#startasking about Parenting after Infertility – Candace’s Story

Today, we’re taking a bit of a risk and giving you a news feed full of stories reflecting on the joys and struggles of parenting after infertility. We wouldn’t normally post so many stories in one day (that’s the risky part). However, when we interview people who have “resolved” their infertility, even if decades before, a theme that comes up time and time again is the long lasting effects of infertility. Having a child, whether through treatment or adoption, means becoming a parent. It’s not a cure for infertility. 

So, we’ve invited several parents after infertility to share their experiences with us today. First up, Candace Wohl of Our Misconception. Candace is an amazing infertility advocate and it was through her sharing her own story on MTV’s True Life, that I was able to really start grieving my own traumatic IVF procedure and subsequent miscarriage. I’ll forever be grateful to her for sharing and am honored to bring you more of her story through our first post of the day. This post does contain an image of a child.

Elizabeth

Parenting After Infertility 

by Candace Wohl

For National Infertility Awareness Week I thought I would expose a raw topic that some of us really do not talk about. We are even more ashamed to mention it. Somewhere tangled and twisted in the kudzu vines of our infertility, we hold it in. Funny how I am so open to talk about everything from my broken lady bits to reproductive injustice but this, THIS topic is hard.

For the first time, I had been asked to share my thoughts on something I am terrified to talk about. The ART of IF wanted to #StartAsking about parenting AFTER infertility. Not the beautiful bouncing baby part, but what people may not know.

It took 7 years before I became a mother through the gift of surrogacy.  I remember waking up at 12:22 am on my first Mother’s Day to the cry of my baby in tears, asking for “momma.” It was the first time I heard it and I felt like I had waited my whole life to hear that one single word. I sat in the rocker for hours that night sobbing tears of joy as I held her while she slept thanking the powers that be that brought us together.

The next day I felt guilty.

There is so much more to peel back and reveal about the aftershock of infertility that tends to happen to the 1 in 8 that finally become moms.  Many think once you get to the other side of the ever evasive Promised Land of Motherhood, that everything, the heartache, the desperation, the loneliness will vanish. When your miracle baby is placed in your arms all is washed clean and the curse is lifted like a passing dark cloud.  For me, I can say that some of this faded but it was still there.

Wohl-Family-0039We openly fundraised and shared our story. My infertility was no secret and our financial infertility was what stood in the way of us having a family.  Strangers, friends and family did everything imaginable to help us. The birth of our daughter was one of hope and beating odds and she was a headline baby. Shortly after our daughter was born, I started feeling an overwhelming sence of pressure. It was all internal, not once provoked by anyone. There was this irrational and totally self-imposed expectation to be the flawless Donna Reed example of motherhood. This is what I have wanted for so long right? I felt like everyone was watching every move I made from how I interact with her to what type of diapers she wore, things like choosing homemade baby food versus jarred, I even stressed over the type of cleaner I would use in the house.

There were so many people who wanted this for us and there are millions, (7.4) who want to be in our shoes.  Infertile guilt sets in. These thoughts play in my head daily:

How can I be frustrated at 3 am when I’m covered in vomit? Someone right now is praying for this.

My kid just pinched the living crap out of another kid at the park, the other mom probably thinks I do not discipline because she is an only child and I am a parent after infertility.  

I feel like a horrible mom for handing over our daughter on a bad day, as soon as my husband comes home from work so I can leave the house for an hour to decompress.

I wanted this so badly and I am failing everyone around me.

These thoughts, this great feeling of social pressure, although I know is self-induced is part of my infertility. I don’t quite fit in with the fertile moms at the playground because my perspective is different. I don’t always fit in with the women who are still working on their first set of double lines, because I do have a child now and I am afraid to share my joy because I was once there and understand the painful uncertainty. It’s a lonely feeling.

For those who know me, I am really positive person.  I’ll take a steamy pile of poo and figure out how to make it into a less-steamy, more gold-like poo-casso. That has not left me. But I am scarred both physically and mentally. The infertility PTSD is there, just repressed now that my whole world was changing. I am able to finally hit the play button on my future which I had felt had been on pause for so long. Still though, that song that was on repeat for so many years titled, “You can’t have a baby because something is wrong with you” still plays in my mind.  With that playing and a new song, “Don’t be anything less than 100% grateful and a perfect mom … this is what you prayed for” it can sometimes be tough to remember that, being human means not being perfect.  It means messing up every once in a while, listening to that voice that says, “Damn, I just washed those sheets.”  Being human means, I/we are capable of feeling all of these emotions, no matter how contradictory, at one time. I am glad ART of IF decided to #StartAsking about Parenting After Infertility, they exposed this other side of me that I thought it best to just hide under my bed of feels.   Although this isn’t the fairytale painting of a picture for this very broad topic of parenting after infertility, I know it is the painting I am supposed to be a part of and I wouldn’t change a single brush-stroke in it.

Candace-Wohl-Family-0051

 

 

Twenty-something and Dealing with Infertility

It’s a common misconception that infertility is only a problem for those who wait too long to try to conceive. Today, we’re sharing portions of just a few of the many stories we’ve collected from those diagnosed with the disease in their 20s. This post does contain an image of babies/parenting.

– Elizabeth

 Natalie and Stephan 

Natalie and Stephan focus their energy on putting puzzles together as a way to keep infertility off their minds.

Natalie and Stephan focus their energy on putting puzzles together as a way to keep infertility off their minds.

What are some of the best ways people supported you during your journey?  One of the most memorable ways people helped support us was fundraising for IVF. We set up one of those health donation websites and had a garage sale. Family members and friends had bake sales, everyone donated items for the garage sale, and even coworkers from family members helped out. It was really really humbling and brought us to tears once to see all the support we were getting.

What is the biggest lesson you learned throughout the journey?

Natalie: “The big ticket question. I think this is what I struggle most with. Figuring out why this is happening, or what I can learn from all of this. Patience definitely, though, I can’t say that is currently my strong suit these days. Over all, I think trying to ‘live in the moment,’ is a big take away. It’s so easy to get swept into ‘what’s next?’ or ‘what should I have done?’ that I lose the now.  I also think I’m gaining perseverance.

Stephan: “I think learning to be more pragmatic is the biggest takeaway from this journey.  I was so expectant with the initial IVF cycle because so much time and money was invested in it that I think we were both extremely disappointed when it wasn’t successful.  Learning to live within the facts and to not speculate has helped save me the disappointment.”

“I felt alone and ashamed to have to go through this at what was then 24.”

Audrey and Chas

Audrey-and-Chas

Audrey: “One of our biggest challenges was Chas’s anger for not being able to expand our family naturally. During an argument he told me that the reason he was really upset was because we have 2 empty rooms upstairs (we bought a 4 bedroom house in the hopes that they would be filled shortly after we purchased.) I felt alone and ashamed to have to go through this at what was then 24.”

Chas: “This infertility journey is mostly my fault. Not exactly my fault but I’m the one with something wrong. It’s kind of been hard to take. I’ve had my good moments and my bad moments. I’ve had moments where I’ve just blown up and said I can’t do this anymore. Big, huge blow outs. It’s hard when you feel like it’s your fault. I dealt with it on individual terms instead of more of a team effort. When I finally embraced that team effort, everything got a lot better. Although, I still have my days. You just have to go in as a team.”

“The advice I would give to someone who has just been diagnosed with infertility would be, realize it isn’t anyone’s fault. Also, don’t hold it in. Talk to your true friends and let them know that this isn’t something that can just be ‘relaxed’ away, or something you can ‘try harder’ at, this is a real medical problem.”

 

Megan and Jeremy

megan-and-jeremy

Megan: “Through my testing, we found I had a heart shaped uterus, hypothyroidism, PCOS tendencies(but no official change in the labs to get the official PCOS diagnosis), MTHFR, elevated NK cells and cytokines, and blood clotting tendencies/antiphospholipid antibody syndrome that impaired bloodflow to my ovaries and uterus.”

“My RE told me that if my labwork didn’t improve in my next cycle (my FSH just came back extremely elevated while we were planning our 3rd IVF cycle for 2 months later), he wouldn’t let me use my own eggs anymore.  At 28 years old, I took that news really hard.”

“Prior to the IF process, I was completely phobic of needles and there was no way I’d give myself shots.  With the exception of the PIO shots, I gave myself my shots and had IV infusions every 2-4 weeks to prevent my immune system from attacking the babies.  I’d sometimes have to be stuck up to 6 times a day depending on lab work and how easily they’d get the IV.  My desire to have a baby far surpassed my fears.  What other choice did I have? It all seemed small in comparison to not having children.”