learn more about the Chris and Candace’s story read their blog at ourmisconception.com

The Compulsion to Create

Today we share a guest blog post from Susan Fuller. Susan has been a longtime surrogate and you can learn more about her journey on her website, Twitter or reading her book Successful Surrogacy: An Intended Parents’ Guide to a Rewarding Relationship With Their Surrogate Mother. Thanks for sharing your story Susan!

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I’ve always wondered if there’s something significant about my compulsion to send handmade gifts to the families I’ve carried babies for. And not just any handmade gifts, they have to be gifts that I’ve made myself. Like maybe there’s some kind of subconscious message I’m trying to convey –

“Hey – I created everything that is most precious to you – your child – and although that project has long since passed, look! I will still keep creating for you!”

The earliest memory I have of making something surrogacy-related is a handmade card for my first intended mother. I was mostly into paper arts at the time – card making and scrapbooking – because my kids were still very young and it was easy to manage in tiny stops and starts.

I accompanied my intended mother to her egg retrieval and wanted to give her a little something to mark the fact that our surrogacy experience was finally underway after a few months of stops and starts. I rubber stamped a card with a long row of flowers on tall stems, and added the phrase “lift your face to the sun” to it, hoping that she felt the same way I did about what we were about to undertake together – a joy so deep and penetrating that it felt like flowers in bloom under the blazing mid-August sky.

I made several other thing for her during my pregnancy with her twins, cards mostly, hoping that by acknowledging the significance of the events we shared together it would help her come around to they way I viewed the surrogacy – as something I wanted to share with her rather than do for her.

It never did work out that way.

And so after a sad and unfulfilling conclusion to that pregnancy and delivery, I set about trying to process my raw emotions in the only way I knew how – once again, by making things by hand. This time it was a scrapbook I poured myself into for months, showing the progression of the babies, inside and out, through monthly photos of my growing belly and detailed ultrasound shots. The challenge, of course, was to illustrate my difficult experience with authenticity while also not taking anything away from the birth of two innocent, beautiful baby girls.

Cover of the scrapbook.

Cover of the scrapbook.

I don’t think I ever achieved that balance. I know this because once I finished the scrapbook and I showed it to friends, the most common question I got was “Are you going to give this to the babies’ family?” which always felt like a punch to the gut. It was an unintended punch of course, but still, the question stung every time I got it. This big, beautiful, bursting-at-the binding scrapbook was all I had left to show for the surrogacy, and I was not about to give it away. Someone even had the nerve to suggest I make a duplicate book for the babies’ family.

Saying goodbye to the babies was tearful, not because I felt like I was losing them, but because of what I’d already lost with their parents. The babies I never wanted to keep. I did, however, want to keep them in my life through updates and periodic contact and visits, which I knew was never an option as I kissed them goodbye for the last time.

An image of the embryo transfer that Susan displayed in the scrapbook.

An image of the embryo transfer that Susan displayed in the scrapbook.

When I undertook my next surrogacy journey – the one I call my love story – I knew I’d met my match.

My intended mother Robyn was anything but crafty herself, but what she lacked in handmade skill she more than made up for in appreciation.

She marveled at each card I sent and gushed over the artistry – even the simplest of designs. For her, the thought and sentiment behind anything I made was deeply meaningful, and of course I found her appreciation to be addictive. The more I made for her, the more she gushed, and so the more I made.

Once I’d confirmed that I was in fact pregnant with her baby (we didn’t yet know that I was carrying twins), I asked the nurse to keep the results a secret for an extra day. That night I set about making a special gift for her that would announce to her that she was about to become a mother. Still into paper arts at the time, I used decorative paper, rubber stamps, clear plastic disks, and a metal jewelry form to fashion a bracelet for her that had our due date on it. I was proud of my work, of course, and she immediately dissolved into happy tears when I gave it to her. Mission accomplished.

What I didn’t bargain for, however, was a nine-month-long recurring repair job.

To say that she loved the bracelet is an understatement. She loved it so much in fact that she rarely took it off – only to shower, she said. She tried to move it out of the way every time she washed her hands, but more than once it ended up getting soaked, which weakened it. While my craftsmanship was fine enough for a souvenir gift, the bracelet was never meant for day-in, day-out wear. It was more of a decorative memento rather than a sturdy accessory meant to withstand daily use.

I told her this, but she would not be deterred. Despite me giving her my heartfelt permission to take it off from time to time, she refused. It was thoughtful and sweet, and most certainly gratifying to know how much the bracelet meant to her, and only slightly infuriating as well.

I made frequent repair jobs on her treasured bracelet – she’d tell me ahead of time what was wrong this time and I’d bring all the right supplies along with me to our doctor’s appointments or ultrasounds and fix it while we waited for our exam to start.

She wore the bracelet through the delivery of her twin boys and it was shortly after, probably in the recovery room at the hospital, that I implored her to please, please, for the love of all that is holy because I can’t fix this for you anymore, please take off the bracelet, and she finally did. Her babies now safely filled her arms and she no longer needed the bracelet wrapped around her wrist to feel close to them.

I had every intention of putting together a scrapbook about this surrogacy, just as I had done in my previous one. I had stacks of photos organized and ready – pictures of me showing off my belly every few weeks, carefully marked on the back with how far into the pregnancy I was. I had photos of Robyn and Chris, photos of our get togethers with my kids, photos with their family, and stacks of photos from the birth.

I had piles of pregnancy souvenirs as well – cards from flowers I’d received, napkins and decorations from Robyn’s baby showers that I’d attended, and more ultrasound pictures than I knew what to do with. I’d been collecting baby boy-themed scrapbooking supplies for months, stashing them away for after the delivery, when I could piece everything back together into an album that attempted to capture the love that we’d grown along with the babies.

But curiously, the album never happened.

Was it lack of time that prevented me from tackling it? Possibly, as I recall I was finishing my own kids’ first-year photo albums around that same time and maybe I was feeling a little burned out. But I don’t think that was really it.

The truth is that I really had no reason to make an elaborate memory album for myself because I knew that our first year together – the time we spent as a team, bringing the twin boys into the world – was not a finite journey as it had been in my first surrogacy. Instead, it was just the beginning of a shared lifetime together.

And I had no frayed nerves, no latent anger, no unresolved feelings of confusion and isolation once I’d delivered Robyn and Chris’s babies – in fact it was the contrary. They were constantly in touch with me, at first calling me every few days, then gradually tapering off, yet we still saw each other at least once a month for nearly a year. I would make the 2-hour drive to their house and spend the day with Robyn and the boys, holding them, feeding them, rocking them, until Chris would come home from work with dinner and we’d all eat together just like we did during the pregnancy.

This, the periodic and entirely natural inclusion in the everyday events of their lives, catching up month-to-month, watching the boys grow before my very eyes, was the true resolution to the pregnancy. The capstone was our lives moving forward and unfolding together, instead of the fixed memorial by way of scrapbooking the time our paths crossed. For in fact our paths did not cross, rather, they converged.

#startasking about Parenting after Infertility – Candace’s Story

Today, we’re taking a bit of a risk and giving you a news feed full of stories reflecting on the joys and struggles of parenting after infertility. We wouldn’t normally post so many stories in one day (that’s the risky part). However, when we interview people who have “resolved” their infertility, even if decades before, a theme that comes up time and time again is the long lasting effects of infertility. Having a child, whether through treatment or adoption, means becoming a parent. It’s not a cure for infertility. 

So, we’ve invited several parents after infertility to share their experiences with us today. First up, Candace Wohl of Our Misconception. Candace is an amazing infertility advocate and it was through her sharing her own story on MTV’s True Life, that I was able to really start grieving my own traumatic IVF procedure and subsequent miscarriage. I’ll forever be grateful to her for sharing and am honored to bring you more of her story through our first post of the day. This post does contain an image of a child.

Elizabeth

Parenting After Infertility 

by Candace Wohl

For National Infertility Awareness Week I thought I would expose a raw topic that some of us really do not talk about. We are even more ashamed to mention it. Somewhere tangled and twisted in the kudzu vines of our infertility, we hold it in. Funny how I am so open to talk about everything from my broken lady bits to reproductive injustice but this, THIS topic is hard.

For the first time, I had been asked to share my thoughts on something I am terrified to talk about. The ART of IF wanted to #StartAsking about parenting AFTER infertility. Not the beautiful bouncing baby part, but what people may not know.

It took 7 years before I became a mother through the gift of surrogacy.  I remember waking up at 12:22 am on my first Mother’s Day to the cry of my baby in tears, asking for “momma.” It was the first time I heard it and I felt like I had waited my whole life to hear that one single word. I sat in the rocker for hours that night sobbing tears of joy as I held her while she slept thanking the powers that be that brought us together.

The next day I felt guilty.

There is so much more to peel back and reveal about the aftershock of infertility that tends to happen to the 1 in 8 that finally become moms.  Many think once you get to the other side of the ever evasive Promised Land of Motherhood, that everything, the heartache, the desperation, the loneliness will vanish. When your miracle baby is placed in your arms all is washed clean and the curse is lifted like a passing dark cloud.  For me, I can say that some of this faded but it was still there.

Wohl-Family-0039We openly fundraised and shared our story. My infertility was no secret and our financial infertility was what stood in the way of us having a family.  Strangers, friends and family did everything imaginable to help us. The birth of our daughter was one of hope and beating odds and she was a headline baby. Shortly after our daughter was born, I started feeling an overwhelming sence of pressure. It was all internal, not once provoked by anyone. There was this irrational and totally self-imposed expectation to be the flawless Donna Reed example of motherhood. This is what I have wanted for so long right? I felt like everyone was watching every move I made from how I interact with her to what type of diapers she wore, things like choosing homemade baby food versus jarred, I even stressed over the type of cleaner I would use in the house.

There were so many people who wanted this for us and there are millions, (7.4) who want to be in our shoes.  Infertile guilt sets in. These thoughts play in my head daily:

How can I be frustrated at 3 am when I’m covered in vomit? Someone right now is praying for this.

My kid just pinched the living crap out of another kid at the park, the other mom probably thinks I do not discipline because she is an only child and I am a parent after infertility.  

I feel like a horrible mom for handing over our daughter on a bad day, as soon as my husband comes home from work so I can leave the house for an hour to decompress.

I wanted this so badly and I am failing everyone around me.

These thoughts, this great feeling of social pressure, although I know is self-induced is part of my infertility. I don’t quite fit in with the fertile moms at the playground because my perspective is different. I don’t always fit in with the women who are still working on their first set of double lines, because I do have a child now and I am afraid to share my joy because I was once there and understand the painful uncertainty. It’s a lonely feeling.

For those who know me, I am really positive person.  I’ll take a steamy pile of poo and figure out how to make it into a less-steamy, more gold-like poo-casso. That has not left me. But I am scarred both physically and mentally. The infertility PTSD is there, just repressed now that my whole world was changing. I am able to finally hit the play button on my future which I had felt had been on pause for so long. Still though, that song that was on repeat for so many years titled, “You can’t have a baby because something is wrong with you” still plays in my mind.  With that playing and a new song, “Don’t be anything less than 100% grateful and a perfect mom … this is what you prayed for” it can sometimes be tough to remember that, being human means not being perfect.  It means messing up every once in a while, listening to that voice that says, “Damn, I just washed those sheets.”  Being human means, I/we are capable of feeling all of these emotions, no matter how contradictory, at one time. I am glad ART of IF decided to #StartAsking about Parenting After Infertility, they exposed this other side of me that I thought it best to just hide under my bed of feels.   Although this isn’t the fairytale painting of a picture for this very broad topic of parenting after infertility, I know it is the painting I am supposed to be a part of and I wouldn’t change a single brush-stroke in it.

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