Oh the Places We Go (Like Houston, TX): Reflections on the Relatability of Art, Poetry & Medicine

Lots of our followers and contributors to this project have a personal connection to the ART of IF. Many of you have either faced your own infertility journey, suffered from infant loss and/or even perhaps miscarriage. We love sharing pieces of art with the vibrant infertility community that exists in the world. Yet, our mission at ART of Infertility is also very much about expanding audiences – beyond the infertility community – to raise awareness and understanding about infertility, infant loss and miscarriage to a more general public.

Art workshops, we find, are an accessible, low-stakes activity that can help facilitate conversations about these topics of loss with others who may have little or no experience with the topic. Our event in Houston, TX last week is one such example of how we use the project to raise general awareness about the reflective power of making art with medical objects.

We made connections between art, poetry and medicine more apparent by participating in a Feminist Action Hour hosted at the annual College Composition & Communication Conference. This conference attracts a wide array of professors and graduate students teaching and researching writing at the collegiate level. For many of these attendees, their research and teaching interests pertain to social justice and interdisciplinary issues – such as communication practices between physicians and patients, gendered communicative experiences of medicine, and even tensions of being a mother/father while working in the academy.

infertility-black-out-poetry

Participants and materials at the Feminist Action Hour workshop in Houston, TX.

Given these diverse interests, the Feminist Action Hour hosts pedagogical workshops to create space for engaging and teaching about these important topics with our students and our colleagues. Examples from last year can be found here: http://cwshrc.org/newwork2015/ 

As a Writing and Rhetoric graduate student, Maria Novotny’s (project partner with the ART of Infertility) research examines the ways in which infertile men and women make meaning and share this meaning making through art and writing. Given this, Maria invited the ART of Infertility to participate in the workshop by making pieces of blackout poetry with medical consent forms.

infertility-art-workshop-01

Maria instructing participants and answering questions at the blackout poetry workshop in Houston, TX.

Why medical consent forms and why blackout poetry?

This workshop was inspired by the artwork of Jo C., one of our ART of Infertility participants. Jo created this beautiful piece of black out poetry, titled My Consent which she gave to us to share through our permanent collection. To learn more about the piece, you can read about it on Jo’s blog.

My Consent by Jo C.

My Consent by Jo C.

Medical consent forms and treatment procedures serve as central technical documents, frequently studied as genres in professional and technical writing. Rhetorically these forms reinforce depersonalized medical practices and the greater public’s perceived objectivism of medicine/science.

Medical and feminist rhetoricians have increasingly called for shifting the object of study – beyond “how health and medical texts get produced” to inquiries examining “what embodied users bring to these encounters” as health artifacts (Scott, 2014; Bellwoar, 2012). This workshop serves as pedagogical moment attending to the embodied interactions between medical documents and the user/consumer of these documents.

What happened?

During the workshop participants were invited to select a consent form and a stencil. Consent form options included: a sperm donation form, a fertility treatment form, and a mental health form. Stencils included: a penis, a uterus, and a brain.

The ART of Infertility’s objective was to present the “trifecta” of infertility: mental health, men’s health and female health.

We then spent 15 minutes with groups making pieces of poetry. Many who participated described the activity as “meditative.” Some wanted to play with the idea of one consent form for one stencil – so they incorporated both a penis and uterus within a mental health consent form.

IMG_1801

“signs, process, normal, mass. abnormal, expected, normal, normal, normal, not perfect, normal, abnormal, selection, best, abnormally, accident, prevent”

IMG_1802

“attempt, understand, risk, arise, could be born, might also produce, agree, support, maintain, understand, Birth”

art-of-if-blackout-poetry-brain

Special protections, conversation, medical record. Diagnosis, prognosis, release, release. Disclosure, all information. Health Care.

art-of-infertility-black-out-poetry-penis

“special protections, documenting or analyzing, start, the, subject, allows, the patient, disclosure, invalidate, authorization, Address”

 

 

 

The workshop was well-received and allowed the ART of Infertility to talk about issues of infertility and loss to those who may not necessarily recognize the physical and mental weight such a diagnosis has on the body.

If you would like the ART of Infertility to host a blackout poetry workshop (or another art/writing workshop), you can contact us at: info@artofinfertility.org

 

 

Infertility Reminders in the Mailbox – Reframing through Art and Writing

Elizabeth Walker

The mailbox can be a dangerous place for those dealing with infertility. Receiving a baby shower invitation or a baby announcement can feel like a knife in the heart, or a punch in the gut. At least you usually have some idea they are headed your way. It’s the other random pieces of baby, child, and mom mail that give me the most trouble. One in particular.

mailbox_webI don’t have a problem with catalogs from Justice and American Girl or coupons from Babies R Us. I have 6 nieces an 2 nephews so those are places I shop. Every now and then I get an offer for life insurance from Gerber or an invitation to enroll my daughter in National American Miss pageants. I’m guessing that I just fit the demographic for Gerber and I imagine some of the stores I frequent with my nieces are responsible for the pageant requests. However, my blood pressure rises each time I open the mailbox to find an issue of Working Mother magazine.

If it weren’t for infertility, I would be a working mother now. When I pictured parenthood, I always saw myself balancing my children and my career. Sure, it would be a challenge but I was up for it. I get great pleasure from my work and envisioned my dedication to my career aspirations as a great model for my children and their future success, just as I feel my parents’ dedication to and love for their work influenced me. Working Mother magazine would be right up my alley. I’d likely read it cover to cover and check out any bonus content online.

I’m not sure how I got on their list. Again, maybe I’m just the right demographic, or maybe they are affiliated with one of the retail outlets I spend my money at. Maybe I even inadvertently signed up for it at some point when I neglected to read the fine print when I signed up to receive email notices. I tried for awhile to get off their list. An email to the publishing company, a comment on their Facebook Page. When that didn’t work I just started giving them to my working mother friends.

working-mother

Recently, I decided to reframe my relationship with the magazine by using it to make black out poetry. If you’re not familiar with the technique, you take a page of text and do a quick scan of it, circling any words or phrases that jump out at you. Then, you go back through and can narrow those down, and use them to create a poem, blacking out the rest of the text around those words. It felt great to cut a page out of the magazine and circle words with my pencil, later using black paint to isolate the words that would form my poetry. I decided to cut the page out in the form of a woman holding a baby and then decoupaged it onto canvas. Here’s the final result.

Working-Non-Mother_web

Committed, worthy, successful, non-mother.

Shouldn’t have to win acceptance.

My own positive impact.

Maria and I will be leading a workshop on black out poetry hosted by the Coalition of Women Scholars in the History of Rhetoric and Composition (CWSHRC) at the 2016 Conference on College Composition and Communication (4C) in Houston, TX on April 6. If you’ll be attending, please consider coming to our session.

If you live in the Houston area and are interested in sharing your story with ART of Infertility via an interview while we are in town, email us at info@artofinfertility.org. We would love to hear from you.

Endometriosis through Poetry and Science

It’s Endometriosis Awareness Month. Endometriosis is one of several factors contributing to my own infertility. Today, we’re sharing info on endometriosis via poetry by Jenny Rough and through scientific facts from Endo Warriors

Elizabeth

In the Bathroom by Jenny Rough

What is Endometriosis?

(Sourced from endowarriorssupport.com)

Endometriosis is a painful condition that occurs when tissue similar to the endometrium (the lining of the uterus) implants itself outside of the uterus. This results in the formation of cysts. scarring, and inflammation; all of which can cause chronic pain, infertility, adhesions, and bladder and bowel complications.

Endometriosis is most commonly found on the exterior of the uterus, fallopian tubes, ovaries, bladder, and pelvic floor. Endometriosis can also occur — although It is less common — on the bowel and sciatic region. In extremely rare cases endometriosis can be found growing on the liver, diaphragm, lungs, brain and central nervous system.

Blausen_0349_Endometriosis

Source, Wikipedia.

Common Symptoms Include:

  • Painful menstrual cramps
  • Pain during ovulation
  • Irregular or heavy menses
  • Painful bowel movements during menstruation
  • Urinary pain during menses
  • Chronic pain lower back pain
  • Spotting or bleeding between menstrual periods
  • Changes in bowel habits during menstruation
  • Abdominal bloating
  • Chronic pelvic pain
  • Infertility or difficulty conceiving
  • Dyspareunia: Pain during and after intercourse

Women with endometriosis may also suffer from higher rates of allergies, yeast infections, chronic fatigue, fibromyalgiamullerian anomaliesinterstitial cystitisadenomyosisthyroid diseaseCrohn’s diseaselupus, multiple sclerosis, and other autoimmune diseases; as well as increased rates of ovarian cancer, non-Hodgkin’s lymphoma and brain cancer.