Pregnancy Loss Cards bring Healing

Infant and Pregnancy Loss Awareness Month is technically over but I hope that its effects are long lasting. During October, I had the opportunity to talk to Dr. Jessica Zucker and calligrapher, Anne Robin, creators of a new line of pregnancy loss cards. The story of how art and writing has brought them healing, and how they hope their cards will bring healing to others, is below. Please be aware that the story does contain descriptions and themes of pregnancy loss.

Elizabeth

On a Thursday in October three years ago, Jessica Zucker was 16 weeks into her pregnancy when she began miscarrying at home. She was there alone and describes the experience as incredibly painful, intense, emotional, and horrifying. “I have these memories burned into my mind and my heart. Having her fall out, having to cut the cord, looking at her, putting her on a towel, and putting her in a bag.”

While her husband rushed home, Jessica was hemorrhaging. Fortunately, he made it in time to get her to the doctor but the amount of blood loss she was having made an un-medicated D&C necessary. That night, she drank wine and ate chocolate in bed. Jessica explains that grieving the loss of her daughter was made even more complicated by the fact that she herself also could have died. She wonders how she mustered the strength to make it through. “My grief would just come out. I would be driving somewhere and I would just start bawling or even screaming at the horror of how things happened,” Jessica said.

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As a way to process her grief, Jessica, a clinical psychologist who specializes in women’s reproductive and maternal mental health in Los Angeles, began writing about loss. At first, she wrote about the politics of pregnancy loss and explored why we live in a culture where we can’t talk about the experience of miscarriage, where women somehow feel ashamed about their experiences. Then, last October, during Pregnancy and Infant Loss Awareness Month, Jessica initiated #ihadamiscarriage and went public with her own story in a piece she wrote for the New York Times. She explains that it’s helped so much because she’s connected with such wonderful women in the loss community around the world. “I feel my greatest way to honor my daughter, to honor our brief life together, our brief connection, has really been through my writing and I think that’s been the way that I’ve actually healed.”

“I feel my greatest way to honor my daughter, to honor our brief life together, our brief connection, has really been through my writing and I think that’s been the way that I’ve actually healed.”

Wanting to fill a void in the cultural conversation and in the marketplace surrounding pregnancy loss, Jessica decided to create a line of cards; to create something concrete and meaningful as a way to connect after a loss. Research shows that, after miscarriage, women are blaming themselves, feeling guilty, and feeling incredibly isolated. “My hope is that the cards convey messages that help women feel seen, feel validated in their experience, feel understood, and inevitably feel less alone because the card sender is thinking of them.” Jessica explains.

She also thought the cards could provide a sort of go-to guide for people who wonder what to say after someone they love experiences loss. They want to say the “right” thing, but many times don’t know what to say so they stumble.

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Jessica knew which messages she wanted to convey through the cards but needed help designing them. She reached out to calligrapher, Anne Robin, who also has experience with pregnancy loss. “There were three (miscarriages) at different stages, all within the first trimester. One of them was at 12 weeks, one was at 11 weeks, and then two babies that we found out at 20 weeks had severe inter-cranial hemorrhage.” recalls Anne. “They realized there must have been some kind of genetic problem but they couldn’t find it.”

Anne was told by her geneticist to “just try again.” “That’s easier said than done, obviously, but I was pretty determined and felt like I needed to, like I couldn’t NOT try again, and again, and again, until it finally worked.” Anne recalls.

Eventually, it did work, and Anne now has a 4-month old son. As a way to memorialize her babies, she has a little box she keeps ultrasounds in, along with letters she’s written to them, and other mementos. “I still wanted something very physical so the one thing I did and I do really kind of cherish is had a new necklace made with a ‘C’ for my older son, that’s cut out of a circle, and then for the two babies that we lost much later, kind of the two that felt more real to me, I have these kind of empty rings. It’s something that I always have on me and it feels special and now my baby holds onto it a lot. He’ll have one of his fingers through the rings so that always feels really symbolic to me.” Anne explains.

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Anne also used Pregnancy and Infant Loss Awareness Month last year to share her story publicly, creating a series of prints around the topic of pregnancy loss that were available for purchase, download, and use, on her website. She wanted to do something else this year and was looking for a project when Jessica approached her about doing the artwork for her pregnancy loss cards. “I finally had this baby in June and was interested in kind of coming full circle. Last year I was doing this all at seven weeks pregnant and totally terrified.” Anne explained, adding that, this year, she had a little bit more peace about her experiences and felt like she could really invest time and heart into the process.

I was pretty determined and felt like I needed to, like I couldn’t NOT try again, and again, and again, until it finally worked.”

To get started, Anne had Jessica look at her Instagram account to send her a list of fonts she liked and they brainstormed ideas. Realizing they both have an affinity for Mid-Century Modern design, Anne moved forward with shades of turquoise, mustardy yellow, and brick red, following a color scheme falling within that design aesthetic. “I didn’t want to make them super bright because I felt like they should be more muted because of the subject matter,” Anne explains.

Once a general design plan was in place, Jessica let Anne run with it.  “I love everything she does so it’s kind of ridiculous. I told her, you go for it, this part is all you,” she said.

What resulted was a series of pregnancy loss cards featuring honest messages, and gorgeous calligraphy. While some of the stronger language may not resonate with everyone, Jessica hopes that there’s a card in the series for everybody and wanted to convey a sense of consistency.

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With messages including, I’m here for you always and I love you like crazy, Jessica explains, “I’m trying to underscore the point that I’m here for you right now because this happened and then next week we can hang out in this uncomfortable space together because this is part of life and where a lot of growth, unfortunately, happens.”

She adds that rushing grief doesn’t help anybody and ignoring it most definitely doesn’t either. “I think it’s incredibly important to try to resist judging one’s grief and that we should really shy away from comparing and contrasting grief or loss experiences.” The card stating grief has no timeline expands on this theme. “Women shouldn’t have to worry that they’re going to make somebody uncomfortable or that it’s inappropriate somehow to talk about their loss. That they should feel well within x amount of time,” Jessica says.

It was important to Jessica to have a card for pregnancy after loss, and she describes the baby loss/still birth announcement in the collection as stunning and so meaningful and important.

Both Jessica and Anne have been completely overwhelmed and excited by how well the cards have been received. “At first we were literally talking about printing 25 copies of each card. We had no idea the press we were going to get and the reaction that people would love them so much.” says Anne, adding how nice it’s been that people have been expressing gratitude that the cards are now available.

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Working on this line of cards has been an important part of Jessica and Anne working through emotions surrounding their own experiences with loss and it seems that the cards are definitely fulfilling Jessica’s goal of delivering honest and truthful messages, filling a gap in the marketplace, and sparking a discussion about pregnancy loss. She explains, “We have to embrace that this is part of trying to create life and women shouldn’t feel that they have to be quiet about it.”

Jessica’s hope is that future generations grow up in a landscape that is incredibly different when it comes to these important and normative issues, saying, “It can be like a rollercoaster ride. you can be laughing one day or one hour and, the next hour, screaming about your pain and that’s okay.”

I’m NOT an Artist: A Video Blog from Maria

Maria and I attended the Examined Life Conference at the University of Iowa Carver College of Medicine in April of this year and were invited to have some work from ART of IF on display there. It was an inspiring few days and, on the drive home to Michigan, we had the idea to put together some art packs that we could hand out at Advocacy Day.  We figured if people had all the supplies they needed to create a piece around their experience with infertility, it would make it easy for them. We loaded envelopes with a mini canvas, paint, mod lodge, feathers, beads, anatomical drawings and more.

However, while everyone was very excited to receive their packs, it’s been a few months and we haven’t seen too many creations in our mailbox. We understand the process of creating art can be daunting, even when you have supplies on hand. It’s something that Maria has been struggling with and wanted to share her thoughts about here. Hopefully her words will resonate with those of you who still have art packs sitting around and explain how, even if you’re not feeling very artsy, the process of creating can still be beneficial in your journey. Click on the link below the picture to view the video that Maria has created.

Elizabeth

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I’m NOT an Artist

 

 

s/m/othering

We’re featuring artwork from the project’s permanent collection in this week’s blog post.  Marissa McClure has created this piece, s/m/othering, in which she has removed the babies, children, and reproductive organs from well known pieces of art. She then invites others to choose an image that speaks to them and share their reaction to the image by pasting it, along with their narrative, in a book.

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We’ve been traveling with the book and it’s been in Iowa City, Los Angeles, Washington, D.C., and Northern California with us so far. We’re sharing some images and stories from the piece this post and you can look for us, and the book, at our upcoming events in New JerseyMichigan, California, Illinois, and Arizona where we’ll invite you to share your own story through Marissa’s piece, mini interviews and photo sessions, and some other fun interactive projects we have planned.

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You can read Marissa’s complete paper on s/m/othering at this link. Thank you, Marissa, for sharing your art with us!

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Expanding In/fertility: Our Mission and Cole’s Story

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The ART of Infertility’s mission is to break the silence around the experiences of infertility, offering art and storytelling as therapeutic heuristics to capture and express the realities, pains, and joys of the experiences of infertility. This project recognizes the diverse voices and perspectives that represent infertility — ranging from those in a heterosexual relationship who receive an infertility diagnosis upon trying to conceive, those who identify as single-mothers-by-choice and undergoing fertility treatment to become pregnant, even those who identify as LGBTQ and encounter many of the same infertility decisions. In this way, the project attempts to speak back to dominant perceptions and assumptions of who is infertile. Our goal in doing so is to broaden the public’s understandings of infertility, making the claim that infertility impacts far more than just the older heterosexual couple attempting to conceive.

We understand in articulating such a mission that we may offend some in the infertility community. Our intention in adopting such a mission is not to offend and create divisions amongst the infertility community. Instead, we aspire to bridge the multiple and diverse experiences of those who face decisions of infertility. We believe that by honoring these diverse stories we may build stronger bonds and greater awareness about the multiple faces, stories and realities of infertility. We look forward to fulfilling this mission and today we begin by sharing one of the unique and humbling stories of infertility that rarely get told.

Meet Cole, once Nicole. He has made the decision during his transition from Female to Male to preserve his eggs so that one day he too can have a family that he so desires. Read the text and play the audio clips below to learn about Cole’s journey.

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We met Cole, a recent high school graduate, at his home in the San Francisco Bay Area where he was recovering from top surgery. Top surgery, in Cole’s case, involved a mastectomy and chest reconstruction and is a procedure he underwent as part of transitioning from female to male. From an early age, Cole knew he was transgender, even though he didn’t know to call it by that name. Here, he shares what the experience was like for him growing up, how he made the decision to transition, and how he shared the news with his family.

 

When first visiting the doctor, Cole was shocked by what they told him he’d have to do in order to transition. “They gave me some type of information that we ended up not going by that horrified me. It said I had to live like a man (for a certain period of time) and I didn’t really know what that meant, what it means, to live like a man. As I said, I feel like a man so I’m living how I feel like a man should live. Is there a certain way? Do I need a rule book to live this way?”

Cole worked with a number of physicians and counselors before it was finally time for him to begin testosterone injections to begin transitioning. On the day he was to self-administer the first injection, he was sitting in the doctor’s office when he was handed a brochure about fertility preservation.

The testosterone Cole was prescribed to transition from female to male would negatively impact his fertility. Undergoing fertility treatments and having his eggs retrieved before he started testosterone would give him the best chance of having a biological connection to his future children. This, in part, is why sharing his story is so important to Cole. He wants others to know it’s possible, so they might have the same chance he will. Cole took one look at the info given to him and passed it to his mom.

“I told my mom and, if it was something I wanted to do and I thought about it and considered it, she supported it. But, financially, there was a conversation about how we’d pay for it because transitioning costs a lot too. As far as the support, she said, ‘if this is what you really want to do, we’ll do our best to make it happen for you.'”

“I’ve always wanted to have kids so it was a no-brainer. I didn’t really know the whole process but I knew I wanted to do it. My mom did some research and we met up with Dr. Aimee.”

While Cole was excited about the opportunity to freeze his eggs for future use, he was frustrated by having to delay starting his testosterone shots and putting transitioning on hold. Still, he didn’t let it deter him. Here, Cole describes what the experience of undergoing fertility treatment, which includes transvaginal ultrasounds, and the egg retrieval was like for him.

 

Cole has an impressive collection of athletic shoes.

Cole has an impressive collection of athletic shoes.

Besides dealing with ultrasounds, there was another challenge in store for Cole. While taking medication to stimulate egg productions, physical exertion has to be limited because of the potential risk of ovarian torsion. For Cole, a former basketball player who has shifted gears to have more free time to work out and lift weights, the combination of surgeries he’s undergone recently have meant that exercise has been off limits for quite some time. He shared this with us.

 

With the egg retrieval behind him, it was time to start the transition from Nicole to Cole with his first testosterone shot.

 

Another reason Cole wanted to move away from playing basketball was to have more time to share his story.

“I think if I had anything to say is that the purpose of me sharing my story is not for me it’s for others. It’s to educate people about the infertility egg process and why people do it. Its also to educate people about what being transgender means. I do it to help people find themselves and not feel alone. To inspire people not only the LGBT community, but everybody to be themselves regardless of what society or anybody says. I’d rather take the hits about it than any other kid stressing about it.”

Cole has found a community with others, who are also in the process of transitioning, on Instagram. He’s had others ask him about his experience with fertility treatments.

 

“I don’t really want to live undercover or anything. Some people, when they transition, don’t tell anybody they are transgender. I wouldn’t want to do that because that’s who I am. You know, I want people to really know me and love me for me and not for somebody they think I am.”

“I wish everybody could just know so they could decide if they like me or not but I don’t really know how that’s going to work. It’s just kind of new. I’m just going to have to see when I get there I guess. The state I’m in right now, is just the beginning. Sometimes I’m he and sometimes I’m she. Sometimes I pass and sometimes I don’t, but after my top surgery I started to pass in public and a lot.”

While Cole rolls with the punches now, it hasn’t always been so easy. Along the way, he sometimes turned to art to help him process his emotions.

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Cole created this piece during a free draw in his art class.

Cole shared his process in creating this image in his sketch pad.

 

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It’s an exciting time of change for Cole and he’s looking forward to the future and, one day,  using the eggs that were retrieved this spring.

 

Thank you, Cole, for sharing your story!

Cole’s reproductive endocrinologist, Dr. Aimee Eyvazzadeh, has set up a Go Fund Me account to help Cole pay for the storage fees it will take to keep his eggs waiting until he’s ready to use them. If you’d like to contribute to the fund, you can click here.

 

 

 

 

 

 

 

Infertility is…

While we were in Washington, D.C. for RESOLVE: The National Infertility Association’s Advocacy Day and for our pop-up gallery and workshops at Busboys and Poets a couple of weeks ago, we asked those in attendance to fill out cards describing what “infertility is” to them. You’ll see some of them throughout this post, from Elizabeth. You can see more by viewing a slideshow at this link

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When I think of infertility, I think of many things. How I view infertility and what it means to me has changed as I’ve traveled through my journey.

Infertility is… devastating.

Infertility is…feeling left behind.

Infertility is…an identity crisis.

 

I was pregnant once, as a result of a frozen embryo transfer, and only knew I was pregnant for a few days before learning that the pregnancy was ending in an early miscarriage. During those few days, I was excited, hopeful and cautiously optimistic, that after four years of timed intercourse, hormone injections, and 7 a.m. ultrasound appointments, I might finally become a parent. However, I was also experiencing some serious anxiety and a complete identity crisis.

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The early years of infertility were extremely difficult. However, once I was used to the fact that I had an infertility diagnosis (for the most part anyway), I settled in to my place as an infertile woman and RESOLVE: The National Infertility Association peer-led support group host. I read books on infertility, I knew which foods to eat to boost my egg quality (and incorporated excessive quantities of them into my diet), I had infertile friends, and was beginning to perfect my answers to the question, “Do you have kids?”, recite them with conviction, and be ready for any follow up questions that came my way.

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When I found out I was pregnant, though obviously happy, I was also confused about where I would fit in. What would happen to my relationships with my infertile friends who I would leave behind? What would my role within RESOLVE become? The first ART of Infertility exhibit was on the schedule at the Ella Sharp Museum in Jackson and I remember being a bit upset that I had to stay in the world of infertility to work on it, instead of being able to enjoy my pregnancy.  I was terrified of moving into the world of someone who was pregnant after infertility. I was even feeling exhausted about the fact that, after watching my diet for years to GET pregnant, I’d need to watch my diet for another 9 months in order to make sure my baby was getting the nutrition it would need. It was a mix of thoughts and emotions. A complete identity crisis, over the course of less than 72 hours.

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I wish I would have gotten the chance to figure out how I would incorporate all of the thoughts and fears above into my new identity as a woman who was parenting after infertility. I haven’t gotten there yet and might even eventually choose to live child free. I’m still trying to navigate figuring out my identity a bit. However, through working on the ART of Infertility, I feel like I am really finding my footing. Because of this project, my view is now that

Infertility is…meeting amazing people, around the country and around the world, who understand how the disease impacts my life, because they’re living it too.

Infertility is…educating health care professionals about how they can better serve their patients.

Infertility is…hosting art and writing workshops to give others the creative outlet that I have found so helpful along the way.

Infertility is…visiting amazing cities and sharing the infertility stories of those who live there.

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Please share with us what “Infertility is” to you.

-Elizabeth

 

Advocacy Day Interviews

Maria:

These past two weeks been a whirlwind! New exhibit and workshop dates are currently being planned for the project, we hosted our workshop and exhibit at Busboys & Poets in DC, we met with our MI legislators to discuss infertility legislation, we gathered new infertility stories for the project, plus we successfully met our Kickstarter goal! Thank you for all who supported us, both financially and those who continue to publicly support and share information about the project. Liz and I continue to pinch ourselves in amazement about how the project has evolved over this past year.

Many of you may not know that Liz and I first met during this time last year at RESOLVE: The National Infertility Association’s Advocacy Day. We bonded over our infertility stories, experiences leading RESOLVE peer-led support groups, and our passion and interest in the arts as a heuristic for infertility healing. Our friendship has blossomed over the past year, incorporating many of these shared interests and our professional backgrounds into the project.

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Liz and me in front of the Capitol during Advocacy Day last week.

 

So while I reflect on our time spent in DC last week, I think about how Advocacy Day brought the two of us together and really helped to shape the project into a national infertility oral history and art exhibit. This year, Advocacy Day continues to serve as a fruitful day connecting hundreds of infertile women and men. Liz and I were lucky enough to spend time with a few of these individuals by inviting a few women to participate in a “mini” interview session for the project.

Here we met Jo and Brooke. Two empowering, positive, strong, and courageous women. Talking with them and learning about their artifacts (Jo, a tatoo; Brooke, a quilt) that they choose to share with the project, I was struck in the moment of interviewing each of them that this is why I come to Advocacy Day. This is why I tell my story to Congress. This is why I believe that infertility should become recognized as a national public health issue. These women. Sitting before me. Telling me their stories. They inspire me and remind me that I’m not alone. That our infertility stories matter. That together as an infertile community, we are strong, we are powerful, we can change the cultural stigmas that are attached to infertility. I want to thank Jo and Brooke for agreeing to share their stories (shown below). I hope that others will find them equally inspiring and empowering.

 

Elizabeth: 

I’m in awe every time I sit down to interview an individual or family about their experience with infertility. Since starting the project, I’ve completed around 70 interviews and they never fail to remind me of the passion and desire that those with infertility have for building their (our) families and what they are willing to do to make that happen, whether they end up parenting, or choosing to be a family of two and live child free.

Sadly, because of the lack of the acknowledgment of infertility as a public health concern (even though it is recognized as such by the Centers for Disease Control and Prevention), and insurance coverage for this disease; many endure years of treatment, and pay for most, if not all of it, out of pocket. That’s why I choose to advocate for legislation that will help those with infertility build their families.

An important part of that is sharing my story, and, through the ART of IF, I’ve had the honor and privilege of documenting and sharing the stories of others as well. It’s been an important part of being able to process my feelings about my disease and I find it amazing that I’m able to help others do that too. During our time in D.C., Maria and I were able to sit down with seven amazing women, Tomiko, Brooke, Angela, Katie, Jo, Annie, and Renee, and hear a bit of their stories. Thank you all for letting us in to your lives and journeys!

Renee, Annie, Elizabeth, Maria, and Jo at the wrap up reception during Advocacy Day.

Renee, Annie, Elizabeth, Maria, and Jo at the wrap up reception during Advocacy Day.

Meeting with my state and local representatives at Advocacy Day made me realize what an incredible tool the project could be for sharing the importance of the issues we were presenting (you can find a list of those issues and bills at RESOLVE: The National Infertility Association’s website by clicking here) and I’m excited about ways we can do outreach through the project to help make a difference on both a state and federal level.

Brooke:

Infertility Advocate, Brooke Kingston, in Washington, D.C. for RESOLVE:The National Infertility Association's Advocacy Day.

Infertility Advocate, Brooke Kingston, in Washington, D.C. for RESOLVE:The National Infertility Association’s Advocacy Day.

 Brooke tells us why she wanted to participate in the ART of Infertility project.

Brooke shares reflections on her infertility diagnosis and decision to live child free.

Brooke finds a creative outlet for her infertility through a variety of hobbies. Here, she holds a quilt she created.

Brooke finds a creative outlet for her infertility through a variety of hobbies. Here, she holds a quilt she created.

“My husband and I are five years into our experience with infertility, and chose a childfree lifestyle as our resolution. I’ve always been crafty and took solace in creative hobbies. When my sister announced her pregnancy in November 2013, I struggled a lot emotionally. The second I laid eyes on my nephew, I fell in love with him and wanted to give him the world. I had a strong urge to carry on my late grandmother’s tradition of gifting new babies with her handmade quilts. My nephew received my first quilt, and I’ve finished 6 others since September 2014. This quilt is the fifth I started, and was used as a prop in the photo session my husband and I did to celebrate of fifth wedding anniversary.”

-Brooke

Brooke’s advice for others who have been diagnosed with infertility. 

 

Jo:

Jo advocates at both the state and federal levels for changes that would improve the lives of those with infertility.

Jo shares with us why she wanted to participate in the ART of Infertility project.

 

Jo’s diagnosis includes diminished ovarian reserve and cysts, while her husband has male factor infertility due to a previous vasectomy. Here, she explains more.

 

After many cycles of both IUI and IVF, Jo has never been pregnant. Listen to the two clips below to hear about her treatment and how she has had to pay for them out-of-pocket since she has run out of insurance coverage.

Jo's tattoo of an eight cell embryo was created by artist, Jude LeTronik.

Jo’s tattoo of an eight cell embryo was created by artist, Jude LeTronik.

Recently, Jo got a tattoo to honor her journey and has a sort of prayer, or spell, for her next upcoming IVF to work. Listen to her talk more about the reasons why she chose this image. If you’d like to learn more about the tattoo artist, you can check out her website. http://www.judeletronik.com

 

 

 

 

 

 

 

Art Journaling to Cope with Infertility

I was very fortunate to wake up this morning in our nation’s capitol, where I will be advocating for legislation to help those with infertility. Sara Elliot, our guest blogger this week, was hoping to make the trip this year and was unable, but wanted to share her story with us via the ART of IF blog. Thank you, Sara for sharing your story with us!

Elizabeth

Art Journaling to Cope with Infertility

Many in the infertility community will be making their way to DC this week for Resolve’s Advocacy Day on Capitol Hill.

I can’t be there to advocate this year in person, but I still I wanted to help raise awareness about the 1 out of 8 couples who month-after-month, year-after-year are trying to build their family by any route available to them.

imageLet’s start with this. I never thought that I’d be a person who would “do” IVF. It’s taken a long time to come to terms with the loss of control over my body and my reproduction. With a diagnosis of PCOS and subclinical hypothyroidism, I am now both infertile – meaning we tried to get pregnant for over a year without assistance – and have experienced recurrent pregnancy loss. The combination is so difficult.

Around the time I first went to on OB/GYN to get testing, I found out that it took my grandparents 7 years to conceive my mother, so there is likely a genetic component to what I am going through. I remember my grandma saying, “Our children came along later” but I didn’t understand infertility might be the cause until I was faced with it myself.

For reasons we’re still trying to figure out with our doctor, we’ve conceived four times through assisted reproductive technology – 2 IUIS and 2 IVF cycles – and lost all 4 pregnancies. One was ectopic. One had a heartbeat we got to hear twice.

While going through this recent IVF cycle and loss, I turned to art journaling to process the emotions of this heart wrenching experience. I made a point to draw just a little bit every day, even if all I could muster was a few words in black pen. I’d often fill in the color on better days.

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The art journal is a record of what kept me going, including song lyrics and reminders to take care of myself.

At the start of the New Year, I pick a new word to focus on. This year the word I chose was “Become.” This song by Iron & Wine got stuck in my head for weeks, so “Become the rising sun” has become a phrase I focus on a lot.

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When we got an unexpected positive pregnancy test in February, I tried to remember to be happy in the moment. I was very anxious, given our history of loss. During this cycle, I saw the trailer for the documentary One More Shot by Noah Moskin and Maya Grobel Moskin. When Maya said, “In this moment, I am happy” I sobbed realizing how hard and necessary it is to grab a moment of happiness amidst all the bad news.

Fear of loss is a very typical response for women who have been through so much to get pregnant. Many infertile women talk quietly about the post-traumatic stress they experience. In the end, the only choice is to surrender, continue to persevere, and to figure out how to rebuild a life that includes more than just a few moments of happiness.

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In 2010, my husband and I moved back to our home state of Michigan to be near family as we tried to have children. As the years of trying to conceive and maintain a pregnancy unfolded, an added heartbreak was that if we’d stayed in Massachusetts, our IVF health care costs would have been covered by insurance because state law in Massachusetts mandates coverage for IVF. Michigan law does not. Federal law does not. Money that we’d intended for a retirement account or a child’s college fund was instead spent on medical bills that were uncovered by our health insurance.

And let’s be clear – female and male sterilization is covered by our insurance plan, yet the most effective treatment for infertility, IVF, is not covered. As far as I can tell, the only logic for this policy is cost savings for the insurance companies. No working reproductive systems means no babies which means no hospital births and no well-baby visits to pay for on family insurance plans.

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Despite all of our bad luck, we are lucky that we have some savings to spend on our health care needs. Many couples do not. And frankly, no one should have to spend five figures out of pocket to treat a diagnosed medical condition.

Only laws can change this situation.

Thank you to the women and men who are in DC advocating on our behalf this week.

 

Fertility Tornado

Today’s guest post is from Kristin Phasavath. I met Kristin at RESOLVE, the National Infertility Association’s, Southern California Walk of Hope in Long Beach last September where we set up an appointment for her to be interviewed and photographed for the project. Kristin has a unique perspective because she was first a nurse at a fertility clinic and then, while working there, experienced secondary infertility and was a patient herself. Here, she shares her experience creating the oil painting, “Fertility Tornado”, which debuted at our pop-up exhibit in Calabasas and will be exhibited in Washington, D.C. next week. Thanks for sharing your story with us, Kristin!

Elizabeth

Fertility Tornado

My inspiration for the fertility tornado came from my time as a fertility nurse and a fertility patient. When you are in the throws of anything fertility it feels like you are in a tornado, whether you are a patient or a nurse. As a fertility nurse there is so much to organize for each patient all day everyday. Appointments, procedures, schedules, medications, labs, forms, insurance, etc, etc, etc…the list goes on and on and on. As a patient you deal with a very similar list that encompasses every breath you take. It effects your health, marriage, intimacy, mental status, finances, schedule, family life, and this list goes on and on. There is not one corner of your life this fertility thing does not infiltrate. Keeping everything straight as a nurse or a patient is like a tornado.
I wanted to create a visual concept of what this fertility tornado looked like to me. Once I sat down to paint, it really just painted itself. I think that I had lived with this statement and vision for so long it just poured out in an instant once I put brush to canvas. The process was amazingly fast. I think that the initial painting took less than an hour. It had wanted to come out for so long. It was very cathartic to me and I felt lighter when I was done. Like I had ironically enough given birth. Once I made up my mind to actually start the painting it flowed very easily, like it was what I was meant to do. No challenges in my way. It just felt good to finally let all my feelings out. There was a moment that I did get a little choked up because it felt a little like the end of an era. A little finality involved.

Kristin with her oil painting, “Fertility Tornado,” and her project portrait at the ART of Infertility pop-up exhibit in Calabasas, CA on April 25, 2015.

I was so proud to be able to share my painting at The ART of IF exhibit. I’m certain that I am not alone in feeling the way I do about this world of fertility. I hope to connect with many of my fellow fertility comrades thru this work of art. I thank Elizabeth for giving me an opportunity to be interviewed & photographed. She really inspired me to share my story and create this painting. The work she is doing is very important and I hope it has a long life. I’m not sure if I will create any more paintings but you never know. There is so much inspiration in connecting with others that share a similar story that it might spark my creative fertility juice again.
~Kristin Phasavath
*Fertility Nurse
*Fertility Patient
*Fertility Artist