Living and Writing in the Aftermath

Today we have a guest post from Robin Silbergleid. Thanks, Robin, for blogging for us this week! Robin is teaching a writing workshop, Women Write the Body, for us on June 14th in East Lansing, MI. Here’s a link to the workshop details. Please consider joining us! 

Living and Writing in the Aftermath

By Robin Silbergleid

This is how it goes. I’m at a school function for my eleven-year-old daughter. The auditorium clamors with families. A woman rushes by, tugging a toddler’s hand, an infant in a front carrier. On the stage, a teacher is visibly pregnant. My son, age three, draws a picture, asks when the show, which hasn’t started yet, is going to be over. Behind us, a baby fusses.

And somehow, I’m mentally spinning, back to the April four years ago when it looked certain that I would miscarry yet again.

It’s such an odd mix of emotions that hits me at these times: gratitude for having the children I do, and that old longing and fear. I won’t have another child. Won’t experience pregnancy again, the thrill of two pink lines on a home test, the faint rustle of a fetus at ten weeks.

I kiss the top of my son’s head. Watch my daughter rush past, holding a flag that says Texas, the state of her birth, so quickly I can’t snap a picture to preserve the moment.

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I didn’t set out to make a career writing about infertility and pregnancy loss. But, as I’ve said in other contexts, I began my professional life the same time I started the journey (oh so innocently!) toward single motherhood via anonymous sperm donation. And I was so profoundly changed by those long months of blood draws, ultrasounds, and injections that for a long time I couldn’t write about anything else.

To borrow a phrase from poet Carolyn Forche, we all live in the aftermath of what has happened to us.

It’s been four years since I walked out of the clinic with a gritty ultrasound photo and a hug from my doctor. I am, all things considered, a “success” story. I have the second child I so desperately wanted. He’s now a chatty three-year-old obsessed with Elsa from Frozen, equally happy to wear blue fingernail polish or dig for worms on the playground.

And, to be fair, most of the time I’m so busy with the work of parenting and exhausted from chronic sleep deprivation that I don’t have much time to think about the failings of my ovaries or the uterus my ob/gyn described as ‘hostile’.

But all it takes is a certain song on the radio, or driving down I-96, or finding an alcohol wipe in my backpack, or heaven forbid a letter from the clinic, and I’m there. What if I’d started trying a few months earlier? What if I’d done IVF at a different clinic? What if I’d chosen to transfer one and not two? What if I’d waited one more month? What if.

It’s not so raw anymore, the way it was in those hormone-addled days of high risk pregnancy, breastfeeding, and new motherhood. But, as writer Melissa Ford has so rightly said, resolving childlessness is not the same as resolving infertility. And there’s no question: infertility has been a defining experience my adult life, both personally and professionally. I see it every time I look at my son, with the blue eyes and light hair he clearly did not inherit from me.

Writing has offered me a way to process those experiences, in all their complexity. My writing about infertility has gone from unprocessed scribbles written in a waiting room to poems with diagnostic codes, rants and thank yous. I’ve written now a memoir and a full-length collection of poems about infertility and loss, on top of numerous shorter essays. And while I do not think that writing is in and of itself therapeutic, over the long run writing has provided me with the language and narrative to make sense of what I’ve experienced, to reframe it and work through it. Beyond that, sharing my story, and reading and listening to the stories of other women with similar experiences, has led to enduring connections and relationships. We are reclaiming our bodies and our selves, one word at a time.

Robin Silbergleid is the author of the memoir Texas Girl and the chapbooks Pas de Deux and Frida Kahlo, My Sister. Her collection of about infertility treatment The Baby Book is forthcoming in November 2015 by CavanKerry Press. She lives, writes, teaches, and mothers in East Lansing, Michigan. You can find her online on Twitter @RSilbergleid or at robinsilbergleid.com.

Art Journaling to Cope with Infertility

I was very fortunate to wake up this morning in our nation’s capitol, where I will be advocating for legislation to help those with infertility. Sara Elliot, our guest blogger this week, was hoping to make the trip this year and was unable, but wanted to share her story with us via the ART of IF blog. Thank you, Sara for sharing your story with us!

Elizabeth

Art Journaling to Cope with Infertility

Many in the infertility community will be making their way to DC this week for Resolve’s Advocacy Day on Capitol Hill.

I can’t be there to advocate this year in person, but I still I wanted to help raise awareness about the 1 out of 8 couples who month-after-month, year-after-year are trying to build their family by any route available to them.

imageLet’s start with this. I never thought that I’d be a person who would “do” IVF. It’s taken a long time to come to terms with the loss of control over my body and my reproduction. With a diagnosis of PCOS and subclinical hypothyroidism, I am now both infertile – meaning we tried to get pregnant for over a year without assistance – and have experienced recurrent pregnancy loss. The combination is so difficult.

Around the time I first went to on OB/GYN to get testing, I found out that it took my grandparents 7 years to conceive my mother, so there is likely a genetic component to what I am going through. I remember my grandma saying, “Our children came along later” but I didn’t understand infertility might be the cause until I was faced with it myself.

For reasons we’re still trying to figure out with our doctor, we’ve conceived four times through assisted reproductive technology – 2 IUIS and 2 IVF cycles – and lost all 4 pregnancies. One was ectopic. One had a heartbeat we got to hear twice.

While going through this recent IVF cycle and loss, I turned to art journaling to process the emotions of this heart wrenching experience. I made a point to draw just a little bit every day, even if all I could muster was a few words in black pen. I’d often fill in the color on better days.

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The art journal is a record of what kept me going, including song lyrics and reminders to take care of myself.

At the start of the New Year, I pick a new word to focus on. This year the word I chose was “Become.” This song by Iron & Wine got stuck in my head for weeks, so “Become the rising sun” has become a phrase I focus on a lot.

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When we got an unexpected positive pregnancy test in February, I tried to remember to be happy in the moment. I was very anxious, given our history of loss. During this cycle, I saw the trailer for the documentary One More Shot by Noah Moskin and Maya Grobel Moskin. When Maya said, “In this moment, I am happy” I sobbed realizing how hard and necessary it is to grab a moment of happiness amidst all the bad news.

Fear of loss is a very typical response for women who have been through so much to get pregnant. Many infertile women talk quietly about the post-traumatic stress they experience. In the end, the only choice is to surrender, continue to persevere, and to figure out how to rebuild a life that includes more than just a few moments of happiness.

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In 2010, my husband and I moved back to our home state of Michigan to be near family as we tried to have children. As the years of trying to conceive and maintain a pregnancy unfolded, an added heartbreak was that if we’d stayed in Massachusetts, our IVF health care costs would have been covered by insurance because state law in Massachusetts mandates coverage for IVF. Michigan law does not. Federal law does not. Money that we’d intended for a retirement account or a child’s college fund was instead spent on medical bills that were uncovered by our health insurance.

And let’s be clear – female and male sterilization is covered by our insurance plan, yet the most effective treatment for infertility, IVF, is not covered. As far as I can tell, the only logic for this policy is cost savings for the insurance companies. No working reproductive systems means no babies which means no hospital births and no well-baby visits to pay for on family insurance plans.

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Despite all of our bad luck, we are lucky that we have some savings to spend on our health care needs. Many couples do not. And frankly, no one should have to spend five figures out of pocket to treat a diagnosed medical condition.

Only laws can change this situation.

Thank you to the women and men who are in DC advocating on our behalf this week.

 

Fertility Tornado

Today’s guest post is from Kristin Phasavath. I met Kristin at RESOLVE, the National Infertility Association’s, Southern California Walk of Hope in Long Beach last September where we set up an appointment for her to be interviewed and photographed for the project. Kristin has a unique perspective because she was first a nurse at a fertility clinic and then, while working there, experienced secondary infertility and was a patient herself. Here, she shares her experience creating the oil painting, “Fertility Tornado”, which debuted at our pop-up exhibit in Calabasas and will be exhibited in Washington, D.C. next week. Thanks for sharing your story with us, Kristin!

Elizabeth

Fertility Tornado

My inspiration for the fertility tornado came from my time as a fertility nurse and a fertility patient. When you are in the throws of anything fertility it feels like you are in a tornado, whether you are a patient or a nurse. As a fertility nurse there is so much to organize for each patient all day everyday. Appointments, procedures, schedules, medications, labs, forms, insurance, etc, etc, etc…the list goes on and on and on. As a patient you deal with a very similar list that encompasses every breath you take. It effects your health, marriage, intimacy, mental status, finances, schedule, family life, and this list goes on and on. There is not one corner of your life this fertility thing does not infiltrate. Keeping everything straight as a nurse or a patient is like a tornado.
I wanted to create a visual concept of what this fertility tornado looked like to me. Once I sat down to paint, it really just painted itself. I think that I had lived with this statement and vision for so long it just poured out in an instant once I put brush to canvas. The process was amazingly fast. I think that the initial painting took less than an hour. It had wanted to come out for so long. It was very cathartic to me and I felt lighter when I was done. Like I had ironically enough given birth. Once I made up my mind to actually start the painting it flowed very easily, like it was what I was meant to do. No challenges in my way. It just felt good to finally let all my feelings out. There was a moment that I did get a little choked up because it felt a little like the end of an era. A little finality involved.

Kristin with her oil painting, “Fertility Tornado,” and her project portrait at the ART of Infertility pop-up exhibit in Calabasas, CA on April 25, 2015.

I was so proud to be able to share my painting at The ART of IF exhibit. I’m certain that I am not alone in feeling the way I do about this world of fertility. I hope to connect with many of my fellow fertility comrades thru this work of art. I thank Elizabeth for giving me an opportunity to be interviewed & photographed. She really inspired me to share my story and create this painting. The work she is doing is very important and I hope it has a long life. I’m not sure if I will create any more paintings but you never know. There is so much inspiration in connecting with others that share a similar story that it might spark my creative fertility juice again.
~Kristin Phasavath
*Fertility Nurse
*Fertility Patient
*Fertility Artist

A Year Without Answers – Guest Blog from Dr. Paul Turek

This is actually a guest post within a guest post! We had the honor of meeting Dr. Paul Turek from The Turek Clinic in Beverly Hills and San Francisco at our event in Calabasas, CA last week. Dr. Turek is passionate about art and we are excited to have him as an ART of Infertility sponsor!
Maria and I are very determined to include the stories of more men in the project and had two fantastic interviews with men while in California. We’re hoping to hear from more men who would like to share their stories and are working on developing ART of IF programming that will strike a bigger chord with men. Stay tuned! This is a two part blog so we’ll run this one today and another in a couple of weeks. Thanks, Dr. Turek for sharing your blog with us! Here’s a link back to Dr. Turek’s blog so you can read more posts from him. 
Elizabeth
A Year Without Answers

Elemental, a painting by A.J. Russell
“Elemental” Courtesy of the Artist: A.J. Russell

This is a guest post from a patient who lives in Europe. He recently recontacted me about his experience with male infertility and how it affected him.  Moved by his story and by his emotional fortitude, I asked him if he could share his remarkable journey with others. 

“The day we met with Dr. Turek was a week filled with hope and happiness. Almost a year earlier, on the same day, I went through a biopsy with the result that there were no sperm. So when we found out about Dr Turek, this really felt like the last chance, the last hope. Therefore the decision to travel across the world to see him was an easy one. The visit and procedure went well, but, again, the result from mapping showed no sperm. And no answer as to why this is.

It has been a year since I spoke with Dr. Turek about these results, a year characterized by disappointment, anger, sadness and worst of all, no answers. There were simply no answers to be found. Why me? Why now? What now? Literally a thousand questions ran through my head interfering with my daily life, keeping me up at night and affecting my relationships. I had never felt anything like this before.

I wanted so badly to not feel alone in this. I wanted someone to understood my plight, without me having to explain every small detail, because you can´t explain this feeling.

I needed to talk about it. I just couldn’t bury it. But, who was I going to talk to? And what would I talk about? I felt isolated as there appeared to be a big taboo regarding this topic. Anyone I spoke to told me focus on other things in life. But how are you supposed to do that when all you think about is the fact that you can’t have your own children? I knew no one with a similar experience who would step forward and talk about his experiences and feelings. Google searches were pointless, as the Internet does not care and information on coping is useless.

That year was best characterized by the feeling of being lost and trying to find my way in darkness without a map or light. I felt that I was in a deep, dark place, especially when I tried to look forward into the future.

Feeling alone, I began suppressing everything. All feelings, thoughts and discussions were avoided. I told my close family that I did not want talk about this matter anymore. It was a buried subject for me, never to see the light of day again.  The reason for this was that talking about this issue within the family only made things worse. One problem with this approach was that the bright spots in my life also suffered along side. The subject became an 800-pound gorilla that, although ignored, never left the room. Maybe the gorilla was bigger than 800-pounds as the family dynamics changed greatly.

Then I became angry, sometimes uncontrollably. This was when I could see that I was approaching rock bottom. The slightest annoyance, comment or action sent me into a furious rage where I often exploded at whomever was next to me. Many times it was my wife, which led us to the brink of divorce. We were both tired of fighting and there appeared to no other solution to end the fighting but dissolving the marriage. This moment was a real eye opener for me.

What helped keep me going to some degree during this time was my job. As a futures trader, my work was very involving and in the moment. Believe it or not, it was also logical and predictable, in a mathematical sort of way. It could be explained and reasoned with and while doing it, I could leave all my troubles behind. But I couldn´t hide in my job forever.

I turned the corner at rock bottom when I realized that if I did not start controlling my emotions and start being honest with myself, my life as I knew it would change dramatically. It was on that day, a very cold one in December, that I realized that I was just too exhausted to continue to fight with myself and others. I couldn’t bear to face another year continuing on the same as the last. So, I stopped lying to myself and began to face the reality of my emotions.”

The second and final part of this guest series will be available Monday, March 19th.

GET HELP TODAY
Schedule a private consultation or second opinion with Dr. Turek to learn more about your treatment options and get all your questions answered.

What is Your First Fertile Memory?

Today’s guest blogger is Jenny Rough. We’ve gotten to know Jenny a bit while working on our upcoming workshops and pop-up exhibit in Washington, D.C. and are looking forward to meeting her there next month!

Elizabeth

What is your first fertile memory?

A friend of mine asked me that question, and I spent a few moments in silence. I thought back as far as I could.

Sunflowers.

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The day I stood among the sunflowers in a garden by the side of our house. The sunflowers had grown even taller than me, just as my mom had said they would when we planted the tiny seeds. I was four years old.

It’s fascinating to me to hear how others answer that same question. Last month, I asked the women in the Living Childfree support group I host through RESOLVE. One woman recalled a summer night and a backyard full of fireflies. Another woman remembered a hike through a rainforest. Her family was an “indoor” family, so every twist and turn on the adventure brought a new surprise and engaged her senses.

On May 15, when the ART of IF’s pop-up exhibit is in Washington, D.C., I’ll be holding a workshop on journaling your fertility journey. One of the writing exercises will be to spend five minutes writing about fertile memories.

How about you? What is your first fertile memory? Please email me at jenny.rough [at] jennyrough.com, or post a comment here and share. I’d love to hear about it!

Jenny Rough is a writer who lives in Alexandria, Virginia. Every summer, she hikes out the sunflower fields near her home. Visit her on the web at jennyrough.com.

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